...my daughter has a visual impairment ...my friend has a medical condition ...my brother has a learning disability ...my neighbour is housebound ...my mum has a mental health problem ...my wife has had a stroke ...my partner has an alcohol problem ...my dad has dementia There are 30,000 carers in Croydon. Are you one of them? How To... A Guide for Carers in Croydon 2009 - 2011 written by the Carers’ Information Service ���������������� CONTENTS Preface 5 Introduction 6 Carers’ Rights 8 1 Information Organisations that offer information, advice and emotional support 10 2 Social Services How Croydon Social Services can help 22 3 Health Health issues and services 32 4 Money Matters Advice about financial matters including benefits, discounts and managing someone else’s money 42 5 Practical Help Services and schemes to help manage your home and day-to-day living 52 6 Transport Practical and financial help to get out and about 62 7 Housing Accommodation issues 70 How To... A Guide for Carers in Croydon 2009-2011 3 CONTENTS 8 Short Breaks and Leisure How to take time out from caring 76 9 Training, Learning and Working Information about training, education and employment 86 10 Help in a Hurry Preparing for and dealing with emergencies 4 94 Subject Index 100 Organisational Index 106 Address Book A-Z 112 How To... A Guide for Carers in Croydon 2009-2011 PREFACE Preface Welcome to the 2009-2011 edition of the How To… A Guide for Carers in Croydon. The purpose of this guide is to give carers information about services and organisations that can help with any issues or questions they may have as a result of looking after someone. It covers a wide range of topics, from how to get help from social services to planning for emergencies. The first How To… was written in 1994 and there have been seven subsequent editions, a testament to the success of the original guide. Croydon Council continues to support this publication because in every consultation event that has been undertaken carers have said that clearly written, easily accessible information, that is available when they need it, is an essential tool for their caring role. We aim to help carers avoid the frustration of being passed from pillar to post in the never-ending search for an answer to questions, by ensuring they are given this guide. We do hope that the How To… answers your questions and enables you to find the help and support you need as a carer. It is available free from the Carers’ Information Service and will be circulated widely among relevant organisations, services and community venues in the borough. It is also available online at www.carerscontactline.co.uk and in other formats on request. Jane Doyle Chair of Croydon Carers Partnership Group Croydon Council How To... A Guide for Carers in Croydon 2009-2011 5 INTRODUCTION Introduction Many carers do not recognise that they are in fact a carer - the term is often used to describe someone who is paid to care (known as a ‘care worker’), but the reality is that if you are providing regular and substantial care for someone who is a family member, friend or neighbour – by performing tasks such as monitoring their medication and taking them to appointments; keeping them safe and making sense of the world for them; doing the jobs in the family home that they are not well enough to do; or undertaking personal care such as washing and dressing - then you are a carer. It is important to recognise yourself as a carer because carers can access a whole range of support in the form of information, advice, advocacy, leisure activities, financial assistance and time out from caring. There are entire organisations, welfare benefits and laws that have been established in recognition of your role. This How To... guide is for you and we hope it will also be useful for the people and organisations that support you. Whether you have suddenly found yourself in a caring situation or whether the role has developed over a number of years, information is essential. There are times when looking after someone can feel overwhelming and a lack of information can be a hindrance to getting the things that you and the person you care for need. Being informed, by using this guide and other information sources such as newsletters and websites, can help you in many ways. For example, this guide will show you how to get a benefits check for yourself and the person you care for- potentially increasing both your incomes; inform you of your legal rights to services and time off from work; and tell you about schemes that help with equipment, adaptations and home safety which could ease some of the more practical and physical aspects of your caring role. The person you care for will also benefit from you being informed about what is available - they may be able to enjoy cheaper travel, outings and holidays, as well as obtain benefits and discounts for themselves. All of these topics and more can be found in this guide. Any one of us could become a carer – 60% of people in the UK will become carers at some point in their lives and it is not unusual to look after more than one person or to be in a situation where the person you care for also looks after you. There is no single caring experience though - it can be temporary, or longterm and it may result in high levels of outside help being necessary or just a one-off piece of advice that makes all the difference. In a guide that is for all 6 How To... A Guide for Carers in Croydon 2009-2011 INTRODUCTION carers rather than a particular group, there may be sections that do not apply to you. However we have tried to address the most common issues that affect carers generally and give you pointers to sources of more specific support. After each chapter we have listed the key contacts for that topic and, at the end of the guide, we have brought all the organisations and service providers together into a handy A-Z address book so that you can easily find the contact details for the services you need. If you cannot find what you are looking for or you need further explanation we are here to help. The Carers’ Information Service, which is part of the Whitgift Foundation, provides free advice, information, support and training to carers living in, or caring for someone who lives in, the London Borough of Croydon. We have a range of publications: Carers News, our regular newsletter, factsheets covering specific issues in more depth, a monthly e-bulletin and of course, this guide. Our website includes an electronic version of these as well as other information that you may find useful. We are also here to listen, advise and support you on any aspect of your caring role. The information presented here was correct as at April 2009. However, information quickly becomes out of date so any omissions, inaccuracies and changes will be compiled into an amendment sheet (available on request) and will also be updated on our website and publicised in Carers News. The guide is published every two years and all carers on our mailing list will automatically be sent a copy of the next edition. The publication of this guide could not have been achieved without the funding and expertise provided by a number of people and organisations. Our grateful thanks to: the Whitgift Foundation for continuing to support the carers of Croydon through the work of the Carers’ Information Service; Croydon Council, for funding the guide; Ian Lynch from Croydon Voluntary Action for designing the How To and all of our publications; our volunteers and finally the carers who took part in our survey and follow-up meetings after the publication of the last edition, giving us valuable feedback that shaped this latest version. We thank you all. Helen Thompson, Carol Harknett, Jenny Jones, Ruth Laws. Carers’ Information Service. How To... A Guide for Carers in Croydon 2009-2011 7 CARERS’ RIGHTS Carers’ Rights It is important that you are aware of your rights as a carer, and the rights of the person you care for, otherwise you will have no way of knowing whether you are receiving all the services that you are legally entitled to. An awareness of your rights will also be an advantage in case you need to pursue a complaint. As a result of various Acts of Parliament carers’ rights have been legally established as follows: • The Carers (Recognition and Services) Act 1995 introduced the right to a carer’s assessment for all carers, including young carers. • The Carers and Disabled Children Act 2000 extended these rights to include the right to support services and for these services to be made available with direct payments and vouchers. • The Carers (Equal Opportunities) Act 2004 promotes more opportunities for carers in areas such as work, leisure and studying. It places a duty on local authorities to ensure that all carers know that they are entitled to an assessment of their needs. It also places a duty on councils to consider a carer’s outside interests when carrying out an assessment. • The Children Act 1989 gives young carers (under the age of 18) of a disabled parent, the right to be regarded as ‘children in need’. • The Mental Health Act 1983 gives carers (if they are the nearest relative) of people with a mental health problem the right to ask for an assessment of the person they are caring for. • The Civil Partnership Act 2004 enables same-sex couples to obtain legal recognition of their relationship. Couples who form a civil partnership will have a new legal status, that of ‘civil partner’. Civil partners who are carers will therefore have greater rights in areas such as welfare benefits. • The Employment Act 2002 gives parents with children under six or disabled children under 18, who have worked for their employer for at least 26 weeks, the right to apply for flexible work arrangements. It also gives carers the right to take (unpaid) time off work for dependants in cases of emergency. 8 How To... A guide for carers in Croydon 2009 CARERS’ RIGHTS • The Work and Families Act 2006 extended the benefits of flexible working rights to carers of adults. • The Children and Young Persons Act 2008 created a new duty on local authorities to provide short break services and to properly support disabled children and their families when children are placed away from home. • The Equalities Bill (currently being discussed in parliament, April 2009) will streamline and strengthen discrimination legislation, including banning discrimination and harassment against carers by protecting people who are ‘associated with’ someone who is disabled. This will apply to employment, and the provision of goods, facilities and services. Some Interesting Facts About Carers • There are an estimated six million carers in the UK • There are 30,000 carers in the London Borough of Croydon, including 3,000 young carers • Every day 6,000 people become carers for the first time • 3 million people combine work with caring • Carers save the economy £87 billion per year (Extracted from Carers Strategy 2008-2011: Making Croydon a Better Place for Carers and Carers UK Policy Briefing: Facts About Carers, 2009) How To... A guide for carers in Croydon 2009 9 1. INFORMATION Information, Advice and Emotional Support Becoming a carer can radically alter your life – you may suddenly be caught up in a whirlwind of appointments and jargon and your normal routine can be thrown completely. Carers who have become more used to their role may still find that they experience times of change and stress and need extra support outside of friends and family. Talking to someone about your feelings can help and there are counselling services, helplines and support groups that give you the space to share with others how you feel about your situation. You may want more practical help with tasks such as securing appropriate services for yourself and the person you care for, especially if you have never been involved with these issues before, and there are organisations that can do this by making phone calls on your behalf, going to meetings with you, filling out forms, putting your views in writing and giving more specialist help such as legal representation. This guide is primarily concerned with organisations and services that specifically help carers and the person that you care for. Most organisations have a particular focus, such as supporting carers of a certain age or those who look after someone with a specific condition, see our factsheet Specific Conditions. There are also services that support people generally that may be of use to you in your caring role, for example those that relate to a particular faith community or ethnicity; our factsheet BME Carers lists a wide range of such groups. You can find out about the full range of voluntary and community groups in the borough from Croydon Voluntary Action (020 8684 3862, www.cvalive.org.uk), which publishes a free Directory of Community 10 How To... A Guide for Carers in Croydon 2009-2011 INFORMATION. 1 Organisations in Croydon. Internet resources such as Talk2Croydon (www.talk2croydon.co.uk), which offers you the chance to have your say about local issues and get involved in campaigns, and Croydon Online (www.croydononline.org), a community website that lists local organisations, activities and clubs for all ages and abilities, can also be useful. Support for all Carers In Croydon, there are three carers’ support organisations that work with all carers, irrespective of the disability or illness of the person they care for. There are also national carers’ organisations offering information, advice and helpline services. The Carers’ Information Service (020 8649 9339, option 1, www.carerscontactline.co.uk) offers advice, information, support and training to any adult carer living in, or caring for someone who lives in, the London Borough of Croydon. We offer an enquiry service so that you can contact us by phone, in writing or in person (by appointment) to talk about the issues you are facing. As well as offering a listening ear, we can liaise with other professionals on your behalf, help write letters, fill out forms and undertake research in order to answer any questions you have about caring. We also have a range of publications including this guide, a regular newsletter called Carers News and a monthly e-bulletin, all of which are free and available on our website. Our series of factsheets includes the titles: Caring for a Child with a Special Need or Disability, Caring for an Adult, BME Carers, Support for Specific Conditions, Holidays and Grants. We offer regular training courses, which cover practical, or self-development topics such as moving and handling and being more assertive. These courses enable you to learn a new skill, meet other carers and take time out from your caring role. Funding is available to cover the costs of alternative care for you to be able to attend our courses or any others that are relevant to your caring role. We also work with other organisations to run events for Carers Week in June and Carers Rights Day in December. We raise awareness of issues affecting carers and campaign for change by participating in forums such as the Carers Partnership Group. This multi-agency group meets to discuss wider issues that are of concern to carers in Croydon, and includes representatives from local organisations, services and carers. You are welcome to contact us if you have an issue which you would like us to take to the Carers Partnership Group for discussion. How To... A Guide for Carers in Croydon 2009-2011 11 1. INFORMATION Croydon Crossroads Carer Support Service (020 8667 9893) supports carers living in Croydon and can help you in various ways to access the support and services you need. A support worker can visit you at home and offer emotional support, attend meetings with you, help fill out forms, accompany you to benefit appeals and much more. The service also runs three grants schemes: up to £200 towards a holiday for carers (this can only be applied for every two years), up to £30 a month towards transport costs taken for leisure purposes, and grants to subsidise the cost of training courses and any alternative care required (this can be any training, it does not have to be related to your caring role). There are regular lunches for carers who are current users of the service. Croydon Carers Centre (020 8688 7219, www.croydoncarerscentre.co.uk) runs a drop-in facility offering emotional support, help and advice with benefits, signposting to other services and advocacy. It also offers counselling, complementary therapies and outings for carers and those they care for. National Organisations • Carers Direct (0808 802 0202, www.nhs.uk/carersdirect) offers information, advice and support to all carers, including young carers. Lines are open 8 am - 9 pm Monday to Friday, 11 am - 4 pm at weekends. • Carers UK (0808 808 7777, www.carersuk.org) is an active campaigner for carers’ issues, produces a range of publications and has a helpline for carers open on Wednesday and Thursday 10 am – 12 noon and 2 – 4 pm. • The Princess Royal Trust for Carers (0844 800 4361, www.carers.org) has carers’ centres across the UK and hosts discussion boards on its website. Support for Young Carers The Young Carers Support Project (020 8649 9339, option 2, www.carerscontactline.co.uk) is for children and young people from the age of seven to 25 (maximum of age 18 at point of referral) who are providing a significant amount of care for a parent or sibling. The project conducts carers’ assessments (see chapter two) and offers home visits, information, advice, advocacy, regular outings and activities during school holidays and support applying for grants. There is specialist help for young carers of a parent who 12 How To... A Guide for Carers in Croydon 2009-2011 INFORMATION. 1 has a mental health problem and those who need help with school issues, including a weekly homework club during term-time. National Organisations • An online community for young carers at www.youngcarers.net offering chatrooms, forums and newsletters as well as support from online youth workers and agony aunts. • Sibs (01535 645 453, www.sibs.org.uk) provides information, advice and support to brothers and sisters (siblings) of people with special needs, disabilities or chronic illness. Parent Carers of Children and Young People with a Disability When referring to children and young people with a disability we are including those with ‘special needs’ and ‘special educational needs’. Parents in Partnership (PIP) (020 8651 6198, www.pipcroydon.btik.com) is a first point of contact for parent carers in the borough and can give you advice and information, as well as details of other services. Face 2 Face (020 8667 0207, www.croydon-homestart.co.uk) is a befriending service providing parent carers with emotional support, especially with coming to terms with their child’s disability. There is also a monthly support group. Beulah Family Church Parent Support Group (020 8771 4570) is for any parent of a child with a disability; they do not need to be a member of the church. It meets on a monthly basis and offers emotional support and the chance to meet other people in a similar situation. There are a number of Children’s Centres in Croydon that offer stay and play sessions for disabled children and their carers as well as workshops and advice sessions. To find your nearest centre, contact the Family Information Service on 0845 1111 100, www.croydonchildcare.com. Families with a child aged five and under who has complex needs and receives, or is likely to receive, input from more than four different services, can get practical and emotional support from the Early Support Programme for How To... A Guide for Carers in Croydon 2009-2011 13 1. INFORMATION Disabled Children (07799 471428, www.earlysupport.org.uk). This programme aims to improve the services families receive by ensuring effective multi-agency working - this is usually done by allocating a key worker who will liaise with other professionals on behalf of the family. National Organisations • Contact a Family (0808 808 3555, www.cafamily.org.uk) offers a comprehensive information service to families caring for a child with a disability through their helpline and range of publications. Their www.makingcontact.org site puts families caring for a child with a similar condition in touch with each other. • Gingerbread (0800 018 5026, www.gingerbread.org.uk) has a helpline and factsheets for lone parents, and a specialist advice service for lone parents caring for a child with a disability or long-term health problem. Carers of Older People Age Concern Croydon (020 8680 5450, www.ageconcerncroydon.org.uk) offers a range of services to people aged 55 and over, and to people of any age who have a disability, including children, and their carers. These services include information, advice, advocacy, befriending, handy person services, computer training, nail cutting, benefits advice and home safety checks. It also has an online directory (www.accdirectory.org.uk) that gives details of local and national services and organisations of use to older people and carers. The Partnership for Older People (POP) Service (020 8654 4440, www.croydonpop.org.uk) has a bus that that goes to various locations across the borough bringing services, information and advice to people aged 55 and over and their carers. There are many different professionals and services available at different times including: blood pressure checks, falls prevention, health ‘MOTs’ and medicines management, hearing assessments and benefits advice. Croydon Neighbourhood Care Association (020 8662 1000, www.cnca.org.uk) has neighbourhood care groups all over the borough. The groups are independent and have their own volunteers that offer a variety of services to meet the needs of people in their area who are isolated, vulnerable or disabled. 14 How To... A Guide for Carers in Croydon 2009-2011 INFORMATION. 1 The services provided differ from group to group, but examples of the help they can offer include short breaks for carers, befriending, occasional gardening and DIY, shopping, lunch clubs and transport. Older People’s Network (OPeN) (020 8683 7002) offers older people the chance to meet regularly and express their opinions about the issues that matter to them. The group’s views are then passed on to service providers via representatives, ensuring everyone’s voice is heard. Carers of People with a Physical Disability DisabilityCroydon (020 8684 5538, www.disabilitycroydon.org.uk) provides information, advice and support to adults with a physical disability or sensory impairment and their families. Services include a helpline, regular newsletter, RADAR keys for accessible toilets, an alternative formats service (large print, Easy Read, audiotape, disk or Braille translations) and disability equality and computer training. In partnership with Age Concern Croydon, DisabilityCroydon runs ACDC Advocacy, which provides advocacy support for people aged 18–54 with a physical disability or sensory impairment. People aged 55 and over should access the scheme via Age Concern Croydon (020 8680 5450, www.ageconcerncroydon.org.uk). DisabilityCroydon also runs the Direct Payment Support Service (see chapter two). National Organisations • Scope (0808 800 3333, www.scope.org.uk) offers information, support and advice to people with a physical disability and their carers. Carers of People with a Sensory Impairment Croydon Hearing Resource Centre (020 8686 0049, www.croydonhearing.org.uk) gives information and support to people with hearing loss and their carers. The centre provides advice and practical help, including re-tubing and supplying batteries for NHS hearing aids, onsite and at the local surgeries they hold around the borough. Home visits are offered to people who are housebound; and hearing equipment assessments are carried out on behalf of social services. How To... A Guide for Carers in Croydon 2009-2011 15 1. INFORMATION Croydon Deaf Children’s Society (07951 611190, www.croydondeafchildren.org.uk) offers information, advice and support to children with a hearing impairment and their families, particularly at difficult times such as diagnosis or choosing a school. It also arranges social events to enable the children to enjoy each other’s company and for parents to talk and support one another. Croydon Voluntary Association for the Blind (020 8688 2486) offers practical support, information and advice for adults with a visual impairment and their carers. It provides a wide range of social activities such as lunch clubs and day centres, free counselling, rehabilitation services and support for people newly registered blind. National Organisations • Royal National Institute of Blind People (RNIB), (0303 123 999, www.rnib.org.uk) offers practical support and advice to anyone with a sight problem. • Royal National Institute for the Deaf (RNID), (0808 808 0123, textphone 0808 808 9000, www.rnid.org.uk) offers a wide range of services for people with a hearing impairment and their carers. • Sense (0845 127 0060, textphone 0845 127 0062, www.sense.org.uk) supports deafblind people, their families and carers. Carers of People with a Learning Disability If you care for a child or adult with a learning disability you can get information and support from Croydon Mencap (020 8662 9201, www.croydon.cswebsites.org). Croydon Mencap publishes a free Directory of Services for People with Learning Disabilities and a regular newsletter. Other services include daytime activities, evening and weekend clubs, Treetops Children’s Centre and welfare benefits advice. It also runs an Older Carers Support Service offering information, advocacy, social events, and help with transport costs to carers aged 60 and over who care for an adult with a learning disability. This service can also carry out carer’s assessments on behalf of social services. Advocacy Partners (020 8681 4903, www.advocacypartners.org) is a 16 How To... A Guide for Carers in Croydon 2009-2011 INFORMATION. 1 professional advocacy service for people with learning disabilities living in Croydon. It enables people to have control over their own lives, make decisions, be treated fairly and participate fully in community life. Carers of People with a Life-Limiting or Life-Threatening Condition The Macmillan Cancer Information and Support Service (020 8401 3441) provides information, support, counselling and free complementary therapies for cancer patients and their carers. It also offers a drop-in service (ring to check times) and you can book an appointment to see a Citizen’s Advice Bureau worker on some days. The South East Cancer Help Centre (020 8668 0974, www.sechc.org.uk) offers information, counselling, complementary therapies and activity groups such as drama and yoga for cancer patients and their carers. There are support groups for specific cancers such as prostate, bowel, lung and liver cancer. The Hospice Information Service (020 7520 8222, www.helpthehospices.org.uk) provides information about hospice care and how to find a hospice. The Association for Children’s Palliative Care (ACT) (0845 108 2201, www.act.org.uk) provides information and support to parent carers of children with a life-limiting or life-threatening condition. Carers of People with Mental Health Problems Rethink Croydon Carers Support Service (020 8649 9339, option 3, www.carerscontactline.co.uk) provides support, advice, information, advocacy and training for adults who are caring for someone with a severe mental illness. The service offers home visits, assistance and advocacy at meetings, and the opportunity to meet other carers through its Afternoon Carers Support Group and African and Caribbean Carers Group. Rethink also supports the NSF Carers Group (020 8660 3746) and the Voices Forum (for people with schizophrenia and their carers) (020 8464 7052). Regular Carer Education talks are held in Croydon for people who care for someone with a mental health problem. Professionals and service users are also welcome at these events. There is usually a talk from a professional and How To... A Guide for Carers in Croydon 2009-2011 17 1. INFORMATION the chance to meet other carers and share experiences. For more information contact Rethink on 020 8649 9339, option 3. Mind in Croydon (020 8668 2210, www.mindincroydon.org.uk) offers a wide range of services for people with mental health problems, their carers and families including social clubs, work experience, employment and social inclusion service, active minds project (giving support to access leisure and education services), advocacy, counselling, information helpline, furniture service and welfare benefits advice. It also produces a free Guide to Mental Health Services in Croydon. The Croydon Association of Pastoral Care in Mental Health (020 8665 6718, www.croydon-apcmh.co.uk) offers drop-in sessions, creative workshops and social activities for people with mental health problems. Carers of people with a mental health problem are welcome to join the Croydon Mental Health Forum (020 8683 7010), which is facilitated by Croydon Voluntary Action. The forum is made up of people who have experienced mental health problems, carers, people who work in the voluntary or community sector, and members of the public. The aim of the forum is to strive for improvements to treatment and care for mental health service users and their carers. National Organisations • SANE (020 7375 1002, Saneline 0845 767 8000, www.sane.org.uk) provides an information and support service to people experiencing mental health problems, their families and carers. Carers of People with Dementia Croydon Memory Service (020 3228 9500) provides an assessment, diagnosis and treatment service for adults experiencing memory difficulties, and support for their carers. If the person you care for has dementia you can get information, advice and support from the Alzheimer’s Society Croydon (020 8916 3587). It also carries out carer’s assessments on behalf of Croydon Council, provides training courses and support groups for carers, access to alternative care, help with benefit forms and a monthly social event called the Forget-Me-Not Café for people with dementia and their carers. 18 How To... A Guide for Carers in Croydon 2009-2011 INFORMATION. 1 Carers of People with a Substance Addiction If you are affected by someone else’s substance misuse you may be interested in the Family, Friends and Carers Support Group run by Croydon Community Drug Agency (020 8686 7500). There are various Alcoholics Anonymous (AA) group meetings in Croydon, all of which are ‘open’ to carers at least once a month. For details ring 020 7833 0022 for Croydon, or 01883 330720 for Purley, Coulsdon, Addington, Selsdon and Sanderstead. There are two Al-Anon Family Groups (020 7403 0888) in Croydon for carers of problem drinkers. Alateen is part of Al-Anon and is for young people, aged 12-17, who are affected by someone else’s drinking. Call for details of local groups. Croydon Alcohol Counselling Service (020 8667 9500) provides individual or couple counselling for those experiencing problems with alcohol (now or in the past) and their carers. The Drugs ‘n’ Alcohol Service (DNA) (020 8296 9655) offers counselling for people aged 14-26 who live, work or study in Croydon and want to talk about their own or someone else’s drug or alcohol use. National Organisations • FRANK (0800 776600, www.talktofrank.com) offers advice and information to anyone concerned about drug use. • Adfam (020 7553 7640, www.adfam.org.uk) supports people affected by drugs or alcohol. Counselling Counselling offers people the chance to talk in complete confidence and can be particularly beneficial to carers who may not feel that they can speak freely about how they really feel about their caring role to those around them. The Rethink Croydon Counselling Service (020 8649 9339, option 4, www.carerscontactline.co.uk) offers up to twelve free counselling sessions with a trained counsellor for any carer in Croydon. This is the only carers-specific counselling service in the borough, but there are many general counselling services in Croydon, contact us on 020 8649 9339, option 1 for more details. National Organisations • British Association for Counselling and Psychotherapy (01455 833 316, How To... A Guide for Carers in Croydon 2009-2011 19 1. INFORMATION www.bacp.co.uk) can help you find a local counsellor or psychotherapist. • Counselling Directory (www.counselling-directory.org.uk) lists local contacts. Legal Information and Advice and Making a Complaint The Croydon and Sutton Law Centre (020 8667 9226) provides solicitors who can help with housing, employment, benefits and equalities issues. Legal advice is means tested. Croydon Citizens Advice Bureau (CAB) (www.croydoncab.org.uk) New Addington CAB (01689 846 890) Thornton Heath CAB (020 8684 2236) The CAB provides free, confidential and impartial advice and information on a wide range of issues including debt, benefits, employment and housing. The Disability Law Service (020 7791 9800, www.dls.org.uk) provides a confidential and free legal advice and casework service for disabled adults, their families and carers. It specialises in community care, employment, education, welfare benefits, disability discrimination and consumer contract law. Community Legal Advice (0845 345 4 345, www.communitylegaladvice.org.uk) provides free legal advice and information to people who live on a low income or benefits, on issues such as debt, education, benefits and tax credits, employment and housing problems. The service can also help you find a local legal adviser. 20 How To... A Guide for Carers in Croydon 2009-2011 INFORMATION. 1 Key Contacts Age Concern Croydon 020 8680 5450 Alzheimer’s Society Croydon 020 8916 3587 Carers Direct 0808 802 0202 Carers UK 0808 808 7777 Community Legal Advice 0845 345 4 345 Contact a Family 0808 808 3555 Crossroads Carers Support Service 020 8667 9893 Croydon and Sutton Law Centre 020 8667 9226 Croydon Carers Centre 020 8688 7219 Croydon Community Drug Agency 020 8686 7500 Croydon Deaf Children’s Society 07951 611 190 Croydon Hearing Resource Centre 020 8686 0049 Croydon Mencap 020 8662 9201 Croydon Neighbourhood Care Association 020 8662 1000 Croydon Voluntary Action 020 8684 3862 Croydon Voluntary Association for the Blind 020 8688 2486 Disability Law Service 020 7791 9800 DisabilityCroydon 020 8684 5538 Macmillan Cancer Information & Support Service 020 8401 3441 Mind in Croydon 020 8668 2210 Parents In Partnership 020 8651 6198 Rethink Croydon Counselling Service 020 8649 9339, option 4 Rethink Croydon Carers Support Service 020 8649 9339, option 3 Young Carers Support Project 020 8649 9339, option 2 If you cannot find what you are looking for, please contact the Carers’ Information Service on 020 8649 9339, option 1. How To... A Guide for Carers in Croydon 2009-2011 21 2. SOCIAL SERVICES Social Services In addition to carers’ support organisations, there are a number of statutory services available within the borough for you and the person you care for. Some of these are offered by Croydon Social Services, a department of Croydon Council that aims to support people within the community. Before anyone can receive a service, an assessment of need must be undertaken. If the criteria is met, help that may be offered includes assistance with daily living, such as personal care (washing, dressing), meals and shopping, equipment, playschemes for disabled children, short breaks (giving you and the person for whom you care some time out), day centres and alternative housing options such as nursing homes. The ways in which these can be provided varies, for example they may be organised directly by social services, or by another organisation such as a charity or, increasingly, carers can be given money directly to make their own independent arrangements. Who Provides a Service? In some cases, the disability of the person you care for will determine who provides the service. For example, if you look after someone with a mental health problem, the South London and Maudsley (SLaM) NHS Foundation Trust (020 3228 6000, www.slam.nhs.uk) provides social care services; see also chapter three. If you and the person you care for live in different boroughs then access to services is slightly different. For example, an assessment of need (to determine what, if any, services can be provided) for the person who is cared for, is always carried out by the social services department in the borough in which they live and therefore your assessment as a carer would also be their responsibility. So, if the person you look after lives in Croydon, but you live 22 How To... A Guide for Carers in Croydon 2009-2011 SOCIAL SERVICES. 2 elsewhere, then you would need to contact Croydon Social Services. However, if you live in Croydon but the person you care for lives somewhere else it will be social services in the other borough that carries out any assessments and provides services to you both. If this is the case, it would be a good idea to get in touch with a carers’ organisation in that area for information and advice about local services; please contact us on 020 8649 9339, option 1 for more details. How To Get Help Assessment of Need If you think that you need more support in your caring role you should begin by asking social services for an assessment of need of the person you care for. This can be done by contacting Social Services for Adults on 020 8726 6500 or, if you care for a disabled child, contact Children’s Services on 020 8726 6400. This request can also be made in person at the following Access Croydon locations (these are Croydon Council offices). There is no telephone contact for these offices as contact should be made via the numbers above. • Taberner House, Park Lane, Croydon CR9 3JS • New Addington, 90 Central Parade, New Addington CR0 OJB • Strand House, Zion Road, Thornton Heath CR7 8RG Your telephone request will be dealt with by someone from the Croydon Council Contact Centre and you will be asked a series of standard questions to work out whether the person you care for can be referred to a specialist team for an assessment of need. These teams cover specific groups such as older people, adults with a learning disability and children with disabilities. Once a referral has been made and it is agreed that the person you care for does meet the specified criteria, arrangements will be made for a care manager to undertake a home visit. This is the time to say if you need an interpreter and whether you want or need to be present. If the staff at the Contact Centre do not feel that they can make the referral it will usually be because the person you care for does not meet their eligibility criteria; they should however advise you about alternative sources of help. How To... A Guide for Carers in Croydon 2009-2011 23 2. SOCIAL SERVICES Croydon Social Services decides whom they can help by using guidance from the government’s Department of Health called “Fair Access to Care Services”. The aim of this guidance is to prioritise those people in the community at greatest risk of losing their independence. The person you are looking after will be assessed as having either a “critical”, “substantial”, “moderate” or “low” risk of losing their independence. This means that the higher the risk, such as not being able to live independently, the greater the level of service provision. This system does not apply to children with a disability; if they are under the age of 18, live in Croydon and have a “permanent and substantial disability with a severe or profound impairment”, you and your child will be assessed under the Common Assessment Framework (CAF). The CAF looks at your child’s disability, health needs and education and will also take into account the needs of the family as a whole. If there are a number of professionals working with your child you may want one of them to be the “lead professional” who will support you during this, and future assessments, and co-ordinate all the services supporting your child. If the person you are looking after is in hospital and is likely to need extra care and support when they are home, you should speak to ward staff who will put you in touch with the Care Management Team at the hospital. This team should carry out the assessment, make arrangements on your behalf and refer you to any other local services. An assessment of need is an opportunity for the person you care for, or for you on their behalf, to describe the things that he or she likes and needs to do but finds difficult and to discuss solutions. As far as possible these needs will be taken into account, together with cultural, language and religious preferences, when deciding on the best support. In order to prepare for the assessment, it might be helpful to think about the following and how they affect the independence of the person you care for. A written list is always useful so that you do not forget anything during the meeting. • Are there health and safety concerns? • Are there difficulties with personal care and other daily routines? • Can the person you care for make choices and express their views? 24 How To... A Guide for Carers in Croydon 2009-2011 SOCIAL SERVICES. 2 • Are there barriers to involvement in family and community life including leisure, work, learning or volunteering? There are organisations that offer support to carers at meetings like this and can liaise with social services on your behalf, see chapter one for more details. Following the home visit and a financial assessment, if a service can be offered, the person you care for should receive a written care plan that includes details of these services and any charges to be made. This is an important document and it should be sent out within a “reasonable time” so it is probably a good idea to keep a record of each stage of the assessment so that you can chase it up if necessary. Financial Assessment There is no charge for an assessment, but like most local council departments, Croydon Social Services has a policy of charging for its services to adults but not to children with a disability. At the time of the home visit or soon afterwards, a financial assessment form will be given which asks for information about income and savings, so that social services can work out how much, if anything, should be paid towards the cost of services that the person you care for receives. A spouse or partner is not under any obligation to provide details of their finances unless residential care is needed. If you have any queries or difficulties with the financial assessment form you can contact the Charging Helpline on 020 8760 5676. There are no national guidelines on charging, but charges must be “reasonable” and nobody should be caused hardship or denied a service they need because they cannot pay. You have every right to question the amount being charged by calling the helpline and you can also ask for a formal review. If the charges are not paid, the council can take legal action to recover the debt, but it will still have to provide the services. How To... A Guide for Carers in Croydon 2009-2011 25 2. SOCIAL SERVICES Direct Payments Direct payments are cash payments made to an individual, giving the person the choice to buy and arrange their own social care services. Anyone aged 16 or over who has been assessed as being entitled to help from social services can choose to have that help in the form of a direct payment. This money can then be used to buy services to help with identified needs in the care plan such as personal care, practical tasks, getting out and about and short breaks for carers. Many people use direct payments to hire a care worker through an agency or to become an employer of a care worker themselves. The Direct Payments Support Service (020 8664 3820) is run by DisabilityCroydon and provides help to users and those who are thinking about taking on a direct payment by offering advice and information, as well as practical support and training on all the financial aspects of employing people. Independent Living Funds The person you care for may be entitled to additional money from Independent Living Funds if he or she receives services or direct payments from social services. To be eligible, they must receive the highest rate of Disability Living Allowance (see chapter four) and be aged between 16 and 64. For more information contact the Independent Living Fund Development Officer for Croydon on 020 8239 4384 or see www.ilf.org.uk. Self-Directed Support Self-directed support is a new way of providing adult social care and all councils are expected to make significant changes towards this by 2011. Under selfdirected support adults who are eligible for services will be allocated a personal budget and will agree a support plan with social services about how they will use it. They may choose to receive the personal budget as a direct payment, or to have it managed by someone else. They will have a financial assessment, as with the current system, and may have to pay towards services. For more information contact Croydon Council on 020 8726 6000. 26 How To... A Guide for Carers in Croydon 2009-2011 SOCIAL SERVICES. 2 Carer’s Assessments If you are looking after someone who is eligible for an assessment of need (even if they have not had one) and you provide care for a substantial amount of time on a regular basis you have a legal right (under the Carers’ and Disabled Children Act 2000), whatever your age, to a separate assessment of your own needs. This includes young carers, who must be seven or older at the time of the referral. It is slightly different if you are a parent carer as your needs will be taken into consideration as part of the assessment of your child. You can have a carer’s assessment even if the person you care for does not want an assessment of their needs. You can also ask for an assessment if you are going to be providing care for someone in the future, for example after they come home from hospital or if they are coming to live with you. If you care for someone with a mental health problem you can request a carer’s assessment from the community mental health team that co-ordinates care and treatment for the person you look after. Some carers will be referred to local charities such as Croydon Mencap (020 8662 9201), the Alzheimer’s Society Croydon (020 8916 3587) and the Young Carers Support Project (020 8649 9339, option 2) who will carry out a carer’s assessment on behalf of social services. To ask for a carer’s assessment you should contact Social Services for Adults on 020 8726 6500 or, if you care for a disabled child, contact Children’s Services on 020 8726 6400. You can also request a carer’s assessment in person at one of the Access Croydon locations listed previously in this chapter. A carer’s assessment is not a judgement of your ability to care; it is your opportunity to tell social services about the things that would make caring easier for you. It can be carried out at the same time as the assessment of need for the person you are looking after, or separately. In Croydon, carers are often sent the carer’s assessment form in the post to complete in your own time. You may want to discuss this with someone and there are organisations that can support you; see chapter one for more details. Under the Carers (Equal Opportunities) Act 2004, local authorities also have a duty to take into account a carer’s work, study and leisure interests. You will be given a form to complete that asks questions about finding time for yourself and whether any other roles and responsibilities are affected by your How To... A Guide for Carers in Croydon 2009-2011 27 2. SOCIAL SERVICES caring role. Think about what you do each day, which times of the day are most stressful, and what the difficulties are: • Do you get enough sleep? • Is your health affected in any way? • Do you get any time for yourself, and are you able to get out and about and follow your own interests? • Are your other relationships affected by your caring role? • Are you worried you may have to give up work or other responsibilities? You should include any practical ideas you have about what will help you, and you can ask for services that will enable you to continue looking after someone as well as those that maintain your health and wellbeing. Possible services for carers include transport, equipment, a phone, driving lessons and short breaks. Your carer’s assessment should also include planning for emergencies; see chapter ten. Do not forget that you have the right not to be a carer. This can be hard to say or it may not seem like a realistic option, but a key part of the carer’s assessment should be whether and to what extent you can continue, or take on, a caring role. After you have submitted the carer’s assessment form the care manager will let you know if you are eligible for any services, such as short breaks. All adults, including parent carers, will be asked to complete a financial assessment form to calculate how much you should pay, and the services you are going to receive should be detailed in a written care plan. If you do not receive this, or do not get a response to your assessment form, contact the care manager. You should have another carer’s assessment if the person you care for is reassessed because circumstances have changed, although you can also ask for a review of the care plan at any time. 28 How To... A Guide for Carers in Croydon 2009-2011 SOCIAL SERVICES. 2 Protecting Children and Adults Another important function of social services is to “safeguard” vulnerable people. Carers need to be aware that children and adults who are disabled, ill or have long-term health conditions are regarded as being more at risk of suffering abuse. There is a system in Croydon that aims to provide immediate support if you are at all concerned. If you are worried about a child, contact Children’s Services on 020 8726 6400 and if you are concerned about an adult, contact the Adult Abuse Reporting Line on 020 8760 5697. Both numbers are open 24 hours. For non-urgent advice and information ring the Safeguarding Adults Team on 020 8760 5790. You can also contact the NSPCC Child Protection Helpline on 0808 800 5000 or Action on Elder Abuse on 0808 808 8141. Registers You may think that you need to inform social services, or ‘register’ yourself as a carer, but there is no requirement on social services to hold either a register of carers or of disabled adults. Social services are however legally required to keep a register of disabled children. The Register for Children and Young People with Disabilities is held by Register Services (020 8770 8237, www.registerservices.nhs.uk) and parents can place their child’s name on the register directly. One of the benefits of doing so is that all registered children are sent an I-Count Card that can be used as proof of disability. Adults who are blind or visually impaired can be ‘registered blind’. Their consultant ophthalmologist must send a certificate of visual impairment to the Sensory Impairment Team at Croydon Council (020 8726 6500) who will then contact the individual directly to arrange registration. The registration card can be used as proof of disability. How To... A Guide for Carers in Croydon 2009-2011 29 2. SOCIAL SERVICES Complaints About Social Services If you, or the person you care for, are not happy with the services you receive, or if you have been refused services, you should begin by discussing it with the care manager who carried out the assessment. If you are still not satisfied, you can make a formal complaint by contacting Croydon Council on 020 8726 6000 and asking for a complaint form which will give details of the procedures to follow, including timescales. If you would like help to make a complaint see chapter one for details of local organisations that can assist you. If you are not satisfied with Croydon Council’s response to your complaint you might want to take it further. You can make a complaint to the Local Government Ombudsman, but only if it is felt that the council is at fault and this has caused problems for you. This might be because of the way in which a service has been delivered, or because of the way in which a decision has been made. You cannot complain about the decision itself simply because you do not agree with it. To find out more, contact the Local Government Ombudsman on 0845 602 1983 or go to www.lgo.org.uk. Key Contacts Adult Abuse Reporting Line 020 8760 5697 Charging Helpline 020 8760 5676 Children’s Services 020 8726 6400 Croydon Council 020 8726 6000 Direct Payments Support Service 020 8664 3820 Independent Living Fund 020 8239 4384 Local Government Ombudsman 0845 602 1983 Register Services 0208770 8237 Safeguarding Adults Team 020 8760 5790 Social Services for Adults 020 8726 6500 If you cannot find what you are looking for please contact the Carers’ Information Service on 020 8649 9339, option 1. 30 How To... A Guide for Carers in Croydon 2009-2011 SOCIAL SERVICES. 2 How To... A Guide for Carers in Croydon 2009-2011 31 3. HEALTH The health of the person you look after is possibly one of the most important concerns for you. In addition to mainstream health provision, there are specialist services and teams for groups such as older people, children and adults with disabilities, people who have a terminal illness and those with mental health problems or drug and alcohol problems and we have given information about these here. For advice about health care in an urgent situation, see chapter ten. Carers are more likely to have health problems themselves, directly as a result of caring for someone, so it is vital to access health services for your own needs too. The Impact of Caring on Your Health As a carer it is easy to neglect your own health needs because you are so focused on the well being of the person you care for. However, it is important that you look after yourself, both physically and mentally, and make sure your caring role is not having a negative impact on your health. If you stay as well as possible you will be more able to cope with the demands of being a carer, and this will benefit both you and the person you care for. Two of the most common health problems for carers are back injuries and stress-related illnesses. If you are helping someone move around, and have not been shown how to do so by a professional, you may be damaging your back. If the person you care for has a care manager ask them to help you find suitable training, or you could approach another professional involved in their care, such as a physiotherapist, for a demonstration of how to move someone safely. The Carers’ Information Service runs annual moving and handling training for carers; see chapter nine. If you are already experiencing back problems, BackCare (0845 130 2704, www.backcare.org.uk) offers advice and information on managing back pain. An effective way of dealing with stress is to talk about it; there are support 32 How To... A Guide for Carers in Croydon 2009-2011 HEALTH. 3 groups and a counselling service specifically for carers in Croydon that you can access for free; see chapter one for details. There are also services that can ease the pressure by giving you a break from caring, see chapter eight. Health Services NHS Croydon (formerly known as Croydon Primary Care Trust) is responsible for ensuring Croydon residents get the healthcare services they need. This includes GPs, district nurses and other community health services, as well as hospital care. Your GP will usually be the first professional you go to if you have any concerns about your health. Make sure you tell your GP you are a carer, and ask them to record the fact in your medical notes. This should ensure that you are offered the flu jab and a regular health check; your surgery may also have a carers support group. A GP who understands carers and is aware of your situation can be a gateway to other sources of support such as counselling, and can make referrals to agencies such as social services. You have the right to change your GP at any time and do not have to give a reason. Details of Croydon GPs, and also dentists, pharmacists and opticians, are available at www.nhs.uk or from the Primary Care Support Service on 020 8335 1400. Carers can also get a free health check, which includes a blood pessure test; a body mass index calculation; advice about administering medication; a free prescription delivery service; advice about maintaining a healthy lifestyle, including support to give up smoking: and in-store discounts at Day Lewis Pharmacies in Norbury, Sanderstead and Thornton Heath. Community health services in Croydon include: • The Children’s Hospital at Home Team (020 8714 2501) which provides acute nursing care for children who would otherwise be in hospital; nursing care; continuing care and play therapy for children with complex health needs; advice for families caring for a disabled child. Referral must be made via a health professional. • The Community Dental Service (020 8714 2708) which provides dental care for people who struggle to access mainstream dentists, such as people with a learning disability or people who are housebound. Self-referrals accepted. How To... A Guide for Carers in Croydon 2009-2011 33 3. HEALTH • The Continence Service (020 8714 2979) which provides advice, assessment and supplies of continence aids to people with bladder or bowel problems. Self-referrals accepted. • The Health Visiting Team for Older People (020 8714 2800) which provides information, advice and support on any health, social, housing or financial issue. The team usually works with people aged 55 or over. Self-referrals accepted. • The Occupational Therapy (OT) Service which provides support for people with physical disabilities to live as independently as possible. Adults can access OT via Croydon Social Services (020 8726 6500); the Children’s OT Service (020 8274 6850) can be contacted directly. • The Physiotherapy Service which provides advice, information and treatment for people experiencing a wide range of physical problems. Adults usually access physiotherapy via their GP; the Children’s Physiotherapy Service (020 8274 6850) can be contacted directly. • The Community Podiatry/Chiropody Service (020 8274 6820/6836) which provides footcare treatments for people who are at high risk of complications, such as people with diabetes. Referral must be made via a health professional. • The Speech and Language Therapy (SALT) Service which provides diagnosis and treatment of communication and swallowing difficulties. The departments for both adults (020 8401 3103) and children (020 8714 2594) can be contacted directly. For information about Croydon’s community health services, please contact 020 8274 6300. Hospital While it is often the case that children and adults with a disability or medical condition will have hospital admissions, it is sometimes forgotten that carers sometimes have to go into hospital too. If you are concerned about who will look after the person you care for in your absence then you should contact their care manager, or social services if they do not have one; see chapter two about requesting a social services assessment. It is important to make social services aware of the situation as soon as possible, as you will need to request an assessment of the person you care for to see if they are eligible for community care services. It can take time for this process to be carried 34 How To... A Guide for Carers in Croydon 2009-2011 HEALTH. 3 out and for alternative care to be arranged. You will need to work closely with the care manager in case of cancellation or postponement of your hospital admission. You may also need support in place once you are discharged as you may need time to recuperate and not be able to resume caring straight away. The care management team at the hospital should help arrange a package of care in this situation. If you have ongoing health issues that may result in sudden hospital admission, you may want to ask social services to help you draw up an emergency plan (perhaps as part of a carer’s assessment), so that if you are admitted to hospital unexpectedly you know the person you care for will be looked after appropriately and immediately. If the person you care for is admitted to hospital you should be involved at all stages in discussions about their care. The person you care for should be assessed by the hospital care management team and a care plan drawn up which details the support which is to be in place before discharge. The care management teams at Mayday Hospital can be contacted on 020 8401 3148 (Adult Care Management Team) or 020 8401 3409 (Mayday Children and Families Service). If, following assessment, the person you care for is deemed to have support needs that cannot be met by standard community health services, the Community Intermediate Care Service (CICS) may become involved. CICS (020 8274 6444) works to prevent hospital admission and encourages prompt discharge, and it can provide up to six weeks intensive support following discharge. You have the right to a carer’s assessment (see chapter two) to look at the support you will need if you have chosen to start, or continue caring, after a hospital admission. If the person you care for will require a high, ongoing level of care that is directly related to their health needs they should be assessed for NHS continuing healthcare. If they are eligible for this the NHS will pay all health and social care costs for people living in their own homes, or all fees for those living in care homes. For more information on NHS continuing healthcare (or any aspect of Mayday’s services), contact PALS at Mayday Hospital (020 8401 3210). The Department of Health (DoH) publishes useful leaflets including NHS continuing healthcare and NHS-funded nursing care. Contact the publications orderline on 0300 123 1002 for copies. Practical and befriending support for carers may be available during and after a hospital stay from the British Red Cross Hospital and Community Service (020 8401 3590) which is based at Mayday Hospital. How To... A Guide for Carers in Croydon 2009-2011 35 3. HEALTH Mental Health Services Mental health services in Croydon, for adults and children, are provided by South London and Maudsley (SLaM) NHS Foundation Trust (020 3228 6000, www.slam.nhs.uk). Mental health services, which can be accessed via referral from a healthcare professional include: • The Croydon Integrated Adult Mental Health Service which provides services for people aged 18-65 who have a severe mental health need. • The Croydon Integrated Mental Health of Older Adults Service which provides services for people over 65 who have a severe mental health need. • The Child and Adolescent Mental Health Service (CAMHS) which provides services for children and young people up to the age of 18. • The Primary Care Psychological Therapy Service which provides therapies for adults aged 18 and over with mild to moderate mental health needs. • The Croydon Integrated Psychological Therapies Service which provides therapies for adults aged 18-65 with moderate to severe mental health needs. The majority of in-patient care for Croydon residents who are experiencing a mental health crisis occurs at Bethlem Royal Hospital, but there are two community-based residential treatment centres which can provide alternatives to hospital: Ashburton Road Crisis Unit and the Women’s Service. The Home Treatment Team works with adults aged 18-65 who are experiencing a psychiatric crisis that, without intervention, would result in hospital admission. You can get information on any of these services, or on any aspect of mental health care in Croydon, including how to access services for yourself or the person you care for, by contacting the SLaM Information Line (0800 731 2864) 24 hours a day, seven days a week. If you experience any problems with the service the person you are caring for is receiving, or need more information regarding SLaM, contact SLaM PALS on 0800 731 2864 (same number as the information line). The Books on Prescription Scheme aims to help Croydon residents with mild to moderate mental health issues, for example panic attacks, eating disorders, anger or obsessive behaviours, by offering GPs the opportunity to prescribe to their patients self-help guides available from Croydon libraries. Carers may also find this a useful source of information. 36 How To... A Guide for Carers in Croydon 2009-2011 HEALTH. 3 There are a number of organisations supporting carers of people with mental health problems, see chapter one for details. Drug and Alcohol Services If the person you care for has a drug or alcohol problem there is a range of support available from health providers, as well as voluntary organisations that are listed in chapter one. The Croydon Substance Misuse Team (020 3228 0200) provides a comprehensive service to adults aged 18 and over; the team offers rehabilitation programmes, assessments of need, medication, access to a psychologist and much more. Children and young people under 18 can be referred to the Child and Adolescent Mental Health Service (020 3228 0000) by a professional such as a GP. For more information on these or other drug and alcohol services in Croydon call the Drug and Alcohol Action Team (020 8726 7750, www.croydondaat.org.uk). Managing Someone’s Medication If the person you care for is taking medication but has mislaid the patient information leaflet that came with it, you could go back to the pharmacy that dispensed the medication or you may find it helpful to visit www.emcmedicines.org.uk. This is an electronic medicines compendium, and contains information about all UK licensed medicines, including physical descriptions, side effects and any interaction with other medication. To help manage the storage and dispensing of medication, you can obtain handy storage containers such as those with the days of the week marked, and pill cutters, from equipment suppliers such as Care Providers (020 8654 4627, www.care-providers.co.uk) which sells and leases a number of care and mobility products (and provides domiciliary care). See chapter five for other equipment providers. Boots Medisure Service is a free scheme whereby prescribed medication can be put into separately marked blister packs labelled with the time of day when the tablets should be taken. You can register for this How To... A Guide for Carers in Croydon 2009-2011 37 3. HEALTH service at the pharmacy counter in any Boots pharmacy. Pillbox UK (0800 112 3147, www.medicineblisterpacks.co.uk) is a registered UK pharmacy specialising in dispensing prescription medication into easy to use disposable pill boxes. This service is free of charge, delivered to your home and available to anyone with an NHS prescription. Palliative Care For people living with a life-limiting or life-threatening condition, support is available from Croydon Social Services and possibly from NHS continuing healthcare (see above). Croydon residents also have access to hospice services such as in-patient care, home nursing and emotional support. Palliative care services do not just focus on the person with the condition, they support families and carers as well, often through the bereavement process and beyond. Croydon Crossroads (020 8688 4499) works with Macmillan Cancer Relief to provide services to carers of children and adults with palliative care needs. The service offers a comprehensive range of practical and emotional support, designed to support the carer and help the cared for person remain in their own home for as long as possible. Children with palliative care needs may receive support from the Children’s Hospital at Home Team (020 8714 2501) which offers nursing care, continuing care and play therapy for children with palliative care needs. It also provides emotional support for children with a life-limiting condition and their siblings via the Willow Children’s Bereavement Service (020 8714 2501). If the person you care for needs hospice care, they will be referred by a healthcare professional, such as their GP or hospital staff, and the hospice they can go to will depend on where they live. The Hospice Information Service (020 7520 8222, www.helpthehospices.org.uk) provides information about hospice care and how to find a hospice. Adults living in the London Borough of Croydon may be referred to St. Christopher’s Hospice (020 8768 4500, www.stchristophers.org.uk) which offers in-patient care, home nursing and a comprehensive social work, welfare benefits and bereavement service to adult patients, their carers and relatives. Chlidren may be referred to CHASE (01483 230 960, www.chasecare.org.uk) which works with children and young people aged 0-19 and offers in-patient care at Christopher’s Children’s Hospice as well as home care and practical 38 How To... A Guide for Carers in Croydon 2009-2011 HEALTH. 3 and emotional support to the family through bereavement and beyond. The Rainbow Trust (01372 453 309, www.rainbowtrust.org.uk) works with children and young people aged 0-18 and offers practical and emotional support via their family support workers, and breaks at their two respite houses. NHS Costs and Transport Most NHS treatment is free, but charges are made for prescriptions and services such as sight tests and dental treatment. Some groups of people, such as those aged 60 and over and people with certain medical conditions, are entitled to access some or all of these services for free. If you do not fit into one of these specified groups and you or your partner are aged 16-59, on a low income and/or receive certain means-tested benefits you may qualify for exemption from NHS health charges under the NHS Low Income Scheme. Under this scheme you may also be able to claim back transport costs for journeys to receive treatment at an NHS hospital under a consultant, or through referral by a doctor or dentist. You should be able to claim your travel expenses at the hospital where you have your treatment, but if not, ask them for an HC5(T) refund claim form. Refund claim forms are also available for other services such as sight tests and prescriptions. For further information about help with NHS health costs, and to request claim or refund forms, call Help with Health Costs on 0845 850 1166. If you do not qualify for free prescriptions, a prescription pre-payment certificate can save you money if you have to pay for more than three prescription items in three months, or 14 items in 12 months. For more information call 0845 850 0030. Consent, Access to Medical Records and Complaints Within the law, anyone aged 16 or over who has mental capacity, and can therefore make their own decisions, should be asked for their consent before they undergo any medical treatment (except in emergencies). If someone does not have mental capacity another person can give consent on their behalf, for example if they hold a lasting power of attorney. For full details on mental capacity and lasting power of attorney contact the Office of the Public Guardian How To... A Guide for Carers in Croydon 2009-2011 39 3. HEALTH (0845 330 2900, www.publicguardian.gov.uk). Children aged 15 and under are not deemed to have capacity, so parents or guardians can give consent on their behalf. Everyone, including children, has the right to view their medical records under the Data Protection Act 1998. If you want to access someone else’s medical records you will need their consent, unless they lack capacity, or you hold a power of attorney for them. If you are a parent and want to access your child’s medical records you will also need your child’s consent if they are considered capable of making decisions about his/her medical treatment – this is often age 16 but can be younger. It is recommended that you apply in writing if you wish to view any records; there is usually a charge and you may need proof of identity. If you or the person you care for are refused access to your medical records, or you are unhappy with their content, you can make a complaint to the record holder. If you are still dissatisfied after this, you can approach the Information Commissioner’s Office (08456 30 60 60, www.ico.gov.uk). If you need to make a complaint about any NHS service the first place to go to is the Patient Advice and Liaison Service (PALS) for that organisation. If PALS cannot help then the Independent Complaints Advocacy Service (ICAS) (0845 337 3063, www.pohwer.net) offers information and practical support with NHS complaints such as help with writing letters and attending meetings. 40 How To... A Guide for Carers in Croydon 2009-2011 HEALTH. 3 Key Contacts Backcare 0845 130 2704 British Red Cross Hospital Service 020 8401 3590 CHASE Children’s Hospice Service 01483 230960 Children’s Hospital at Home Team 020 8714 2501 Community Intermediate Care Service 020 8274 6444 Croydon Child and Adolescent Mental Service 020 3228 0000 Croydon Crossroads 020 8688 4499 Croydon Substance Misuse Team 020 3228 6444 Drug and Alcohol Action Team 020 8726 7750 Hospice Information Service 020 7520 8222 PALS & Complaints 020 8274 6333 Help with Health Costs 0845 850 1166 Independent Complaints Advocacy Service 0845 337 3063 Information Commissioner’s Office 08456 30 60 60 Mayday Adult Care Management Team 020 8401 3148 Mayday Children and Families Services 020 8401 3409 PALS - Mayday Healthcare NHS Trust 020 8401 3210 Rainbow Trust 01372 453 309 PALS - Information Line - SLaM (South London & Maudsley NHS Foundation Trust 0800 731 2864 If you cannot find what you are looking for please contact the Carers’ Information Service on 020 8649 9339, option 1. How To... A Guide for Carers in Croydon 2009-2011 41 4. MONEY MATTERS Caring for someone can be expensive, so it is important to make sure you are receiving all the income, benefits and discounts you are entitled to. There is a wide range of benefits available, but we have focussed on the ones most relevant to you as a carer. Getting advice about your entitlements and help with form completion is advisable, as most benefit claim forms are lengthy and can be complex. To qualify for most benefits you must satisfy certain rules about residence and presence in Britain, and any claims may be affected by your immigration status. Information and Advice All carers should have a benefits check to find out whether you and the person you are caring for are entitled to any financial support. The Croydon Welfare Rights Team (0800 731 5920) provides telephone advice to Croydon residents on all aspects of benefits. It also provides a comprehensive casework service to families who have a child with a disability, people who are over 60, and those who live in certain areas of the borough. The Department for Work and Pensions (DWP) runs a Benefit Enquiry Line (0800 88 22 00) that can answer questions on carer and disability benefits, send out claim packs and help with completing application forms. For people aged 60 and over, the Pension Service for Croydon (020 8687 3641) is able to do benefit checks and support people with any resulting benefit applications. For contact details of other organisations that may be able to help with benefits and finances see chapter one. 42 How To... A Guide for Carers in Croydon 2009-2011 MONEY MATTERS. 4 Benefits for People with a Disability There are three main benefits for people with a disability or illness. Disability Living Allowance (DLA) is for people aged 0-64 who have an illness or disability that affects their mobility and/or their ability to carry out personal care tasks unaided. The claimant must have had the illness or disability for at least three months and expect to have it for at least another six months. DLA has two components: care and mobility; each is paid at varying rates depending on the level of the disability. There are separate claim forms for children aged 15 and under. Attendance Allowance (AA) is for people aged 65 or over who have an illness or disability that affects their ability to carry out personal care tasks unaided. The claimant must have had the illness or disability for at least six months. AA is paid at two rates depending on the level of the disability. Payments of AA and DLA will normally stop after the person receiving them has spent four weeks (12 weeks for children under 16) in a hospital or care home. Those who participate in the Motability scheme (see also chapter six) may be able to retain the mobility aspect of their DLA for the duration of their Motability agreement. To claim DLA or AA contact the DWP, Benefit Enquiry Line on 0800 88 22 00. Special Rules for people who have a terminal illness mean that if a claimant is not expected to live for more than six months their claim will be fast-tracked and they will automatically qualify for the higher rate care component of DLA or higher rate AA. A doctor will need to complete a DS1500 form (doctors have a supply of these), which needs to be sent in with the claim form. People may be able to claim Employment and Support Allowance (ESA) if they have an illness or disability that affects their ability to work, and they are over 16 but under state pension age, unemployed/self employed, or cannot get/ are no longer receiving statutory sick pay. As of October 2008 ESA replaced Incapacity Benefit (IB), although people already receiving IB will continue to do so. ESA claimants are divided into two groups: • The Work-Related Activity Group is for people assessed as being able to undertake some form of work-related activity. How To... A Guide for Carers in Croydon 2009-2011 43 4. MONEY MATTERS • The Support Group is for people assessed as being unable to undertake any form of work-related activity. This group receives a higher rate of ESA. To claim ESA contact Jobcentre Plus on 0800 055 6688 or apply online at www.dwp.gov.uk/eservice. The Disability Premium (DP) is available to people who are aged 16-59, who receive a means-tested benefit such as income support or income-related ESA and also receive DLA or another specified disability benefit. Those who receive the higher rate care component of DLA will be entitled to the Enhanced Disability Premium (EDP) as well. Recipients of DP who go into hospital can continue to be paid the DP and/or the EDP for up to 52 weeks. People aged 16 and over who are receiving AA or the middle or higher rate care component of DLA, who technically live alone and no one receives carer’s allowance for looking after them (an underlying entitlement does not count) may be entitled to the Severe Disability Premium (SDP) – this can be paid in addition to the DP and the EDP. Those who go into hospital will be paid SDP only until their DLA or AA is withdrawn (four weeks). These premiums will be automatically added to payments of the qualifying benefits, but it is worth checking this with the agency who pays the benefit. Benefits for Carers Carer’s Allowance (CA) is available if you are aged 16 or over and care, for at least 35 hours a week, for someone who is receiving AA or the middle or higher rate care component of DLA. You do not have to be a relative or live with the person you are caring for, but you must not be in full-time education (over 21 hours a week) or earning over £95 a week (amount correct at time of printing), after some allowable deductions such as tax and national insurance. CA overlaps with certain benefits (such as state pension) leading to what is called an “underlying entitlement”, but no actual payment of CA. Other benefits (such as income support) will be reduced by the amount of CA you receive. It is always worth claiming CA even if it does not increase your income as it may entitle you to other benefits such as the carer premium. You can only receive CA once, even if you care for more than one person. If two people care for someone, only one of them is entitled to claim even though 44 How To... A Guide for Carers in Croydon 2009-2011 MONEY MATTERS. 4 both are carers. CA can be backdated for three months, so you should claim within three months of the person you care for being awarded AA or DLA. If the person you care for loses their entitlement to AA or DLA, then you will no longer be eligible for CA. If you, the carer, are admitted to hospital then you will continue to be paid CA for 12 weeks. Be aware that if you are awarded CA the person you care for will no longer be entitled to the Severe Disability Premium. To claim CA contact the DWP Benefit Enquiry Line on 0800 88 22 00. If you receive CA (or have an underlying entitlement) and also receive income support or pension credit, you will be eligible for the carer premium. If you are also caring for a child who is registered blind or receives DLA you will be eligible for the disabled child premium. These premiums will be automatically added to payments of the above benefits. National Insurance (NI) credits protect your entitlement to a state pension and may help you qualify for benefits in the future. You are automatically awarded NI credits for each week you receive CA. Home Responsibilities Protection (HRP) protects your basic state pension rights for each tax year when you care for someone for at least 35 hours a week and that person is receiving AA or the middle or higher rate care component of DLA, but you are not receiving CA. To apply for HRP contact the DWP Benefit Enquiry Line on 0800 88 22 00 and request claim form CF411 or you can apply online at www.direct.gov.uk. Benefits for People on a Low Income You may be entitled to Income Support (IS) if your income does not meet the minimum level set by the government. To claim IS you must be aged 16-59 and either working less than 16 hours a week or be exempt from signing on for work due to a disability or caring/parental responsibilities. To claim IS contact Jobcentre Plus on 0800 055 6688 or apply online at www.dwp.gov.uk/eservice. You may be entitled to the guarantee element of Pension Credit (PC) if you, or your partner, are aged 60 or over and your income does not meet the minimum level set by the government. To claim contact the Pension Service on 0800 99 1234. How To... A Guide for Carers in Croydon 2009-2011 45 4. MONEY MATTERS Housing Benefit (HB) can help you meet your rent payments and Council Tax Benefit (CTB) can help you pay your council tax. You can claim HB or CTB if you are working (and on a low income) or claiming certain benefits such as income support. HB and CTB are affected by savings and are not available if you are a full-time student. To claim contact the Council Tax and Benefits Customer Contact Centre on 020 8726 7000. You may be entitled to Jobseeker’s Allowance (JSA) if you are 18 or over, unemployed (or working less than 16 hours a week), not in full-time education, under state pension age and are capable of, and actively looking for, full-time employment. If you are a young carer (aged 16 or 17) and have left school you can be paid JSA on a discretionary basis if you can prove you will suffer severe hardship without it. In this instance JSA will normally be paid for a maximum of eight weeks. To claim JSA contact Jobcentre Plus on 0800 055 6688 or apply online at www.dwp.gov.uk/eservice. Working Tax Credit (WTC) is available if you or your partner are on a low income and are: • 16 or over and working 16 or more hours a week and either have a disability or are responsible for one or more children, • 25 or over and work at least 30 hours a week, • 50 or over and returning to work for at least 16 hours a week after receiving certain benefits. Child Tax Credit (CTC) is available if you are 16 or over, your income is within certain limits and you are responsible for at least one child who is under 16 (or 19 if in full-time education). CTC payments increase if your child is receiving DLA. You can request a tax credits claim pack from the Tax Credit Helpline on 0845 300 3900 or apply online at www.taxcredits.inlandrevenue.gov.uk. 46 How To... A Guide for Carers in Croydon 2009-2011 MONEY MATTERS. 4 Council Tax If you live in a property that is the main residence of an adult or child who is “substantially and permanently disabled” and the property either has an additional room needed by and mainly used by the person with the disability, or enough space for that person to use a wheelchair indoors, you may be entitled to have your existing council tax band lowered to the band below and this will reduce your bill. This is called the Disabled Band Reduction Scheme. Council tax bills are based on two adults living in a property - properties with a single occupant receive a 25 per cent discount, empty properties a 50 per cent discount. Certain carers and people who are severely mentally impaired are not counted for council tax purposes. You can be not counted if you spend at least 35 hours a week caring for someone who lives with you, and that person receives higher rate AA or the higher rate care component of DLA. You cannot be the partner of the person with the disability, or their parent if they are aged under 18; if more than one person in the household meets this criteria they can be not counted as well. If the person you care for is severely mentally impaired, and they live with you, they can be not counted if they have a medical certificate from a doctor confirming their disability and are receiving certain benefits. If you have been eligible for either of these schemes in the past, but did not apply, your claim should be backdated to when you were first eligible. Properties solely occupied by people who are severely mentally impaired, and properties left empty because the occupant has moved elsewhere to care for someone, or be cared for, are all exempt from council tax. Contact the Council Tax and Benefits Customer Contact Centre on 020 8726 7000 for more information or to apply for a discount. Financial Hardship and Debt The social fund makes one-off payments, loans and grants to those on meanstested benefits or those on low incomes and in crisis. The social fund also administers Sure Start maternity grants, cold weather and winter fuel payments and can help cover the costs of the funeral of a close friend or relative. The social fund is administered by Jobcentre Plus (Social Fund) (0845 608 8661). If you are experiencing problems with debt then you may want to contact How To... A Guide for Carers in Croydon 2009-2011 47 4. MONEY MATTERS National Debtline (0808 808 4000, www.nationaldebtline.co.uk) or the Consumer Credit Counselling Service (0800 138 1111, www.cccs.co.uk). Both these organisations can offer information and practical advice on dealing with debt. There are grant-giving organisations that may be able to help if you are struggling financially. The Directory of Social Change (08450 777 707, www.dsc.org.uk) produces A Guide to Grants for Individuals in Need, which lists many such organisations. However the guide is expensive so you may want to view it at Croydon central library or visit www.turn2us.org.uk or www.guidestar.org.uk - both of which give information on charities and grants. Some of the organisations listed in chapter one may be able to offer assistance with grant applications and you may also find our Grants factsheet helpful. Discounts and Reductions It is worth making the most of any opportunities you have to get discounts as a result of your caring status. Carers can often get free or discounted entry to tourist attractions; proof of the disability of the person you care for may be required. People who are blind can apply for a 50 per cent reduction on the costs of their television licence. If your child is blind, you can register the licence in their name and also get the reduction. You only need one license per household, so if the person you care for is entitled to any concessions, you can register in their name. For more details, contact TV Licensing on 0844 800 6790, or go to www.tvlicensing.co.uk. Managing Someone Else’s Money If you need to take charge of some or all of the financial affairs of the person you care for, there are various options open to you. If the person currently has “mental capacity” (the ability to make one’s own decisions) and only wants to give someone authority to access specific accounts they could set up a third party mandate - a written instruction to a bank giving you access to their account. If they have a Post Office card account they can apply for someone else to be the Permanent Agent, giving him or her their own card and PIN. If they choose to give someone greater authority over their affairs they can set up an Ordinary Power of Attorney. If the person you care for wants someone to 48 How To... A Guide for Carers in Croydon 2009-2011 MONEY MATTERS. 4 be able to act for them once they have lost capacity they will need to set up a Lasting Power of Attorney (LPA). An LPA must be created while the person still has mental capacity, and appoints someone to act on his or her behalf once they can no longer make decisions. More than one person can be granted LPA and they can act singly or jointly. There are two types of LPA. A property and affairs LPA gives someone authority to make decisions about financial affairs. A personal welfare LPA gives someone authority to make decisions about health and personal welfare. Enduring Powers of Attorney (EPA) have now been replaced by LPAs (under the Mental Capacity Act 2005) and can no longer be set up, but an EPA created before 1 October 2007 is still valid. Before it can be used an EPA or LPA has to be witnessed and registered with the Office of the Public Guardian (OPG); a fee applies. If someone loses capacity without setting up an EPA or LPA, it may be necessary to go to the Court of Protection to appoint a deputy to act on his or her behalf. Applying to the Court of Protection is more expensive and complicated than setting up an LPA. The OPG (0845 330 2900, www.publicguardian.gov.uk) can give information and advice on EPAs, LPAs and the Mental Capacity Act, and support those making decisions for someone else. Wills and Funerals Making a will is important because it can save family and friends the distress of legal entanglements after a death. If you are a carer it is even more important to make a will so that if the person you care for outlives you, they will continue to be provided for in the way you would prefer. Even in the case of straightforward wills it is recommended that you use a solicitor to ensure everything is done correctly. There are useful leaflets available free from the Law Society (0870 3333 084, www.lawsociety.org.uk) which publishes Your Guide to Making a Will and Community Legal Advice (Helpline: 0845 345 4 345, Leaflet Line: 0845 3000 343, www.communitylegaladvice.org.uk) which publishes Wills and Probate: Dealing with Someone’s Affairs When They Die. The Mencap Wills and Trusts Team (020 7696 6925, www.mencap.org.uk/willsandtrusts) provides information and advice to people How To... A Guide for Carers in Croydon 2009-2011 49 4. MONEY MATTERS with a learning disability and their carers. Free support includes access to a solicitor for advice, seminars across the country, a recommended solicitor directory and publications including Leaving Money by Will. Age Concern Croydon (020 8680 5450, www.ageconcerncroydon.org.uk) offers a free wills service on a monthly basis - a solicitor is available for half hourly appointments to answer questions about will-making; these slots must be booked in advance. If the person you care for dies and you need financial support to meet the costs of the funeral there are schemes that may be able to help. The deceased may have a pre-paid funeral plan or insurance policy, which would cover the costs, or they may be entitled to a death-in-service payment (if they were working) or help from an employer’s benevolent fund. If you are on certain benefits you may be able to get a funeral payment from the social fund. If the person you were caring for was in the armed forces, you may also be able to request help from organisations such as the Soldiers, Sailors, Airmen and Families Association (SSAFA) (0845 1300 975, www.ssafa.org.uk). Sometimes the hospital where the person died will arrange and pay for a simple funeral. If the person did not die in an NHS hospital, and you are not eligible for the social fund, Croydon Council may help organise and fund the funeral. Contact Croydon Council on 020 8726 6000 and ask for the Funerals Officer. If you are having problems finding the money to pay for the funeral, talk to the funeral director who may agree to be paid by installments. The leaflet What To Do After A Death In England and Wales is available from Croydon Register Office on 020 8726 6300. When Your Caring Role Ends If your caring role comes to an end because the person you cared for has died, or your caring role is now less intense than it was because the person you care for is living elsewhere, you may have less money coming in and be worried about your finances. It is worth checking to see if you are entitled to any benefits, such as bereavement benefits, which could increase your income. If you were receiving CA you will continue to do so for eight weeks after the person you cared for has died, or four weeks after they move into a care home, provided that you still meet the other conditions. Carers UK publishes When Caring Comes to an End which you can request by contacting their publications line on 0845 241 0963 or visiting www.carersuk.org. Contact us if you would like information about sources of bereavement support and counselling. 50 How To... A Guide for Carers in Croydon 2009-2011 MONEY MATTERS. 4 Key Contacts Age Concern Croydon 020 8689 5450 Community Legal Advice 0845 345 4345 Consumer Credit Counselling Service 0800 138 1111 Council Tax & Benefits Customer Contact Centre 020 8726 7000 DWP Benefit Enquiry Line 0800 88 22 00 Jobcentre Plus 0800 055 6688 National Debtline 0808 808 4000 Pension Service 020 8687 3641 Jobcentre Plus (Social Fund) 0845 608 8661 Tax Credit Helpline 0845 300 3900 Croydon Welfare Rights Team 0800 731 5920 If you cannot find what you are looking for please contact the Carers’ Information Service on 020 8649 9339, option 1. How To... A Guide for Carers in Croydon 2009-2011 51 5. PRACTICAL HELP There are many ways in which some of your everyday caring tasks can be made more manageable. Specialist equipment such as adapted cutlery, bath seats, sensory toys, walking aids and alarm systems can enable the person you care for to be more independent, to develop their skills and thus lighten the impact on you. Caring for someone can be physically demanding but adaptations to the home such as installing handrails and ramps or major works like stair lifts and ceiling track hoists, can enable you to undertake your caring tasks in a way that does not put your safety at risk. Furthermore, there are free or low cost schemes and services designed to give assistance with gardening, odd jobs and home safety which could help you to keep up with the jobs you no longer have time for. Equipment Equipment can be obtained in a number of ways. This will depend on what is needed, the service that is best placed to provide it, and cost factors such as whether you would need financial assistance or if you are able to pay privately. The National Health Service (NHS) is responsible for supplying medical equipment such as bedpans, commodes and hearing aids. This means that the cared for person’s GP can prescribe them or make a referral to a specialist provider. Social services, charities and private companies are the other main providers of equipment. 52 How To... A Guide for Carers in Croydon 2009-2011 PRACTICAL HELP. 5 Croydon Social Services Social services can supply a variety of equipment to help with everyday tasks and can also arrange adaptations to the home. This support can only be offered if, following an assessment of need by an occupational therapist (OT), the criteria for support are met. Croydon Social Services recommends that in the first instance, you (or the person you care for if they are able) complete an online assessment for disability equipment known as Self-Assessment Rapid Access, or SARA for short. This asks a series of questions about daily life and uses your answers to generate an immediate report with suggestions about products or services that may help. You can find SARA at www.croydon.gov.uk by entering SARA in the search box. You can also complete SARA over the telephone (ask to be called back to save your bill) by contacting Social Services for Adults on 020 8726 6500 or Children’s Services on 020 8726 6400. The advice in the report may be all that is required for your circumstances but if more help is needed, an OT assessment in the home of the cared for person will be required. You can self-refer or ask a professional to do this on your behalf. Referrals are prioritised according to the level of need and a waiting list operates. An OT assessment for an adult can be requested by contacting Social Services for Adults on 020 8726 6500. If, after an assessment, it is agreed that a piece of equipment or a minor adaptation is essential there will be no charge. If a major adaptation is agreed, there will be a financial assessment to see if the cared for person will have to contribute to the cost. Any equipment that social services can loan you is available free of charge, but supplies are limited and for some equipment there is a waiting list. It is also possible to get a one-off direct payment from social services to pay for equipment, see chapter two for more details. If large-scale building or installation works are needed in the home, government grants and loans may be available and the OT will advise you further about these. If you are caring for a disabled child up to the age of 18, the Children’s Occupational Therapy Service may be able to help if your child has “a permanent and substantial disability”. The team is located at the Crystal Centre for Children’s Services and parents can contact them directly on 020 8274 6850 for advice about equipment, or to carry out an assessment for re-housing, or an adaptation to an existing property. The service is unable to fund educational equipment that could be provided by your child’s school and home safety equipment that is readily available in shops. Items of equipment How To... A Guide for Carers in Croydon 2009-2011 53 5. PRACTICAL HELP are given on free loan for as long as they are required but are subject to regular review to ensure they still meet your child’s needs. Assistance can also be given with funding applications to pay for major adaptations. Mobility Equipment The Wheelchair Service (020 8665 9313) provides advice and ongoing support for children and adults with mobility problems and provides wheelchairs and major buggies on long-term loan. A referral from a GP or care manager is required and the waiting time will depend on the needs of the person. If the person you care for gets the higher rate mobility component of Disability Living Allowance (DLA) or the War Pensioner’s Mobility Supplement they can use this money to buy a powered wheelchair or scooter, or to hire or purchase a new car from Motability (0845 456 4566, www.motability.co.uk). They do not need to be the person who will drive the car, so this scheme is also available to children in receipt of DLA mobility component. Obtaining and Selling Equipment Croydon Social Services and the NHS jointly run a central equipment store called the Access Ability Centre, which is where the Wheelchair Service (020 8665 9313) and the Aztec Centre (020 8664 8860) are based. Some items of equipment can be expensive so before buying it is recommended that you get advice first. The Aztec Centre offers specialist help and advice and the opportunity to try out a wide range of equipment for daily living. You can of course buy or hire equipment independently of statutory providers. We are not able to recommend particular commercial suppliers, but you can get free, impartial advice about all sorts of equipment for disabled children, adults, older people and carers from the Disabled Living Foundation (DLF) (0845 130 9177, www.dlf.org.uk). As well as a helpline, the DLF has free factsheets on subjects such as clothing, footwear, mobility and communication aids. There are also large exhibitions such as those run annually by Naidex (www.naidex.co.uk), which give you the opportunity to see the latest technology, try out products and meet a number of commercial suppliers in one place. 54 How To... A Guide for Carers in Croydon 2009-2011 PRACTICAL HELP. 5 There is a big market in second hand disability equipment. The Disability Equipment Register (01454 318 818, www.disabilityequipment.org.uk) provides a free service to enable people to buy and sell items of used disability equipment online. Magazines such as Disability Now (020 7619 7336, www.disabilitynow.org.uk) and online auction sites, such as Ebay (www.ebay.co.uk) are options to consider when buying or selling equipment. Even if you buy second-hand, you still have certain consumer rights and the seller must accurately describe the product and make you aware of any faults. Buying second-hand from a retailer is generally more expensive than buying from a private individual, but the equipment is likely to have been serviced and should be in reasonable working order. If you need to hire a wheelchair you can get a long-term loan from the Wheelchair Service (020 8665 9313). If the person you care for has been in hospital, they may be able to borrow equipment from the hospital to use at home for a short time after they have been discharged. Some Croydon Neighbourhood Care Association (020 8662 1000, www.cnca.org.uk) groups loan disability and mobility equipment to people who live within their area. Our factsheet Specific Conditions lists organisations that cover specific disabling or medical conditions. A number of these can advise about and supply specialist equipment, for example for people with a visual or hearing impairment. The following organisations may also be helpful for a range of equipment needs: • AbilityNet (0800 269 545, www.abilitynet.co.uk) helps adults and children with disabilities to use computers and the internet by selling and installing specialist computer equipment and giving details of funding sources. • Age Concern Croydon (020 8680 5450, www.ageconcerncroydon.org.uk) sells Elsan Blue Fluid for cleaning commodes and also offers a free delivery service. • The British Footwear Association (01933 229005, www.britfoot.com) can give advice about where to obtain less common shoe sizes or single shoes. How To... A Guide for Carers in Croydon 2009-2011 55 5. PRACTICAL HELP • Croydon’s Continence Service (020 8274 6409) provides continence products for adults and children. • The Croydon Shopmobility Scheme (020 8688 7336) is based in the Whitgift Centre car park. You can hire an electric shopping scooter or wheelchair to use while you are shopping in the town centre. It may be advisable to pre-book at busy times. • DEMAND (01923 681 800, www.demand.org.uk) can advise about equipment and will design and manufacture bespoke items, free of charge, where no off-the-shelf solution exists. • Fledglings (0845 458 1124, www.fledglings.org.uk) helps parents and carers of disabled children to find solutions to practical problems of everyday living, by giving information and advice as well as sourcing and supplying equipment. It specialises in finding unusual items not readily available elsewhere. • MERU (01372 725 203, www.meru.org.uk) produces custom-made equipment for disabled children and young people, when nothing else exists to meet a need. Referrals must be made via a professional such as a physiotherapist. • The RADAR National Key Scheme offers independent access to accessible toilets throughout Britain. Keys can be obtained from DisabilityCroydon (020 8684 5538, www.disabilitycroydon.org.uk) and RADAR (020 7250 3222, www.radar.org.uk). • REMAP (0845 1300 456, www.remap.org.uk) designs and produces one-off technical aids, free of charge, where nothing suitable is available commercially, or through the NHS or social services. • U Can Do IT (020 7730 7766, www.ucandoit.org.uk) teaches disabled people of all ages computer and internet skills. It can also supply refurbished computers to people who do not have their own. • Whizz–Kidz (0845 052 1231, www.whizz-kidz.org.uk) provides an advice line for parents, mobility equipment, and wheelchair skills training to disabled children up to the age of 18. 56 How To... A Guide for Carers in Croydon 2009-2011 PRACTICAL HELP. 5 Value Added Tax (VAT) One way of reducing the cost of buying equipment is to ensure that VAT is not paid on items that come under the disabled persons VAT relief scheme. This scheme allows for certain goods and services to be zero-rated for VAT, as long as they meet specific criteria, including being solely for the personal or domestic use of the disabled person. Carers can buy equipment on behalf of disabled people and still get the VAT reduction. It is important to get advice about this issue, including information about who qualifies as a disabled person; contact the HM Revenue and Customs Charities Helpline on 0845 302 0203, option 3 or see www.hmrc.gov.uk. Home Maintenance Age Concern Croydon (020 8680 5450, www.ageconcerncroydon.org.uk) has a Handy Person Team which provides assistance to people aged over 55, as well as people of any age who are disabled or vulnerable. The team offers a Minor Repairs Service which can carry out small jobs such as changing light bulbs, fitting draught proofing or putting up pictures. The Skilled Jobs Service will carry out slightly larger jobs such as repairing fences and footpaths. Charges apply for both services. Age Concern also holds a Tradespersons Register of local builders, handymen, plumbers and electricians who have been recommended as trustworthy and have undergone Criminal Records Bureau checks. Croydon Council has a service called Staying Put (020 8760 5505), which helps older, disabled or other vulnerable people, by giving advice and assistance to carry out minor repairs or major adaptations to their homes. There is a Handyperson Service which provides minor repairs and an odd jobs service at a reduced cost for people who are over 60 or disabled. How To... A Guide for Carers in Croydon 2009-2011 57 5. PRACTICAL HELP Utilities The companies that provide your gas, electricity, telephone and water supply can give advice and assistance to customers who are disabled, elderly or chronically ill and those with sensory impairments. This includes protecting customers from disconnection, which is particularly important if the person you care for uses a dialysis or breathing-support machine. Utility bills can be provided in large print, Braille or audio. If your home is fitted with a water meter and your consumption is higher than average you may qualify for help with your bill via the WaterSure scheme which lowers the tariff at which you are charged. To qualify for the WaterSure tariff a member of the household must be receiving a means-tested benefit such as income support and either be in receipt of Child Benefit for three or more children under the age of 19 who live at the property, or a member of the household has been diagnosed with a medical condition that requires the use of a significant additional amount of water. For more details about this scheme, contact Thames Water on 0845 9200 888 or see www.thameswater.co.uk. WaterSure is nationwide, so contact your supplier if you do not use Thames Water. There are a number of organisations and utility companies that offer grants to disabled and elderly people to help pay for measures to make the home more energy efficient. There are also grant-giving trusts, often linked to your utility supplier, that you can approach for help if you, or the person you care for, have difficulty paying your bills. Ask for our Grants factsheet for more details. Home Safety and Security We all need to make our homes secure, but caring for somone who is vulnerable is an even greater incentive to find out about schemes that can help. The Age Concern Croydon Handy Person Service (020 8680 5450, www.ageconcerncroydon.org.uk) offers older people and disabled people of all ages a free home fire safety check and a free home security check and can supply and fit a keysafe (charges apply). London Fire Brigade (08000 284 428) will carry out free home safety checks and a free smoke alarm where needed. 58 How To... A Guide for Carers in Croydon 2009-2011 PRACTICAL HELP. 5 Croydon Council has two projects that help residents with security and safety in the home. The SAFE Project (020 8760 5505) is a free service for older people in certain wards in the borough. A Home Security Officer can visit the home, give advice on accident prevention and home security, and supply and fit a range of locks and home safety equipment, including smoke alarms, shed padlocks and carbon monoxide detectors. The Home Safety Scheme (020 8407 1399) aims to make homes safer for families with children under five who live in certain wards in the borough. A Home Safety Officer will carry out a free home safety check and give practical help and advice on ways to improve safety. This could include fitting safety equipment, such as cupboard catches and socket covers, checking plugs and fuses and installing stair gates. Gardening People who are living in certain wards in the borough and are over 60, or disabled of any age (ring to check eligibility as this information is subject to change) may be able to get help with gardening and grass cutting from Staying Put (020 8760 5505). The charges are at a subsidised rate depending on your financial situation. Croydon International Volunteer Service (020 8656 4941, www.croydonivs.org.uk) has volunteers who do one-off jobs in their spare time, usually at weekends, and commonly provide gardening for disabled and older people. A referral by social services or a voluntary organisation is required. Croydon Neighbourhood Care Association (020 8662 1000, www.cnca.org.uk) is sometimes able to provide volunteers to do occasional gardening for older, vulnerable or disabled people. If you decide to pay someone privately to help with the garden you might want to use Age Concern Croydon’s (020 8680 5450 www.ageconcerncroydon.org.uk) Tradespersons Register to find a local gardener. Meal and Shopping Delivery If the person you care for has difficulty preparing their own food they might benefit from hot or frozen meals being delivered. An assessment of need may find that they are entitled to have the meals provided for them by Croydon Social Services (meals on wheels), although they will be financially assessed How To... A Guide for Carers in Croydon 2009-2011 59 5. PRACTICAL HELP and that may result in a charge for the service, see chapter two for more information. If the person you care for is not entitled to receive Meals on Wheels through social services, or if they are able to pay themselves, they can contact a meal delivery service such as Wiltshire Farm Foods (0800 678 3060 www.wiltshirefarmfoods.com). Other meal delivery services are available. All the major supermarkets now offer an online grocery shopping delivery service (delivery charges apply) which can be very useful if you care for a housebound person, but do not live with them, or if it is difficult for you to leave the home. Dairy Crest Doorstep Deliveries (0800 615 715, www.milkdeliveries.co.uk) provides deliveries up to six times a week of milk and other basic household goods. Furniture There are several organisations that can help you and the person you care for to furnish your home and will also collect unwanted furniture. Croydon Appliance Re-use Centre (ARC) (020 8662 8002, www.arc-croydon.org.uk) provides recycled and refurbished low-cost furniture and domestic appliances, including white goods. All items are guaranteed and can be delivered to the home. An extra discount is available for all those in receipt of an income-related benefit. Mind in Croydon runs a Furniture Service (020 8253 8201, www.mindincroydon.org.uk), which recycles donated furniture and household goods. These items make up a “starter home pack” and are then supplied to clients with mental health problems (who have been referred), and are moving into an unfurnished home from hospital, or bed and breakfast accommodation. General Help at Home Age Concern Croydon (020 8680 5450, www.ageconcerncroydon.org.uk) has a Help@Home Service which helps older and disabled people of all ages with things like cleaning, meal preparation, laundry, ironing, pension and prescription collection, and shopping. There is also a finger and/or toe nail cutting service provided at venues across the borough. Charges apply. If you have a child under the age of five, you may be able to get practical support from Home Start Croydon (020 8667 0207) which could include help 60 How To... A Guide for Carers in Croydon 2009-2011 PRACTICAL HELP. 5 with housework. Some Croydon Neighbourhood Care Association (020 8662 1000, www.cnca.org.uk) groups can help isolated, vulnerable or frail people with shopping and general help around the house. Key Contacts Age Concern Croydon 020 8680 5450 Apetito 020 8688 1636 Croydon Appliance Reuse Centre (ARC) 020 8662 8002 Aztec Centre 020 8664 8860 Children’s Services 020 8726 6400 Croydon Neighbourhood Care Association 020 8662 1000 Croydon International Volunteer Service 020 8656 4941 Crystal Centre for Children’s Services 020 8274 6850 DisabilityCroydon 020 8684 5538 Disabled Living Foundation 0845 130 9177 Home Safety Scheme 020 8407 1399 Home Start Croydon 020 8667 0207 Motability 0845 456 4566 Safe Project 020 8760 5505 Shopmobility 020 8688 7336 Social Services for Adults 020 8726 6500 Staying Put 020 8760 5505 Wheelchair Service 020 8665 9313 Wiltshire Farm Foods 0800 678 3060 If you cannot find what you are looking for please contact the Carers’ Information Service on 020 8649 9339, option 1. How To... A Guide for Carers in Croydon 2009-2011 61 6. TRANSPORT There is a whole range of services, both practical and financial, that are designed to help you and the person you care for get out and about. Whether it is a routine trip to the GP, or a fun day out with your family, the local and national schemes detailed in this chapter should ensure that you get where you need to go. A good starting point for information on all forms of transport for people who have a disability or are less mobile is the Door to Door website (www.dptac.gov.uk/door-to-door). Financial Help One of the main ways of getting help with travel costs is to apply for Disability Living Allowance (DLA), a benefit that has a mobility component for people under the age of 65 who have an illness or disability that affects their ability to get around. This money can then be used to pay for travel expenses and can also help the recipient access other schemes, such as Motability and the Blue Badge Scheme (described later in this chapter). People who have a low income or receive certain benefits may be able to claim help with public transport costs to receive NHS treatment, see chapter four for further information. Visiting a person in hospital is often costly for carers, especially as hospital parking charges can be expensive. The Social Fund, which is administered by Jobcentre Plus (0845 608 8661), makes one-off payments, loans and grants to those on means-tested benefits or those on low incomes and in crisis. It may be possible to apply for help with transport costs to visit someone in hospital if there is no other means of getting help. There are some local organisations that help with travel costs. The Croydon Crossroads Carers Support Service (020 8667 9893) offers a Transport Grant 62 How To... A Guide for Carers in Croydon 2009-2011 TRANSPORT. 6 for carers of up to £30 a month for travel expenses for social occasions. Grants are awarded on a first come first served basis, while funding is available. Croydon Mencap (020 8662 9201 www.croydon.cswebsites.org) has a Transport Scheme for carers aged 65 or over who are looking after an adult with a learning disability, which enables you to claim back the money spent on taxis to take the cared for person to and from an activity. The Carers’ Information Service (020 8649 9339 option 1) can reimburse carers for transport costs to and from our training sessions. Other organisations may do the same, so it is worth checking with them. Using a Car There are various organisations giving advice to disabled drivers and carers. The Mobility Information Service (01743 340 269, www.mis.org.uk) provides information on driving assessments, driving lessons, vehicle adaptations, wheelchair accessible vehicles and much more. Mobilise (01508 489 449, www.mobilise.info) offers information and advice and has a casework service for members to help deal with issues like complaints. The Queen Elizabeth Foundation Mobility Centre (020 8770 1151, www.qef.org.uk) offers advice and assessments to people who wish to begin, or return to, driving following an illness, injury or accident. The Motability Scheme (0845 456 4566, www.motability.co.uk) allows people who get the higher rate mobility component of DLA or the War Pensioner’s Mobility Supplement to use this money to hire or buy a new car. The person with the disability does not need to be the person who will drive the car, so parents of disabled children can use this scheme too. The Motability Scheme can also help towards the cost of driving lessons for young people aged 16-24 who receive higher rate DLA motability component. The Family Fund (0845 130 4542 www.familyfund.org.uk) may also be able to contribute towards the cost of driving lessons for parent carers of severly disabled children. The Blue Badge Scheme enables people with severe walking difficulties to get parking concessions, even if they are not the driver, such as parking on single or double yellow lines. Badge holders can only use it for their benefit though, so if a trip is for someone else and they are a passenger and staying in the How To... A Guide for Carers in Croydon 2009-2011 63 6. TRANSPORT vehicle, the Blue Badge cannot be used simply to let the driver benefit from convenient parking. The scheme does not apply to off-street car parks, private roads and most airports. For an application form contact Croydon Council Travel Services Team on 020 8726 7100. You can access an online Blue Badge map at www.bluebadge.direct.gov.uk that can be used to find the location of Blue Badge parking bays across the UK. If the person you care for has a Blue Badge they may be able to get a disabled parking bay created outside their home if there is no available off-street parking within 100 metres and regular shortages of on-street parking. The bay can then be used by anyone who has a Blue Badge. For further information contact Croydon Council’s Infrastructure Traffic Design on 020 8667 8249. The person you care for might be exempt from paying road tax if they receive the higher rate mobility component of DLA. This can be for their own vehicle, or that of a nominated carer. Contact the DWP Benefit Enquiry Line on 0800 88 22 00 and request application form DLA 403. If eligible, an exemption certificate will be sent that can be used when obtaining the road tax disc. Drivers who travel into central London between 7 am and 6 pm, Monday to Friday, have to pay an £8 daily congestion charge. However, if the person you care for has to go to a hospital in central London and has to use a car because they are unable to use public transport, they may be eligible for reimbursement of the congestion charge from the hospital. Ask at the hospital reception about this as each one has its own policy. Blue Badge holders are exempt from the charge once they have completed a registration form and paid a one-off £10 fee. The process takes about ten days, so it is important to apply well in advance of the hospital appointment. For more details contact Congestion Charging London on 0845 900 1234 or go to www.tfl.gov.uk. Wheelchair users may not have to pay value added tax (VAT) if they buy a specially adapted vehicle or have an existing vehicle adapted, or if they lease a Motability vehicle. However, not every vehicle or adaptation will qualify for the relief, and there are strict definitions for terms like “wheelchair user” that are used to decide who can get the relief. The supplier should be able to advise and you can also get information from the HM Revenue and Customs Charities Helpline on 0845 302 0203, option 3 or see www.hmrc.gov.uk. Drivers are legally required to inform the Driver and Vehicle Licensing Agency 64 How To... A Guide for Carers in Croydon 2009-2011 TRANSPORT. 6 (DVLA) if they have a medical condition which might affect their driving ability. If you have any concerns about the driving ability of the person you care for, contact the DVLA Helpline on 0870 600 0301 or visit www.dvla.gov.uk. The Queen Elizabeth Foundation Mobility Centre (020 8770 1151, www.qef.org.uk) has rear entry vehicles available for hire for wheelchair users with a terminal illness and it also offers wheelchair user safety training and adapted vehicle driving tuition. Using Public Transport General information about public transport, including accessibility, is available from the 24 hour Travel Information Call Centre run by Transport for London (TfL) (020 7222 1234, www.tfl.gov.uk). The Croydon Mobility Forum has produced An Easy Guide to Accessible Transport in Croydon which is available from Social Services for Adults (020 8726 6500). Transport for All (020 7737 2339, www.transportforall.com) has a helpline for disabled and older public transport users in London. If the person you care for travels on their own, or is keen to try, the Travel Mentoring Scheme (020 7027 5822, www.tfl.gov.uk) aims to give people with disabilities the information and confidence they need to make more use of public transport. It offers free advice on planning a journey using an accessible route and can provide someone to accompany the person for the first few times they use a bus, underground or train service. The Freedom Pass gives free travel on trains, trams, the underground and Docklands Light Railway in Greater London, and on buses throughout England. There are two types of pass: the Disabled Person’s Freedom Pass, for which you must have an eligible disability, and the Older Person’s Freedom Pass for those over 60. Application forms for both passes are available from Croydon Council Travel Services Team (020 8726 7100). Rail Many train stations have ramps and lifts, wheelchair accessible toilets and good quality visual and audible information. All Docklands Light Railway (020 7363 9700, www.tfl.gov.uk/dlr) stations are accessible and every train How To... A Guide for Carers in Croydon 2009-2011 65 6. TRANSPORT has a designated wheelchair bay. The Croydon Tramlink (020 8681 8300, www.tfl.gov.uk/trams) is also fully accessible. National Rail Enquiries (08457 48 49 50, www.nationalrail.co.uk) produces a National Rail Map for People with Mobility Difficulties that shows all the railway stations in Britain and gives useful information, such as where you can get onto platforms without having to use any steps. The booklet Rail Travel Made Easy is available from larger rail stations and gives information about accessibility and fare concessions. If assistance is needed at the station or in boarding the train, you will need to book this with the Assisted Passengers Reservation Service. Ring the train operating company of the train you want to travel on at least 24 hours in advance. If your journey involves using the trains of more than one company, you only need to contact your local company, who will arrange for assistance throughout the whole rail journey for you. You can get the assistance line numbers for the various train companies from National Rail Enquiries, but the main three that operate in the Croydon area are: First Capital Connect (0800 058 2844), Southern Trains (0800 138 1016) and Southeastern Railway (0800 783 4524). If the person you care for is over 60 they can buy a Senior Railcard and save a third on most rail fares. You can get application forms at most stations, or ring 0870 942 3648 or visit www.senior-railcard.co.uk. The person you care for can get discounted rail travel when they book the ticket if they are a wheelchair user who has to stay in their wheelchair for the duration of the journey, or if they are registered as visually impaired and they are travelling with you or another person. If they do not qualify for this, they may be eligible to buy a Disabled Persons Railcard, which allows them and one accompanying adult to buy discounted rail tickets. Contact Disabled Persons Railcard on 0845 605 0525 or visit www.disabledpersons-railcard.co.uk. Buses Most London buses are now accessible - they can be lowered to street level when they stop, have visual displays and spoken announcements and welcome assistance dogs. Wheelchair users can travel free, although anyone accompanying them will have to pay. Free travel on buses is also available to 66 How To... A Guide for Carers in Croydon 2009-2011 TRANSPORT. 6 anyone with a disabled person’s or older person’s Freedom Pass, and children and young people under the age of 18 who are in full-time education. If you need information about bus routes and timetables contact the TfL 24 hour Travel Information Call Centre on 020 7222 1234 or see www.tfl.gov.uk. The Bus and Tram Discount Scheme is available to help Londoners in receipt of certain income related benefits (who do not already receive any free or discounted travel concessions) to help them travel on buses and trams at a discounted rate. Once you have completed a form that is available at any post office, you are issued with a photocard which enables you to pay half price Oyster single fares on buses and trams and to buy bus and tram pass season tickets at half the adult rate. For details contact the Oyster Card Helpline on 0845 330 9876 or see www.tfl.gov.uk/discountcard. Coaches At the moment, coaches used on scheduled coach services are not always accessible to some disabled people, as they often have several steep steps up from the entrance door and most will not carry powered wheelchairs or scooters. National Express (08717 818 179, www.nationalexpress.com) can give information about assistance they can provide to travellers with disabilities and their carers using their coaches. People over 60 and certain groups of people with disabilities automatically qualify for reduced fares on their services. If you are travelling to and from Victoria Coach Station you can pre-book free mobility assistance by contacting them on 020 7027 2520, or visiting www.tfl.gov.uk for more information. London Underground Transport for London publishes Access to the Underground which gives details of steps, lifts, escalators and toilet facilities on the tube and DLR. It also produces free leaflets and tapes including large print tube maps, a tactile diagram of the underground and a talking underground map. It also provides a Tube Access Guide which is a map showing accessible stations; contact 020 7222 1234 for a copy or download it from www.tfl.gov.uk. How To... A Guide for Carers in Croydon 2009-2011 67 6. TRANSPORT Door-to-Door Transport You and the person you care for may find it easier to use a door-to-door service, such as a taxi or community transport scheme. All of London’s black cabs are accessible to wheelchair users and most have a variety of other features to make access easier. They can be booked in advance by calling the Taxi One Number booking service on 0871 871 8710; please note that there is a telephone booking charge. If you text the word HOME to 60835 you will be sent telephone numbers for two local licensed minicab operators plus the Taxi One Number for a black cab. The London Taxicard Scheme enables people with mobility difficulties to get reduced fares in black cabs. People who receive the higher rate mobility component of DLA, or are registered blind, or in receipt of a War Pension Mobility Supplement are automatically eligible to join. Those with mobility difficulties that fall outside of these categories may still be able to join, after a mobility assessment. The Taxicard holder pays the first £1.50 shown on the meter, and Croydon Council pays the next £10.30 of the fare, if applicable. The Taxicard holder then pays any remaining charges. The amount paid by the council is increased for trips made at night or at weekends. The concession is limited to 108 trips per year. Bookings must be made in advance. Application forms are available from Croydon Council Travel Services Team on 020 8726 7100, or visit www.taxicard.org.uk. If the person you care for has a permanent or long-term disability which stops them using public transport services they may be eligible to use Dial-a-Ride. The Dial-a-Ride service (0845 999 1 999, www.tfl.gov.uk) provides a prebooked door-to-door minibus service in Croydon and the surrounding area that can be used for one-off trips and regular journeys. It cannot be used for daily trips to work or hospital appointments. There is a charge for the person with a disability but an accompanying carer can travel free. Croydon Neighbourhood Care Association (020 8662 1000, www.cnca.org.uk) has groups across the borough which provide a range of services to disabled, vulnerable and older people, and some offer transport. Croydon Accessible Transport (CAT) (020 8665 0861) has low cost minibuses and wheelchair accessible vehicles for hire by groups and individuals within the borough of Croydon. CAT also runs outings for Croydon residents. 68 How To... A Guide for Carers in Croydon 2009-2011 TRANSPORT. 6 Key Contacts Congestion Charging London 0845 900 1234 Croydon Accessible Transport 020 8665 0861 Croydon Council Travel Services Team 020 8726 7100 Croydon Crossroads Carers Support Service 020 8667 9893 Croydon Mencap 020 8662 9201 Croydon Neighbourhood Care Association 020 8662 1000 Dial-a-Ride 0845 999 1 999 Disabled Persons Railcard 0845 605 0525 Driver and Vehicle Licensing Agency 0870 600 0301 DWP Benefit Enquiry Line 0800 88 22 00 DVLA Helpline 0870 600 0301 Mobility Information Service 01743 340 269 Mobilise 01508 489 449 Motability 0845 456 4566 National Express National Rail Enquiries 08717 818 179 08457 48 49 50 Queen Elizabeth Foundation Mobility Centre 020 8770 1151 Senior Railcard 0870 942 3648 Southeastern Railway 0800 783 4524 Southern Trains 0800 138 1016 Transport for London 020 7222 1234 Travel Mentoring Scheme 020 7027 5822 If you cannot find the information you need, please contact the Carers’ Information Service on 020 8649 9339, option 1. How To... A Guide for Carers in Croydon 2009-2011 69 7. HOUSING Living in suitable housing is important for the health, safety and independence both of you and the person you look after. At some point you may need to help the person you care for to find different accommodation because their needs have changed. This might be because they are now an adult and wish to live independently, they need to live in a more accessible environment, or perhaps they require more care than you are able to provide at home. This chapter looks at the different housing options available, how to access them, and where to go for advice. If you need adaptations to make your home more accessible, or would like help and advice with home safety, security or maintenance, see chapter 5. Council Housing Anyone aged 18 or over can apply for council or housing association accommodation by applying directly to Croydon Council (020 8726 6100). You will be put in a queue (called a band) on the housing register. The band you are allocated will depend on how urgently you are assessed as needing housing – the higher the band the faster you will be housed – but there will be a waiting list. People with an illness or disability may be placed in a higher band if they complete a medical assessment form and submit evidence of their needs, explaining why they are struggling to manage in their current home and need to be rehoused as quickly as possible. For more information contact the Housing Enquiry Team on 020 8726 6100 or visit www.croydon.gov.uk/housing. 70 How To... A Guide for Carers in Croydon 2009-2011 HOUSING. 7 Sheltered Housing Sheltered housing schemes for people aged 60 and over are usually blocks of self-contained flats, with some communal facilities, and a warden who is on call 24-hours in case of emergencies. Sheltered housing can give the person you care for the chance to continue to live independently (they will be completely in charge of their own property), while you can relax knowing that help will always be on hand. Croydon Council and Croydon housing associations offer a range of sheltered housing schemes, contact the Housing Enquiry Team on 020 8726 6100 or visit www.croydon.gov.uk/housing for more details. If you think the person you care for has needs that could not be met by sheltered housing, you might want to consider special sheltered housing, which is for frail older people or those who have higher support needs. For more information on special sheltered housing call Social Services for Adults on 020 8726 6500. Age Concern Croydon (020 8680 5450, www.ageconcerncroydon.org.uk) has a Housing Options service for older people who are thinking of moving and want to know what choices they have. The Elderly Accommodation Counsel (020 7820 1343, www.eac.org.uk) provides a free advice and information service to older people, their families and carers on any aspect of housing, including sheltered housing. Supported Housing Young people and adults who are vulnerable and have housing-related support needs, perhaps because they have a disability or have not had the opportunity to acquire independent living skills, might qualify for supported housing. Supported housing aims to develop and sustain a person’s ability to live as independently as possible, either in their own home (floating support) or in accommodation with staff on site. Access to most supported housing services in Croydon is through the Support Needs Assessment and Placement Service (SNAP) (020 8760 5498). SNAP staff will decide if supported housing is the most appropriate form of support for the person you care for and if it is they will carry out an assessment of their needs and refer them to a supported housing scheme. If supported housing is not thought to be appropriate the SNAP team will help them access alternatives such as a social services’ assessment of need (see chapter two). How To... A Guide for Carers in Croydon 2009-2011 71 7. HOUSING The CAPS Supported Lodging Scheme (020 8726 6000 ext 63516) places vulnerable adults, such as those with a learning disability or mental health problem, in the home of an adult placement carer where they will be supported to live as a member of the family and wider community. The Croydon Generic Floating Support Service (020 8726 8891) provides practical advice, support and assistance to people in their own homes, including homeowners. The service aims to help people having difficulty managing their home and aspects of their lives by helping with issues such as budgeting, neighbour disputes and parenting difficulties. Care Homes If you do not feel that you can continue to look after the person you care for at home, and their support needs are greater than sheltered or supported housing can meet, you may want to consider arranging for them to move into a care home. Care homes offer full-board accommodation, 24-hour care, and opportunities for the person you care for to socialise and take part in leisure activities. Some homes offer additional support in the form of nursing care, and some specialise in caring for people living with a specific condition, such as dementia. Croydon Council (020 8726 6500) produces the Croydon Care Directory which gives details of accredited private, voluntary and local authority care homes in Croydon. Choosing the right home is important and if you can you should take the time to fully investigate all potential homes, including visiting them in person. If the person you care for has been assessed by Croydon Social Services as needing a place in a care home they are still entitled to have a say in which home they move to, even if social services are funding the placement. You can request recent inspection reports on any care home in England from the Care Quality Commission (03000 616161, www.cqc.org.uk), and there are a number of organisations who are able to help you choose not only the most suitable care home, but also the best way to fund a place there: • Age Concern Croydon (020 8680 5450, www.ageconcerncroydon.org.uk) has a range of free factsheets including Attendance Allowance in Care Homes and Finding Care Home Accommodation. 72 How To... A Guide for Carers in Croydon 2009-2011 HOUSING. 7 • CareAware (08705 134 925, www.careaware.co.uk) provides information, advisory and advocacy services for older people on any aspect of care homes and care home fees. • Counsel and Care (0845 300 7585, www.counselandcare.org.uk) provides advice, information and publications on any issue to do with care homes and care home fees for people aged 60 or over. • The Relatives and Residents Association (020 7359 8136, www.relres.org) supports older people by advising on all aspects of care homes, as well as providing a listening ear to family and carers. The person you care for may have to pay towards the cost of their place in a care home; Croydon Council will conduct a financial assessment to determine the level of their contribution. For more information call the Charging Helpline (020 8760 5676) or call Social Services for Adults on 020 8726 6500 and request Choosing and Paying for a Care Home. Some people are exempt from all care home fees, such as those who have savings below a certain amount, and those receiving NHS continuing healthcare (see chapter three). For national advice and information specifically on care home fees call the NHFA Care Fees Advice Line on 0800 99 88 33 or the Help The Aged Care Fees Advice Service on 0500 76 74 76. Problems with Housing If you are experiencing any housing-related problems such as tenancy disagreements, harassment, or the threat of eviction you could contact Croydon Council’s Housing Advice Service on 020 8726 6100 – this service can advise private tenants as well as people living in council and housing association properties. Croydon Housing Aid Society (020 8726 0840) is an independent housing advice centre that gives advice on all housing related matters. Shelter, the housing and homelessness charity, runs a London Housing Advice Centre that anyone living in a London borough can access; call their free housing advice line on 0808 800 4444 for more information. How To... A Guide for Carers in Croydon 2009-2011 73 7. HOUSING Key Contacts Age Concern Croydon 020 8680 5450 Care Quality Commission 03000 616161 Counsel and Care 0845 300 7585 Croydon Council Charging Helpline 020 8760 5676 Croydon Housing Advice Service 020 8726 6100 Croydon Housing Aid Society 020 8726 0840 Croydon Housing Department 020 8726 6100 Elderly Accommodation Counsel 020 7820 1343 Help The Aged 0500 76 74 76 NHFA Care Fees Advice Line 0800 998 833 Relatives and Residents Association 020 7359 8136 Shelter 0808 800 4444 Social Services for Adults 020 8726 6500 Support Needs Assessment and Placement Service 020 8760 5498 If you cannot find what you are looking for please contact the Carers’ Information Service on 020 8649 9339, option 1. 74 How To... A Guide for Carers in Croydon 2009-2011 HOUSING. 7 How To... A Guide for Carers in Croydon 2009-2011 75 8. SHORT BREAKS AND LEISURE Your caring role may not allow for much free time and your wellbeing may be affected as a result. Taking a regular break – whether for a few hours or even longer – may help reduce stress and anxiety and can be just as refreshing for the person you care for as well as it is for you. Remember that going out to meet a friend for a coffee is just as valid a reason to have a break as going to a doctor’s appointment or doing the shopping. Leisure time is important too, whether you do something with the person you care for, or separately. There are a number of schemes and services that can make this easier. Short Breaks Informal Networks You may have relatives, friends or neighbours who could help out from time to time. It can be hard to ask for help, but other people may not realise that you would appreciate their support unless you ask them. If you can be specific about what you need then those around you may be all too willing to help. If you are part of a carers group you may find others who are looking after someone with a similar disability or of a similar age and they are likely to have a good understanding of the issues you are facing. You could help each other to take a break by offering a lift share to an activity, or babysitting so that you can go out. If you do not feel that you could leave the person you care for with someone else, a friend coming to your home for just a couple of hours could enable you to have a sleep, or catch up on things around the house. 76 How To... A Guide for Carers in Croydon 2009-2011 SHORT BREAKS AND LEISURE. 8 Care at Home Home care, also known as domiciliary care, is when a trained care worker comes to the home during the day, evening or overnight to carry out some of the tasks that you would normally do. You can pay for home care privately. Croydon Council has contracts with homecare agencies who are monitored and reviewed regularly. Contact Social Services for Adults on 020 8726 6500 for a copy of the Approved Home Care Agencies list. You can also ask Croydon Social Services to organise home care on your behalf or to give you a direct payment to make your own arrangements. The person you care for will need to meet the criteria for assistance and will need to be assessed - see chapter two for more information about assessments. Croydon Neighbourhood Care Association (020 8662 1000, www.cnca.org.uk) has neighbourhood groups all over the borough. Some of these have volunteers who can provide a sitting service, where someone comes to the home for a few hours to be with the person you care for while you go out. Community Service Volunteers (020 7278 6601, www.csv.org.uk) can help the person you care for to live independently by living with them and providing any assistance that is required. Travelling expenses, pocket money and meals must be provided. Direct Payments can be used to pay these fees. Volunteers will generally stay for a minimum of four months and a maximum of a year. There are groups that support carers from black and minority ethnic (BME) communities that provide culturally specific short break schemes. You can read about these in our factsheet BME Carers. Care Away from the Home An alternative to another person coming into the home is to use a scheme where the person you care for spends part of the day elsewhere at either a day care centre, day service or an older people’s lunch club. As well as giving you a break, this will give the person you care for the opportunity to socialise and take part in activities. Such services are run by Social Services for Adults (020 8726 6500) and the person you care for will need to meet the criteria for assistance and be assessed, see chapter two. There are day services provided by voluntary organisations, such as Croydon How To... A Guide for Carers in Croydon 2009-2011 77 8. SHORT BREAKS AND LEISURE Mencap (020 8662 9201, www.croydon.cswebsites.org), which supports people with a learning disability and Mind in Croydon (020 8668 2210, www.mindincroydon.org.uk), which supports people with a mental health problem. See chapter one for more details about these and other specific condition groups, or see our Specific Conditions factsheet. Children with disabilities can use a variety of social services schemes including Calleydown Residential Centre; a Saturday club; holiday activity schemes; or they can go to a care worker’s own house for a few hours or even an overnight stay. All of these services are only available to children who have been assessed by the Children with Disabilities Team - see chapter two for more information about accessing these services. The Croydon Childminding Network (020 8604 7586) maintains a list of specialist childminders in the borough who look after children in their own home (not the child’s) and who have experience and skills relating to the care of disabled children. Financial Help to Take a Break If you are on a low income you may be able to get funding from the Respite Association (01406 701944, www.respiteassociation.org) to pay for a short break. There are a number of grant-giving organisations that may also be able to fund a break - see our factsheets Grants and Holidays for more details. Leisure Information about local organisations, events and activities for carers can be found in our free newsletter, Carers News, and in our monthly e-bulletin, as well as on our website, www.carerscontactline.co.uk. Joining our postal and electronic mailing list ensures that you will be up to date with everything that is happening for carers in the borough. Leisure Link (020 8239 4397, www.croydononline.org/leisure) is a regular newsletter that gives information about leisure opportunities for people with a learning disability. There are other organisations, such as those covering specific caring groups, that also distribute newsletters and other mailings which will inform you about activities; see chapter one for details. 78 How To... A Guide for Carers in Croydon 2009-2011 SHORT BREAKS AND LEISURE. 8 You can reduce the cost of leisure activities by ensuring that you make the most of any discounts. Carers, older people and people with disabilities can often get reductions on entrance fees to major tourist attractions and places of interest so it is always worth asking when you buy your tickets. Many attractions have a carer goes free policy, but the person with the disability may need to show proof of their disability, such as a Disabled Person’s Freedom Pass (see chapter six) or details of their Disability Living Allowance (see chapter four). Access If accessibility is one of your main concerns when planning leisure activities, there are a number of sources of information. The DisabledGo website (www.disabledgo.info) lists the accessibility of leisure and entertainment venues in Croydon, including pubs, restaurants, cinemas and shops. As well as finding out about wheelchair access you can check other facilities such as toilets and changing areas, large print, hearing systems and parking. The Community Access Service (020 8726 6000 ext 61661) helps adults under 65 with a physical disability and/or sensory impairment to access leisure opportunities (in addition to learning and job opportunities). Croydon Council has an Inclusion Support Worker (020 8604 7570) who can help if you are a parent carer and have difficulty accessing an out of school club because of your child’s extra needs. You can get information on the accessibility of venues and attractions across London, plus details of prices and concessions, from Artsline (www.artsline.org.uk). Shape (0845 521 3457, www.shapearts.org.uk) helps deaf and disabled adults to access arts and entertainment events across London and provides information on the accessibility of venues. If going out of the home is not possible for the person you care for, Croydon libraries (020 8726 6900) offer specific services for people who are housebound or have a visual impairment, such as the home library service which delivers books to your door every four weeks, and a wide selection of large print, Braille and talking books. W4B - the TV and Radio Charity (01708 621 101, www.w4b.org.uk) aims to prevent feelings of isolation and loneliness by ensuring that those with issues associated with age, illness and disability who find it difficult to leave their homes can benefit from a free television, cd player or radio. Applications must be made by a referee, such as a carers support organisation, health or social services professional. How To... A Guide for Carers in Croydon 2009-2011 79 8. SHORT BREAKS AND LEISURE Specific Activities There are specific leisure activities and schemes that you and the person that you look after may want to explore - whether you want to do things together, or separately, which will give you a break at the same time. We have listed a range of schemes for a variety of groups of people, but there are many more that are available, so please contact us if you cannot find what you need. Music, Arts and Sport • Active Minds is a project run by Mind in Croydon (020 8668 2210, www.mindincroydon.org.uk) that aims to reduce social isolation by enabling people with mental health problems to take part in leisure, sports and social activities. Active Minds will help people to get information on whatever their interests are and support them to join existing groups being run by the project, such as boxercise, use the gym and pool at New Addington gym, go sailing and do gardening. • The Cinema Exhibitor’s Association Card (0845 123 1292, www.ceacard.co.uk) enables people receiving Attendance Allowance or Disability Living Allowance to get one free ticket for someone accompanying them to the cinema. People with a hearing loss or visual impairment may prefer to see the film with subtitles or audio description - some cinemas offer monthly autism-friendly screenings. See www.yourlocalcinema.com for details of local screenings. • Clocktower Arts (020 8253 1034) organises events for people with disabilities, including the Croydon Beautiful Octopus Club - a club night for people with a learning disability. • Croydon Contacts (020 8665 0984, www.croydoncontacts.com) provides supported leisure activities for adults with a disability, including a drama club, cinema trips, bowling, cycling and a Sunday lunch club. • Croydon Mencap (020 8662 9201 www.croydon.cswebsites.org) runs the Leslie Park Project which offers daytime activities to young adults with learning disabilities, including dance, gardening, arts and crafts, swimming, 80 How To... A Guide for Carers in Croydon 2009-2011 SHORT BREAKS AND LEISURE. 8 music, cinema and outings. There is a Saturday Sports Club, Saturday DropIn Club and a Monday Club which offer a range of activities. Croydon NOW is a person-centred activity service for adults with a learning disability who meet the criteria for services provided by Croydon Social Services. Members are supported to access community facilities in addition to centre-based activities. • Croydon’s swimming pools and leisure centres offer discounts on entry rates to people with disabilities and their carers. Thornton Heath Leisure Centre (020 8689 5300) has a swimming session for carers and people with disabilities on a Friday evening and a family splash session for disabled children and their families on a Sunday morning. Enterprise Swimming Club (020 8644 4851) is for young people and adults with a disability on Friday evenings at Purley Swimming Pool. • Cycling for All (020 7346 8482, www.wheelsforwellbeing.org.uk) takes place at Croydon Sports Arena in South Norwood on Monday and Saturday mornings. It gives children and adults with disabilities and balance problems the opportunity to use tricycles and adapted bicycles. • The Diamond Riding Centre (020 8643 7764, www.diamondcentre.org.uk) provides therapeutic and recreational horse-riding and carriage driving. The centre is open during term-time only and there is a waiting list. • Saturn V (08454 30 20 31, www.saturnv.co.uk) is a special needs trampolining centre for children and adults. • The de Stafford Sports Centre Disability Sports Club (01883 344 355) is for teenagers and adults who have a disability. The club offers an opportunity to enjoy a wide variety of indoor sports with professional coaches. The club is in Caterham but is open to Croydon residents. Social Events • The Alzheimer’s Society Croydon (020 8916 3587) runs the Forget-Me-Not Café, a monthly social event for people with dementia, their families and carers. How To... A Guide for Carers in Croydon 2009-2011 81 8. SHORT BREAKS AND LEISURE • Contact the Elderly (0800 716 543, www.contact-the-elderly.org) runs two schemes in Croydon for elderly people to meet one Sunday afternoon a month for tea, talk and companionship in a volunteer’s home. • Croydon Crossroads Carer Support Service (020 8667 9893) runs a lunch club for carers who are receiving support from them. • Croydon Carers Centre (020 8688 7219) has regular outings and events for carers throughout the year. • Croydon Mencap (020 8662 9201, www.croydon.cswebsites.org) has an Older Carers Support Service that helps carers who are over 60, living in the borough of Croydon and caring for someone with a learning disability. As well as offering home visits and one-to-one support, the service holds regular coffee mornings, lunches and special events to enable carers to meet one another. • Parents in Partnership (PIP) (020 8651 6198, www.pipcroydon.btik.com) holds regular events for families caring for children with a disability and provides details about other activities of interest to parent carers. Activities For Children and Young People You may find our annual publication Summer Guide for Parent Carers, which is published in July, helpful if you are looking for holiday activities and ideas suitable for children and young people with a disability or illness. You can also find out about childcare, children’s centres and other activities for children by calling the Family Information Service (0845 1111 100, www.croydonchildcare .com). • Croydon Crossroads Saturday Club (020 8688 4499) is for young people with a physical disability aged 8-18. • Croydon Mencap (020 8662 9201 www.croydon.cswebsites.org) runs youth clubs for young people with a learning disability aged 12–18 . • Croydon Sports Development Team (020 8760 5592) offers sports activities and coaching for young people aged 8–18, including those with disabilties. 82 How To... A Guide for Carers in Croydon 2009-2011 SHORT BREAKS AND LEISURE. 8 • Spectrum (07976 912915 or 07906 276202) offers arts and leisure activities and a range of clubs for young people with disabilities. • SureStart (020 8649 8441) has a sensory room that can be booked for a free one-hour session. • Treetops Children’s Centre (020 8688 3263) is an after school club for children with special needs aged from 5 - 12. It is also open some Saturdays and during school holidays. • Waggy Tails Club (020 8651 6728) gives young people with special needs aged 10–17 the opportunity to train dogs. This is especially useful to help children overcome their fear of dogs. • Whitgift Special Needs Activity Project (SNAP) (020 8405 6933, www.whitgiftsnap.org.uk) runs schemes for children and young people with a physical or learning disability aged 5-19 for two weeks during the summer holidays. Applications must be submitted by the end of April. • The Youth Worker at the Youth Disabilities Project (07990 790183) can tell you about Croydon’s youth centres and clubs that are suitable for young people with disabilities. • The Young Carers Support Project (020 8649 9339, option 2) supports children and young people who have a caring role in the family. It organises activities and outings for young carers during school holidays and can also help to arrange family breaks. Holidays You may decide to go on holiday without the person you care for and find alternative care for them or you might prefer to go on holiday together, but look for a venue where help is provided. See our factsheet Holidays for sources of information and advice, travel insurance, medication, equipment, holiday providers and financial help. How To... A Guide for Carers in Croydon 2009-2011 83 8. SHORT BREAKS AND LEISURE Key Contacts Alzheimer’s Society Croydon 020 8916 3587 Clocktower Arts 020 8253 1034 Contact The Elderly 0800 716 543 Croydon Libraries 020 8726 6900 Croydon Carers Centre 020 8688 7219 Croydon Childminding Network 020 8604 7586 Croydon Crossroads Carer Support Service 020 8667 9893 Croydon Mencap 020 8662 9201 Croydon Neighbourhood Care Association 020 8662 1000 Croydon Social Services 020 8726 6500 Family Information Service 0845 1111 100 Inclusion Support Worker 020 8604 7570 Mind in Croydon 020 8668 2210 Parents in Partnership 020 8651 6198 Respite Association 01406 701 944 Social Services for Adults 020 8726 6500 Young Carers Support Project 020 8649 9339 option 2 If you cannot find what you are looking for, please contact the Carers’ Information Service, 020 8649 9339, option 1. 84 How To... A Guide for Carers in Croydon 2009-2011 SHORT BREAKS AND LEISURE. 8 How To... A Guide for Carers in Croydon 2009-2011 85 9. TRAINING LEARNING & WORKING There are opportunities open to you if you want to start or return to employment, studying or training. There are also schemes that may be of interest to the person you care for, as you may both benefit from being part of a wider social circle and participating in activities that will boost your confidence.The Carers (Equal Opportunities) Act 2004 says that carer’s assessments must consider the carer’s wishes regarding work, education and training, see chapter two for more details. Working and studying can sometimes affect entitlement to benefits, both for you and the person you care for, so it is recommended that you check with a benefits expert such as the Welfare Rights Team on 0800 731 5920. Training For Carers Training courses can be geared towards getting back into work, learning skills and techniques that will help you in your caring role, or be purely for fun. The Carers’ Information Service runs monthly training sessions for carers – topics have included assertiveness, moving and handling and time management. All our training is free of charge and we can pay for alternative care for the person you look after, as well as transport and childcare costs. Contact us on 020 8649 9339 (option 1) for details of forthcoming courses. Caring with Confidence (0800 849 2349, www.caringwithconfidence.net) offers free training to carers aged 18 or over through local group sessions, self-study workbooks and online sessions. The training is made up of several modules, each looking at a different aspect of being a carer, and you can choose how 86 How To... A Guide for Carers in Croydon 2009-2011 TRAINING LEARNING & WORKING. 9 and when you access these. For example, you may want to attend one or two group sessions, then complete the rest of the modules online a few months later. Croydon has a range of training courses for people caring for someone with a specific condition. Rethink Croydon Carers Support Service (020 8649 9339, option 3, www.carerscontactline.co.uk) runs a Carers Education and Training Programme for carers of an adult with a severe mental illness, and the Alzheimer’s Society Croydon (020 8916 3587) offers training to carers of someone with dementia. You may also find our factsheet Specific Conditions helpful. For the Person You Care For A number of organisations offer computer training for disabled people. Croydon Keystrokes (020 8764 8822, www.disabilitycroydon.org.uk) encourages people with disabilities to learn how to use computers; it offers free introductory training courses and drop-in sessions with support from staff and volunteers. U Can Do IT (020 7730 7766, www.ucandoit.org.uk) can provide a free computer and low cost computer training to people with disabilities. Age Concern Croydon (020 8680 5450, www.ageconcerncroydon.org.uk) offers computer training for people aged 55 or over and those with disabilities – charges apply. Some groups offer work experience for people living with a particular disability; see our Specific Conditions factsheet. How To... A Guide for Carers in Croydon 2009-2011 87 9. TRAINING LEARNING & WORKING Learning For Carers If your caring role makes it difficult for you to attend classes, there are distancelearning courses that enable you to study from home. Learning for Living (020 7294 8217, www.learning-for-living.co.uk) is an online course for carers designed to help you recognise your current skills and realise your potential. Learndirect (0800 101 901, www.learndirect.co.uk) provides online learning opportunities for people aged 16 and over who want to improve their skills or work towards an educational qualification. The National Extension College (0800 389 2839, www.nec.ac.uk) and the Open University (0845 300 60 90, www.open.ac.uk) also offer distance-learning courses that can be completed within a time scale that suits you. Croydon Adult Learning and Training (CALAT) (020 8253 8550, www.calat.ac.uk) offers part-time adult education courses, on a wide range of subjects, at six centres across the borough. The Young Carers Support Project (YCP) (020 8649 9339, option 2 www.carerscontactline.co.uk) has an Education Support Worker who liaises with schools on behalf of young carers, as well as providing emotional support to young carers experiencing problems at school. The YCP also runs a weekly homework club (during term-time) where young carers can get help with schoolwork. Connexions (020 3354 2000) provides information, advice and support to young people aged 13-19 (13-25 if the young person has a disability) on all issues to do with education, training and careers. For the Person You Care For If you are caring for a child with a disability, they may have special educational needs (SEN) that mean they find it harder to learn than other children of the same age. There is not enough space in this guide to give detailed information about SEN, but there are some excellent publications available, such as Special Educational Needs – England from Contact a Family (0808 808 3555, www.cafamily.org.uk), or Special Educational Needs - A guide for parents and carers from the Department for Children, Schools and Families (0845 602 2260, www.teachernet.gov.uk/publications). If you have concerns about your child’s progress you should speak to someone 88 How To... A Guide for Carers in Croydon 2009-2011 TRAINING LEARNING & WORKING. 9 as soon as possible; remember, you know your child better than anyone. If your child is not yet at school you should consult your GP or health visitor, if they are at school speak to the Special Educational Needs Co-ordinator (SENCO) or the Head Teacher. Help for children with SEN may initially be provided from within the school. If your child does not make enough progress, support may be sought from outside professionals such as a speech and language therapist. If you feel that your child is still not progressing, or needs a lot more extra help, you can ask for a statutory assessment to be carried out by Croydon Council Special Educational Needs Section (020 8726 6000 ext 62394); this may lead to your child being given a Statement of Special Educational Needs. The statement will set out exactly what help your child needs and who will provide it. You can get advice and support through the statementing process from KIDS Croydon Parent Partnership Service (020 8688 8288, www.kids.org.uk), as well as information on all aspects of special educational needs in Croydon. You can also get advice and support from national organisations, including the Independent Panel for Special Education Advice (IPSEA) (0800 0184016, www.ipsea.org.uk), Network 81 (0845 077 4055, www.network81.org), and the Advisory Centre for Education (0808 800 5793, www.ace-ed.org.uk). If you are the parent of a pre-school child who has a disability the home teaching service offered by the Portage and Early Childhood Team (020 8726 7401) or the playgroup run by Croydon Opportunity Group (020 8916 0543) may be helpful. If your child misses a lot of school because of a long-term illness or frequent admissions to hospital, they may get help from the Hospital and Home Tuition Service (020 8771 5603). Croydon Adult Learning and Training (CALAT) offers part-time adult education courses; their Learner Support Service (020 8662 5574) arranges any extra support required to ensure people with disabilities can access CALAT courses. If the person you care for is going to enrol in higher education (degree level or above), full or part-time, they may be entitled to a Disabled Students’ Allowance - a grant to help meet the extra course-related costs students can face as a direct result of a disability. For more information contact Student Finance England on 0845 300 50 90. How To... A Guide for Carers in Croydon 2009-2011 89 9. TRAINING LEARNING & WORKING Working For Carers Juggling work and care can be a challenge, so it is important that you access all the support available. You do not have to tell your employer or your colleagues that you are a carer, but you may find them a source of support if you can share your situation. Your employer might be able to offer you additional assistance beyond your statutory rights, such as access to a telephone, or a parking space near to work. If your employer wants to help but is not sure how, you could tell them about Employers for Carers (020 7378 4956, www.employersforcarers.org), an initiative supported by Carers UK that provides advice and support to employers who want to develop a carer friendly policy. The Work and Families Act 2006 and the Employment Rights Act 1996 gave carers rights to help them manage work and caring, such as the right to request flexible work and leave entitlement. Flexible working could include measures like changing your start and finish times, working the same hours but in fewer days, or working from home. You have the right to apply for flexible working if you have at least 26 weeks continual employment at the time you make your application and you are the parent of a child under six, or a disabled child under 18; or caring or expect to be caring, for a partner, relative or an unrelated adult who lives at the same address as you. Your application should be in writing, and whilst you do not have to prove you are a carer, it may help your request if you can give as much information as possible. You may also want to include how the proposed working arrangements will benefit the company as a whole, and not just yourself. You should receive a response, even if it is not a final decision, from your employer within 28 days. If your request is turned down your employer must demonstrate good business reasons for doing so, and you have the right to appeal. If your request is agreed to it will permanently change your contract, and you may want to ask for flexible working arrangements on a trial basis initially. If you are a parent carer of a child receiving Disability Living Allowance (see chapter four) and have worked for your employer for at least a year, you can take 18 weeks unpaid parental leave before their 18th birthday. All parents are entitled to 13 weeks unpaid parental leave before their child’s fifth birthday. 90 How To... A Guide for Carers in Croydon 2009-2011 TRAINING LEARNING & WORKING. 9 You will need to give your employer at least 21 days’ notice if you want to take parental leave. Parent carers who work, or want to work, can get support and information from Working Families’ Waving Not Drowning Project (020 7017 0072, www.workingfamilies.org.uk). Everyone has the right to take a ‘reasonable’ amount of time off work to deal with an emergency involving a dependant; whether this time is paid or unpaid is up to your employer. You should tell your employer as soon as possible after the emergency has happened. There is no set limit on how often you can claim time off for dependants, as long as you are dealing with real emergencies, nor do you need to have worked for your employer for any set length of time. If working and caring become too difficult and you are thinking about resigning, ask your employer about a career break (or sabbatical). It would mean that you could concentrate on your caring role for a while, knowing that you have your job to go back to. If you are on an unpaid career break, you may also be entitled to claim Carers Allowance (see chapter four). Carers UK (0845 241 0963, www.carersuk.org) publishes some useful booklets: Carers and Employment: A Guide to the Right to Request Flexible Working and Supporting Working Carers, a Carer’s Guide. Acas (08457 47 47 47, www.acas.org.uk) can help with any employment questions you may have, and also produces a range of guides for employees, such as The Right to Apply for Flexible Working, which you can request by calling 08702 42 90 90 or visiting their website. The Learning Curves Careers Information and Advice Service (020 8253 8560) can help you find the course or training you need to progress in your current job, or support you to pursue a different career entirely. How To... A Guide for Carers in Croydon 2009-2011 91 9. TRAINING LEARNING & WORKING For the Person You Care For If the person you care for wants to work and is receiving Jobseeker’s Allowance, but feels that their health issues are a barrier to finding a job, they may benefit from meeting with a Disability Employment Advisor (DEA) at Jobcentre Plus (020 8700 8362). DEAs can provide support and information via schemes such as: • Access to Work – advice and practical help such as providing a support worker or communicator, giving grants to cover travel costs, and funding adaptations to make the workplace accessible. • WORKSTEP – support in finding and retaining a job for people who have significant obstacles to overcome as a result of their disability. • Job Introduction Scheme - offers employers help towards the cost of wages for the first few weeks of employment, giving someone with a disability the chance to demonstrate their capabilities. Croydon Employment and Support Service (CESS) (020 8255 5459) helps adults with disabilities find appropriate employment. CESS offers work preparation courses, work place visits, benefits advice, travel training and more. Status Employment (020 8655 3344, www.statusemployment.org.uk) helps people aged 16 or over who have a mental health problem to find and retain paid work. 92 How To... A Guide for Carers in Croydon 2009-2011 TRAINING LEARNING & WORKING. 9 Key Contacts ACAS 08457 47 47 47 Age Concern Croydon 020 8680 5450 Alzheimer’s Society Croydon 020 8916 3587 Carers UK Publications Order Line 0845 241 0963 Caring with Confidence 0800 849 2349 Connexions 020 3354 2000 Contact a Family 0808 800 3555 Croydon Adult Learning and Training 020 8253 8550 Croydon Council Special Educational Needs Section 020 8726 6000 ext 62394 Croydon Employment and Support Service 020 8255 5459 Employers for Carers 020 7378 4956 Jobcentre Plus 020 8700 8362 KIDS Croydon Parent Partnership Service 020 8688 8288 Learning Curves 020 8253 8560 Learning for Living 020 7294 8217 Rethink Croydon Carers Support Project Student Finance England 020 8649 9339 option 3 0845 300 50 90 Young Carers Support Project 020 8649 9339 option 2 Waving Not Drowning Project 020 7017 0072 If you cannot find what you are looking for, please contact the Carers’ Information Service, 020 8649 9339, option 1. How To... A Guide for Carers in Croydon 2009-2011 93 10. HELP IN A HURRY None of us like to think about when things might go wrong, but if you are looking after someone it is useful to think about how you would deal with an emergency involving you and/or the person you care for. An emergency can be anything from you being stuck in traffic and unable to collect someone, to equipment that the person you care for relies on breaking down out of hours. Spending time thinking through possible emergency scenarios for your caring situation, and finding out about services that can help, can give you peace of mind now and will save time and anxiety if a crisis occurs. Preparing for Emergencies You might want to think about creating a back-up plan in case you are suddenly unable to look after the person you care for. It is worth planning for everyday situations, such as delays, as well as more serious problems such as an unexpected hospital stay. Ask family members, friends and neighbours and talk to them about whether they would be willing to help out. If they agree you could make sure they know about the cared for person’s disability, illness or condition, what medication they take, and where important information and contact numbers are kept. You could put this information together in a document and give copies to everyone in your ‘back up team’. If you do not have a ‘back up team’ Croydon Social Services (020 8726 6000) may be able to help. If you telephone outside normal office hours your details will be passed by the security staff to the emergency duty team, who will call you back and see what, if any, help can be given. We have created an emergency card for carers, that can be carried with you in your wallet or purse. The carers emergency card lets people know that someone depends on you for care and has space to enter the names 94 How To... A Guide for Carers in Croydon 2009-2011 HELP IN A HURRY. 10 of two people who could be contacted in the event of an emergency. These are available free by contacting us on 020 8649 9339 option 1. Emergency services will often check people’s mobile phones in order to contact their next of kin, if you store the names of your emergency contacts in your phone under the heading ICE (In Case of Emergency) the emergency services look there first and be able to find essential contact details easily. Croydon Council has a new service called Croycare (020 8654 7166), a 24hour emergency response service and card scheme. Carers who are providing a “substantial” amount of care for someone and have had a carer’s assessment, may be able to register for this service, however you will need to contact Croycare for further information about eligibility criteria. To register you will need to supply information about the person you care for and the names of two people to contact in an emergency. An emergency plan will be drawn up and you will be given a Croycare emergency alert card which will include a unique reference number and an emergency contact number to call. The service will implement your personal emergency plan or provide direct support to the person you look after for up to 72 hours. If you know that the person you care for can get help quickly and easily if there is a problem, particularly if they live alone or if they are on their own for long periods, it will be reassuring for both of you. Croydon Careline (020 8726 6501) is a Croydon Council service that provides a home safety and personal security system, which helps people to live independently within their own homes. It operates year round, 24 hours a day. The user of the service is given a necklace or wrist strap containing an alarm button which, when pressed, alerts a control centre. The caller can talk to a trained operator from anywhere in the home without using the phone handset. The operator will take appropriate action, such as calling the nominated emergency contacts or sending out the Careline mobile response officers directly to the person’s home. The operator will stay on the line until help arrives. Anyone can have a Careline but there are charges for installation and maintenance. However, if you already receive social care services or wish to be assessed for services, you may be able to receive help towards these costs. For an assessment, contact Social Services for Adults (020 8726 6500) or Children’s Services (020 8726 6400). Telecare sensors can also be programmed to the Careline Unit. These sensors How To... A Guide for Carers in Croydon 2009-2011 95 10. HELP IN A HURRY monitor smoke, flood, gas leaks, carbon monoxide and extreme temperatures. There are systems that reduce the risk of falls by switching on lights as people get out of bed and raising an alarm if they do not return within a certain time. There are also devices that can automatically page a carer or friend up to 500 metres away to instantly alert them of a potential risk situation within the home. The Message in a Bottle Scheme is supported by the emergency services and enables them to find someone’s basic personal and medical details quickly and easily in an emergency. You can get one of the labelled bottles for free from the Lions Club of Croydon (020 8689 5411). Information about the person you look after is kept on the form inside the bottle and put in the door of their fridge. You will be given green cross stickers to put on the front of the fridge and on the back of the front door so that the emergency services know to look for the bottle. If the person you care for has a specific medical or disabling condition you could contact the relevant national organisation to find out if they produce an identification or awareness card stating that the bearer has a medical condition. If the person you care for has any hidden medical conditions or allergies it might be a good idea for them to join a scheme such as MedicAlert (0800 581 420, www.medicalert.org.uk). Each MedicAlert member receives an emblem that is engraved with the wearer’s main medical conditions or vital details, a personal identification number and a 24-hour telephone number to call for more information about the wearer. Charges apply, but free membership can be given to individuals on a limited income. Other schemes are available. If you combine caring with paid work you may need to take time off if there is an emergency situation involving the person you care for. See chapter nine to find out about your rights to time off in an emergency. If the person you care for relies on vital equipment it is a good idea to be prepared in case it breaks down. You need to know who is responsible for fixing or replacing it, how to contact them and whether they have any out of hours services. If the equipment has been bought with a direct payment from social services it is essential to find out who will be responsible for it if there is a problem, see chapter two. 96 How To... A Guide for Carers in Croydon 2009-2011 HELP IN A HURRY. 10 Dealing with Emergencies Medical Assistance A medical emergency is regarded as a critical or life-threatening situation and in this situation you need to call 999. If the person you care for needs urgent medical attention outside of normal GP practice hours, the surgery will usually have a recorded message giving details of the out of hours service. You may be referred to Croydon Doctors on Call (Croydoc), a co-operative run by Croydon GPs. Alternatively, NHS Direct (0845 46 47, www.nhs.uk) can advise and even call an ambulance for you if necessary. Croydon NHS Walk-In Centre (020 8714 2888) at 45 High Street Croydon offers healthcare advice and treatment for minor injuries and illnesses. You do not need an appointment. It is open year round, except Christmas Day, 7 am - 10 pm on weekdays and 9 am - 10 pm at weekends and on public holidays. The Emergency Minor Treatment Centre at Parkway Health Centre (020 8251 7225) has specialist nurses who can treat a wide range of minor injuries and problems. The centre is open year round, except Christmas Day, 2 - 9 pm on weekdays and public holidays, and 12 noon - 9 pm at the weekend. If the person you care for has severe dental pain and their dental surgery is closed, or they are not registered with a dentist, you can contact Croydon’s emergency dental service, Croydent, on 0845 000 4567. If you need an out of hours pharmacist urgently you can get details by contacting NHS Direct. If the person you care for has a fall and cannot get up unassisted, it is best not to attempt to move them yourself, but to contact the ambulance service (999) to help get them up and check for any injuries. If you care for an older person and you are worried about falls, contact the Age Concern Croydon Personal Safety Project (020 8680 5450, www.ageconcerncroydon.org.uk). This project helps older people, their families and carers, with some of the practical difficulties that may be affecting their safety in the home. It offers a number of services, including assessing and identifying risks, carrying out handyperson tasks to improve safety, and providing advice on equipment and aids to promote safety and independence. If the person you care for has a mental health crisis, who you contact for help How To... A Guide for Carers in Croydon 2009-2011 97 10. HELP IN A HURRY will depend on whether they are currently known to mental health services. If the person you are caring for is not known to the mental health system, you can ring the SLaM Information Line (open 24 hours) on 0800 731 2864 to find out where and how to get help. If you are caring for someone who is a mental health service user, you should contact their Community Mental Health Team. Out of hours, you can go to the Accident and Emergency department at Mayday Hospital where there are always specialist mental health staff on duty. If you are concerned about an immediate risk of harm, either to yourself or someone else, call the emergency services. The Samaritans is available 24-hours (08457 90 90 90, www.samaritans.org) and can talk to anyone in distress in complete confidence. Key Contacts Age Concern Croydon 020 8680 5450 Croydon Careline 020 8726 6501 Children’s Services 020 8726 6400 Croycare 020 8654 7166 Croydent 0845 000 4567 Croydon Council 020 8726 6000 Croydon NHS Walk-in Centre 020 8714 2888 Lions Club of Croydon 020 8689 5411 MedicAlert NHS Direct 0800 581 420 0845 46 47 Parkway Health Centre 020 8251 7225 Samaritans 08457 90 90 90 SLaM 24 hour information line 0800 731 2864 Social Services for Adults 020 8726 6500 If you cannot find what you are looking for please contact the Carers’ Information Service on 020 8649 9339, option 1. 98 How To... A Guide for Carers in Croydon 2009-2011 HELP IN A HURRY. 10 How To... A Guide for Carers in Croydon 2009-2011 99 SUBJECT INDEX A Abuse Accessible Toilets Adaptations Advocacy Alcohol Alternative Care Arts Assessment of Need Attendance Allowance B Back Injuries Befriending Benefits Bereavement Black and Minority Ethnic (BME) Blind Blue Badge C Carer’s Allowance Carer’s assessment Carers’ Rights Carer Premium Care Homes Care Plan Childminders Children’s Centres Child Benefit Child Tax Credit Cinema Community Transport Complaints Complementary therapies Computers Congestion Charge Consent Continence 100 29 15, 56 54, 70 12, 14, 15, 16, 17, 18 32, 37 11, 12, 18 80, 83 22, 23, 27, 77 43, 80 32 13, 15, 35 12, 14, 16, 18, 20, 42-51 38, 39, 50 10, 11, 77 16, 48 63, 64 44 12, 16, 18, 27, 28, 35 8, 9 44, 45 35, 43, 72, 73 25, 26, 28 78 13 58 46 80, 81 68 20, 30, 40 12, 17 55 64 39, 40 34, 56 How To... A Guide for Carers in Croydon 2009-2011 SUBJECT INDEX Council Housing Council Tax Council Tax Benefit Counselling 70 47 46 10, 12, 16, 17, 18, 19, 33, 50 D Day Centres Debt Dementia Dentists Direct Payments Disability Living Allowance Disability Premium Disabled Band Reduction Scheme Disabled Child Premium Disabled Parking Bay Disabled Persons Railcard Discounts Discrimination DIY Domiciliary Care Door-to-Door Transport Drama Driving Drugs 22 47 18, 81 33, 39 26, 53, 77 26, 43, 54, 62, 79, 80 44 47 45 64 66 47, 48, 60, 79 20 15 77 68 17 63, 64, 65 32, 37 E Education Emergencies Emotional Support Employment Employment and Support Allowance Enhanced Disability Premium Equality Equipment 20, 88-89 12, 13, 28, 35, 94, 98 12-13, 38-39 18, 20, 90-92 43 44 15, 20 22, 28, 52-56 How To... A Guide for Carers in Croydon 2009-2011 101 SUBJECT INDEX F Falls Financial Assessment Freedom Pass Funerals Furniture G Gardening GPs Grants 14, 97 25, 28, 53 65-67, 79 49, 50 60 15, 59, 80 33, 34, 36, 38 12, 48, 53, 58, 62, 78 H Hearing Impairment 16 Holidays 78, 83 Homecare Agencies 77 Home Maintenance 57 Home Responsibilities Protection 45 Home Safety 14, 58-59 Home security 59 Horse-riding 81 Hospice Care 17, 38 Hospital 24, 27, 34-35, 43, 44, 50, 55, 60, 62, 64, 68 Hospital Admissions 34 Housing 20, 34, 70-74 Housing Benefit 46 I I-Count Card Incapacity Benefit Income Support Independent Living Funds 29 43 45 26 J Jobseeker’s Allowance 46 102 How To... A Guide for Carers in Croydon 2009-2011 SUBJECT INDEX L Lasting Power of Attorney Learning Disability Legal Advice Legislation Leisure Libraries Life-Limiting/Life-Threatening Lunch Club M Meal Delivery Medication Mental Health Problem Mental Health Services Mobility Music 39, 49 16, 23, 33, 49, 78, 80, 82 20 8-9 12, 18, 27, 72, 78-84 36, 79 17, 38 15, 16, 77, 80, 82 60 33, 37, 83 13, 17, 18, 22, 27, 32, 36, 78, 80, 98 22, 27, 36, 98 43, 54-56, 62-69 80, 81 N National Insurance NHS Low Income Scheme Nursing Homes 44, 45 39 22, 72 O Occupational Therapy Ordinary Power of Attorney Outings 34, 53 48 12, 81, 82, 83 P Palliative Care Pension Credit Personal Care Pharmacy Physical Disability Physiotherapy Prescriptions Public Transport 17, 38 45 22, 24, 26, 43 38 15, 34, 82 34 36-39, 60 65 How To... A Guide for Carers in Croydon 2009-2011 103 SUBJECT INDEX R Radar Keys Reductions Registers Repairs Road Tax S Special Educational Needs Safeguarding Self-Directed Support Senior Railcard Sensory Impairment Severe Disability Premium Sheltered Housing Shopping Short Break Siblings Sight Tests Sitting Service Social Fund Special Rules Speech and Language Therapy Sport Substance Addiction Supported Housing Swimming T Terminal Illness Tradespersons Training Trampolining Transport U Utilities 104 15, 56 48, 79 29 57 64 13, 88-89 29 26 66 15, 58 44, 45 71 15, 60, 61 15, 22, 26, 28, 76-78 13 39 77 47, 50, 62 43 34 80 19, 37 71 80, 81 17, 38-39, 43 57, 59 11, 12, 14, 15, 17, 18, 26, 32, 86-87 81 12, 15, 16, 28, 62-69 58 How To... A Guide for Carers in Croydon 2009-2011 SUBJECT INDEX V Value Added Tax Visual Impairment W War Pension Mobility Supplement Wheelchair Wills Work Working Tax Credit Y Young Carers How To... A Guide for Carers in Croydon 2009-2011 57, 64 16, 29, 66, 79 68 55-56, 63, 64, 65, 66, 68 49 27, 28, 43, 46. 90-92 46 12, 13, 27, 46, 83 105 ORGANISATIONAL INDEX Organisations and services listed in this guide. A AbilityNet 55 Acas 91 Access Ability Centre 54 Access Croydon 23, 27 ACDC Advocacy 15 Action on Elder Abuse 29 Adfam 19 Adult Abuse Reporting Line 29 Advisory Centre for Education 89 Advocacy Partners 16 Age Concern Croydon 15, 55, 57, 58 59, 60, 71, 72, 87, 97 Al-Anon Family Groups 19 Alateen 19 Alcoholics Anonymous 19 Alzheimer’s Society Croydon 18, 27 81, 87 Ashburton Road Crisis Unit 36 Aztec Centre 54 British Footwear Association 55 British Red Cross Hospital and Community Service 35 C CAPS Supported Lodging Scheme 72 CareAware 73 Carers’ Information Service 7, 11 32, 63, 86 Carers Direct Carers UK 12 12, 50, 90, 91 Care Providers 37 Care Quality Commission 72 Caring with Confidence 86 Charging Helpline 25, 73 CHASE 38 Children’s Hospital at Home Team 33, 38 Children’s Occupational Therapy Service 34, 53 Children’s Services 23, 27 29, 53, 95 Child and Adolescent Mental Health Service 36, 37 B BackCare 32 Benefit Enquiry Line 42 Bethlem Royal Hospital 36 Beulah Family Church Parent Support Group 13 Books on Prescription Scheme 36 Boots Medisure Service 37 106 British Association for Counselling and Psychotherapy 19 Cinema Exhibitor’s Association Card 80 Clocktower Arts 80 Community Access Service 79 Community Dental Service 33 Community Intermediate Care Service 35 Community Legal Advice 20 How To... A Guide for Carers in Croydon 2009-2011 ORGANISATIONAL INDEX Community Legal Advice (Helpline) 49 Croydon Contacts Community Podiatry/ Chiropody Service Croydon Council 34 Community Service Volunteers 77 Congestion Charging London 64 Connexions Consumer Credit Counselling Service Contact a Family 80 5, 26, 30, 50 70, 72, 77 Croydon Council’s Infrastructure Traffic Design 64 88 Croydon Council Special Educational Needs Section 89 48 Croydon Council Travel Services Team 14, 88 64, 65, 68 Croydon Crossroads 38 Contact the Elderly 82 Continence Service 34, 56 Croydon Crossroads Carer Support Service 12, 62, 82 Council Tax and Benefits Customer Contact Centre 46, 47 Croydon Crossroads Saturday Club 82 20 Croydon Deaf Children’s Society 16 Counsel and Care 73 Croydon Doctors on Call (Croydoc) 97 Croycare 95 Croydent 97 Croydon Employment and Support Service 92 Croydon Accessible Transport (CAT) 68 Croydon Generic Floating Support Service 72 Counselling Directory Croydon Adult Learning and Training (CALAT) Croydon Hearing Resource Centre 15 Croydon Housing Aid Society 73 Croydon Integrated Adult Mental Health Service 36 20 Croydon Integrated Mental Health of Older Adults Service 36 60 Croydon Association of Pastoral Care in Mental Health Croydon Integrated Psychological Therapies Service 36 18 Croydon Careline 95 Croydon International Volunteer Service 59 Croydon Keystrokes 87 Croydon Libraries 79 Croydon Memory Service 18 88, 89 Croydon Alcohol Counselling Service 19 Croydon and Sutton Law Centre Croydon Appliance Re-use Centre (ARC) Croydon Carers Centre 12, 82 Croydon Childminding Network 78 Croydon Citizens Advice Bureau (CAB) 20 Croydon Community Drug Agency 19 How To... A Guide for Carers in Croydon 2009-2011 Croydon Mencap 16, 27, 63 77, 80, 82 107 ORGANISATIONAL INDEX Croydon Mental Health Forum 18 Direct Payments Support Service 26 Croydon Mobility Forum 65 DisabilityCroydon Croydon Neighbourhood Care Association 14, 55, 59, 61, 68, 77 Croydon NHS Walk-In Centre 97 Croydon Opportunity Group 89 Croydon Register Office 50 Croydon Shopmobility Scheme 56 Croydon Social Services 22, 23, 24, 25, 38, 53 54, 59, 72, 77, 94 Croydon Sports Development Team 15, 26, 56 Disability Equipment Register 55 Disability Law Service 20 DisabledGo 79 Disabled Living Foundation (DLF) 54 Disabled Persons Railcard 66 Docklands Light Railway 65 Driver and Vehicle Licensing Agency (DVLA) 64 DWP Benefit Enquiry Line 43, 45, 64 82 Croydon Substance Misuse Team 37 E Croydon Tramlink Early Support Programme for Disabled Children 13 Elderly Accommodation Counsel 71 97 Croydon Voluntary Action 66 10, 18 Croydon Voluntary Association for the Blind 16 Croydon Welfare Rights Team 42 Emergency Minor Treatment Centre Crystal Centre for Children’s Services Employers for Carers 90 53 Enterprise Swimming Club 81 Cycling for All 81 F D Face 2 Face 13 Dairy Crest Doorstep Deliveries 60 Family Fund 63 Day Lewis Pharmacies 33 Family Information Service 13 DEMAND 56 First Capital Connect 66 Department for Children, Schools and Families 88 Fledglings 56 FRANK 19 de Stafford Sports Centre Disability Sports Club 81 Dial-a-Ride 68 Diamond Riding Centre 81 Directory of Social Change 48 108 G Gingerbread 14 How To... A Guide for Carers in Croydon 2009-2011 ORGANISATIONAL INDEX H L Health Visiting Team for Older People 34 Help the Aged Care Fees Advice Service 73 Help with Health Costs 39 HM Revenue and Customs Charities Helpline Home Safety Scheme Home Start Croydon Hospice Information Service Law Society 49 Learndirect 88 Learning Curves 91 Learning for Living 88 Leisure Link 78 Lions Club of Croydon 96 59 Local Government Ombudsman 30 60 London Fire Brigade 58 57, 64 17, 38 Hospital and Home Tuition Service 89 Housing Advice Service 73 Housing Enquiry Team 70, 71 I Independent Complaints Advocacy Service 40 Independent Living Fund 26 Independent Panel for Special Education Advice (IPSEA) 89 Information Commissioner’s Office 40 M Macmillan Cancer Information and Support Service Mayday Hospital 17 35, 98 MedicAlert 96 Mencap 49 MERU Mind in Croydon 56 18, 60, 78, 80 Mobilise 63 Mobility Information Service 63 Motability 54, 62-63 N J Jobcentre Plus 44, 45 46, 47, 62, 92 K KIDS Croydon Parent Partnership Service 89 How To... A Guide for Carers in Croydon 2009-2011 Naidex 54 National Debtline 48 National Express 67 National Extension College 88 National Rail Enquiries 66 Network 81 89 NHFA Care Fees Advice Line 73 NHS Croydon 33 NHS Direct 97 109 ORGANISATIONAL INDEX NHS Low Income Scheme 39 R NSF Carers Group 17 RADAR 56 NSPCC Child Protection Helpline 29 Rainbow Trust 39 Register Services 29 Relatives and Residents Association 73 REMAP 56 Office of the Public Guardian 39, 49 Respite Association 78 Older People’s Network 15 Open University 88 Rethink Croydon Carers Support Service Oyster Card Helpline 67 O Occupational Therapy (OT) Service 34, 53 P PALS 40 PALS at Mayday Hospital 35 Parents in Partnership (PIP) 13, 82 Partnership for Older People 14 Pension Service 45 Pension Service for Croydon 42 Physiotherapy Service 34 Pillbox UK 38 Portage and Early Childhood Team 89 Primary Care Psychological Therapy Service 36 Primary Care Support Service 33 Queen Elizabeth Foundation Mobility Centre Rethink Croydon Counselling Service 19 Royal National Institute for the Deaf (RNID) 16 Royal National Institute of Blind People (RNIB) 16 S Safeguarding Adults Team 29 SAFE Project 59 Samaritans 98 SANE 18 Saturn V 81 Sense 16 Shape 79 Shelter 73 Sibs 13 SLaM Information Line Q SLaM PALS 63, 65 Social Services for Adults Soldiers, Sailors, Airmen and Families Association (SSAFA) 110 17, 87 36, 98 36 23, 27 53, 95 50 How To... A Guide for Carers in Croydon 2009-2011 ORGANISATIONAL INDEX Southeastern Railway 66 U Southern Trains 66 U Can Do IT South East Cancer Help Centre 17 South London and Maudsley (SLaM) NHS Foundation Trust 22, 36 Spectrum 83 Speech and Language Therapy (SALT) Service 34 St. Christopher’s Hospice 38 Status Employment 92 Staying Put 57, 59 56, 87 V Victoria Coach Station 67 Voices Forum 17 W W4B - the TV and Radio Charity 79 Waggy Tails Club 83 Student Finance England 89 Wheelchair Service 54, 55 Support Needs Assessment and Placement Service Whitgift Foundation 7 71 SureStart 83 Whitgift Special Needs Activity Project 83 Whizz–Kidz 56 Willow Children’s Bereavement Service 38 Wiltshire Farm Foods 60 Women’s Service 36 Working Families’ Waving Not Drowning Project 91 T Taxi One Number 68 Tax Credit Helpline 46 The Princess Royal Trust for Carers 12 Thornton Heath Leisure Centre 81 Transport for All 65 Transport for London 67 Travel Information Call Centre 65, 67 Travel Mentoring Scheme Treetops Children’s Centre TV Licensing 65 Y Young Carers Support Project Youth Disabilities Project 12 27, 83 83 16, 83 48 How To... A Guide for Carers in Croydon 2009-2011 111 ADDRESS BOOK We have listed all the organisations that are referred to in this guide. Addresses are only given for local organisations. If you cannot find the organisation that you need please contact us on 020 8649 9339, option 1. AbilityNet 0800 269 545 www.abilitynet.co.uk Action on Elder Abuse 0808 808 8141 www.elderabuse.org.uk Acas Helpline 08457 47 47 47 Order Line 08702 42 90 90 www.acas.org.uk Adfam 020 7553 7640 www.adfam.org.uk Adult Abuse Reporting Line See Croydon Council Access Ability Centre 28 Boulogne Road, Croydon CR0 2QT Incorporating: Community Equipment / Aztec Centre 020 8664 8860 & Wheelchair Service 020 8665 9313 Access Croydon (New Addington) 90 Central Parade, New Addington CR0 0JB 020 8726 6000 Access Croydon (Thornton Heath) Strand House, Zion Road, Thornton Heath CR7 8RG 020 8726 6000 ACDC Advocacy 158-162 London Road, Croydon CR0 2TD 020 8680 5450 www.ageconcerncroydon.org.uk 112 Adult Care Management Team Mayday University Hospital, 530 London Road, Croydon CR7 7YE 020 8401 3148 Advisory Centre for Education (ACE) 0808 800 5793 www.ace-ed.org.uk Advocacy Partners c/o Geoffrey Harris House, Coombe Road, Croydon CR0 5RD 020 8681 4903 www.advocacypartners.org Age Concern Croydon 158-162 London Road, Croydon CR0 2TD 020 8680 5450 www.ageconcerncroydon.org.uk Al-Anon Family Groups 020 7403 0888 www.al-anonuk.org.uk How To... A Guide for Carers in Croydon 2009-2011 ADDRESS BOOK Alcoholics Anonymous (AA) 020 7833 0022 for Croydon 01883 330720 for Purley, Coulsdon, Addington, Selsdon and Sanderstead www.aa-gb.org.uk Beulah Family Church Parent Support Group Beulah Crescent, Thornton Heath CR7 8JL 020 8771 4570 Alzheimer’s Society Croydon Heavers Resource Centre, 122 Selhurst Road, South Norwood SE25 6LL 020 8916 3587 British Association for Counselling and Psychotherapy (BACP) 01455 883 316 www.bacp.co.uk Artsline www.artsline.org.uk British Footwear Association 01933 229005 www.britfoot.com Ashburton Road Crisis Unit British Red Cross Hospital and 58 Ashburton Road, Croydon CR0 6AN Community Service 020 8654 4301 Mayday University Hospital, London Road, Thornton Heath CR7 7YE Association for Children’s Palliative 020 8401 3590 Care (ACT) 0845 108 2201 CAPS Supported Lodging Scheme www.act.org.uk See Croydon Council Aztec Centre See Access Ability Centre BackCare 0845 130 2704 www.backcare.org.uk Bethlem Royal Hospital Monks Orchard Road, Beckenham, Kent BR3 3BX 020 3228 6000 How To... A Guide for Carers in Croydon 2009-2011 CareAware 08705 134925 www.careaware.co.uk Care Providers 169 Shirley Road, Croydon CR0 8SS 020 8656 4627 www.care-providers.co.uk Care Quality Commission 03000 616161 www.cqc.org.uk 113 ADDRESS BOOK CareAware 08705 134 925 www.careaware.co.uk Carers Direct 0808 802 02 02 www.nhs.uk/carersdirect Carers’ Information Service Courtyard House, 1d Church Road, Croydon CR0 1SG 020 8649 9339, option 1 www.carerscontactline.co.uk Carers UK Helpline 0808 808 7777 Publications Line 0845 241 0963 www.carersuk.org.uk Caring with Confidence 0800 849 2349 www.caringwithconfidence.net Charging Helpline See Croydon Council Chase Children’s Hospice Service 01483 230 960 www.chasecare.org.uk Child and Adolescent Mental Health Service Lennard Lodge, 3 Lennard Road, Croydon CR0 2UL 020 3228 0000 Children’s Hospital at Home Team Morland Road Clinic, 6 Morland Road, Croydon CR0 6NA 020 8714 2501 Children’s Occupational Therapy Service Children’s Physiotherapy Service Children’s Speech and Language Therapy Service See Crystal Centre for Children’s Services Children’s Services See Croydon Council Cinema Exhibitors’ Association Card 0845 123 1292 www.ceacard.co.uk Clocktower Arts Croydon Clocktower, Katharine Street, Croydon CR9 1ET 020 8253 1034 Community Access Service See Croydon Council Community Dental Service 61a Gillett Road, Thornton Heath CR7 8RL 020 8714 2708 Community Equipment See Access Ability Centre Community Intermediate Care Service 12-18 Lennard Road, Croydon CR9 2RS 020 8274 6444 114 How To... A Guide for Carers in Croydon 2009-2011 ADDRESS BOOK Community Legal Advice Helpline 0845 345 4 345 Leaflet Line 0845 3000 343 www.communitylegaladvice.org.uk Community Podiatry/Chiropody Service Leander Road Primary Care Centre 949 London Road, Thornton Heath CR7 6JE 020 8274 6820/6836 Community Service Volunteers 020 7278 6601 www.csv.org.uk Congestion Charging London 0845 900 1234 www.tfl.gov.uk Connexions 112-114 High Street, Croydon CR0 1ND 020 3354 2000 www.connexions-southlondon.org.uk Consumer Credit Counselling Service 0800 138 1111 www.cccs.co.uk Contact a Family 0808 808 3555 www.cafamily.org.uk Contact Centre See Croydon Council How To... A Guide for Carers in Croydon 2009-2011 Contact the Elderly 0800 716543 www.contact-the-elderly.org Continence Service Parkway Health Centre, Parkway, New Addington CR0 OJA 020 8714 2979 Continuing Care Team Shirley Clinic, 135 Shirley Road, Croydon CR0 7LR 020 8714 2800 Council Tax and Benefits Customer Contact Centre Fell Road, Croydon CR9 1BQ 020 8726 7000 Counsel and Care 0845 300 7585 www.counselandcare.org.uk Counselling Directory www.counselling-directory.org.uk Croycare See Croydon Council Croydent (Croydon Emergency Dental Service) 0845 000 4567 Croydon Accessible Transport Cornerstone House, 14 Willis Road, Croydon CR0 2XX 020 8665 0861 115 ADDRESS BOOK Croydon Adult Learning and Training (CALAT) 020 8253 8550 Learner Support Service 020 8662 5574 www.calat.ac.uk Croydon Childminding Network Leon House, 233 High Street, Croydon CR0 9XT 020 8604 7586 Croydon Citizens Advice Bureau New Addington CAB 1a Overbury Crescent, New Addington CR0 OLR 01689 846 890 Thornton Heath CAB Strand House, Zion Road, Thornton Heath CR7 8RG 020 8683 5210 www.croydon cab.org.uk Croydon Alcohol Counselling Service 28 Wellesley Road, Croydon CR0 2AD 020 8667 9500 Croydon and Sutton Law Centre 79 Park Lane, Croydon CR0 1JG 020 8667 9226 Croydon Appliance Re-use Centre (ARC) Eurocrown House, 23 Grafton Road, Croydon CR0 3RP 020 8662 8002 www.arc-croydon.org.uk Croydon Community Drug Agency 100 Church Street, Croydon CR0 1RD 020 8686 7500 Croydon Contacts Cornerstone House, 14 Willis Road, Croydon CR0 2XX 020 8665 0984 www.croydoncontacts.com Croydon Association for Pastoral Care in Mental Health Cornerstone House, 14 Willis Road, Croydon CR0 2XX 020 8665 6718 www.croydon-apcmh.co.uk Croydon Community Health Services See NHS Croydon Croydon Careline See Croydon Council Croydon Carers Centre 12 Katharine Street, Croydon CR0 1NX 020 8688 7219 www.croydoncarerscentre.co.uk 116 How To... A Guide for Carers in Croydon 2009-2011 ADDRESS BOOK Croydon Council Services based at Taberner House; all other services listed separately. Contact Centre Taberner House, Park Lane, Croydon CR9 3JS 020 8726 6000 www.croydon.gov.uk Infrastructure Traffic Design 020 8667 8249 Adult Abuse Reporting Line 020 8760 5697 Safeguarding Adults Team 020 8760 5790 CAPS Supported Lodging Scheme 020 8726 6000 ext 63516 Sensory Impairment Team 020 8726 6500 ext 62123 Charging Helpline 020 8760 5676 Social Services for Adults 020 8726 6500 Children’s Services 020 8726 6400 Special Educational Needs 020 8726 6000 ext 62394 Community Access Service 020 8726 6000 ext 61661 Staying Put 020 8760 5505 Croycare 020 8654 7166 Support Needs Assessment and Placement Service (SNAP) 020 8760 5498 Croydon Careline 020 8726 6501 Croydon Welfare Rights Team 0800 731 5920 SAFE Project 020 8760 5505 Travel Services Team 020 8726 7100 Croydon Sports Development Team 020 8760 5592 Housing Enquiry Team 020 8726 6100 How To... A Guide for Carers in Croydon 2009-2011 117 ADDRESS BOOK Croydon Crossroads 410 Brighton Road, South Croydon CR2 6AN 020 8688 4499 Croydon Home Treatment Team Tamworth Road Resource Centre, 37 Tamworth Road, Croydon CR0 1XT 020 3228 0356 Croydon Crossroads Carer Support Service 410 Brighton Road, South Croydon CR2 6AN 020 8667 9893 Croydon Housing Aid Society Croydon and Sutton Law Centre, 79 Park Lane, Croydon CR0 1JG 020 8726 0840 Croydon International Volunteer Service 82 Clyde Road, Addiscombe CR0 6SW 020 8656 4941 www.croydonivs.org.uk Croydon Deaf Children’s Society Summit House, 50 Wandle Road, Croydon CR0 1DF 07951 611190 www.croydondeafchildren.org.uk Croydon Employment and Support Service (CESS) Crosfield, 3 Imperial Way, Croydon CR0 4RR 020 8255 5459 Croydon Generic Floating Support Service Grosvenor House, 125 High Street, Croydon CR0 9XP 020 8726 8891 www.casasupport.org.uk Croydon Hearing Resource Centre Summit House, 50 Wandle Road, Croydon CR0 1DF 020 8686 0049 www.croydonhearing.org.uk 118 Croydon Job Centre Plus 17-21 Dingwall Road, Croydon CR9 2TN 020 8700 8300 Croydon Keystrokes Cornerstone House, 14 Willis Road, Croydon CR0 2XX 020 8764 8822 www.disabilitycroydon.org.uk Croydon Libraries 020 8726 6900 Croydon Memory Service Heavers Resource Centre, 122 Selhurst Road, South Norwood SE25 6LL 020 3228 9500 Croydon Mencap 60-61 Leslie Park Road, Croydon CR0 6TP 020 8662 9201 www.croydon.cswebsites.org How To... A Guide for Carers in Croydon 2009-2011 ADDRESS BOOK Croydon Mental Health Forum c/o Croydon Voluntary Action, 97 High Street, Thornton Heath CR7 8RY 020 8683 7010 Croydon Social Services See Croydon Council Croydon Neighbourhood Care Association Central Hall, Davidson Lodge, Freemason’s Road, Croydon CR0 6PD 020 8662 1000 www.cnca.org.uk Croydon Substance Misuse Team Crosfield House, Mint Walk, Croydon CR0 1EA 020 3228 0200 Croydon NHS Walk-in Centre 45 High Street, Croydon CR0 1QD 020 8714 2888 Croydon Online www.croydononline.org Croydon Sports Development Team See Croydon Council Croydon Tramlink 020 8681 8300 www.tfl.gov.uk/trams Croydon Voluntary Action 020 8684 3862 www.cvalive.org.uk Croydon Voluntary Association for the Croydon PCT PALS Blind See Patient Advice and Liaison Service 72-74 Wellesley Road, Croydon CR0 2AR 020 8688 2486 Croydon Opportunity Group Woodlands Centre, Gilbert Scott Croydon Welfare Rights Team School, Farnborough Avenue, South See Croydon Council Croydon CR2 8HD 020 8916 0543 Crystal Centre for Children’s Services 47 St James’s Road, Croydon Croydon Register Office CR0 2UR Mint Walk, Croydon CR0 1EA 020 8274 6850 020 8726 6300 Cycling For All Croydon Shopmobility Croydon Sports Arena, Albert Road, Whitgift Car Park, Wellesley Road, South Norwood SE25 4QL Croydon CR0 2AG 020 7346 8482 020 8688 7336 www.wheelsforwellbeing.org.uk How To... A Guide for Carers in Croydon 2009-2011 119 ADDRESS BOOK Dairy Crest Doorstep Deliveries 0800 615 715 www.milkdeliveries.co.uk Day Lewis Pharmacy 1102 London Road, Norbury, London SW16 4DT 020 8764 1324 Day Lewis Pharmacy 45 Elmfield Way, Sanderstead CR2 0EJ 020 8657 2474 Department for Work and Pensions Benefit Enquiry Line 0800 88 22 00 www.dwp.gov.uk Department for Work and Pensions (for enquiries about AA and DLA) 0845 712 34 56, option 1 www.dwp.gov.uk Department of Health Publications Orderline 0300 123 1002 www.dh.gov.uk Day Lewis Pharmacy 3 High Street, South Norwood, London Dial-a-Ride SE25 6EP 0845 999 1 999 020 8653 2310 www.tfl.gov.uk Day Lewis Pharmacy 506 London Road, Thornton Heath CR7 7HQ 020 8684 2697 de Stafford Sports Centre Disability Sports Club Burntwood Lane, Caterham CR3 5YX 01883 344 355 DEMAND 01923 681800 www.demand.org.uk Department for Children, Schools and Families Publications Helpline 0845 602 2260 www.teachernet.gov.uk 120 Diamond Riding Centre Woodmansterne Road, Carshalton SM5 4DT 020 8643 7764 www.diamondcentre.org.uk Direct Payments Support Service Strand House, Zion Road, Thornton Heath CR7 8RG 020 8664 3820 www.disabilitycroydon.org.uk Directgov www.direct.gov.uk Directgov Blue Badge Map www.bluebadge.direct.gov.uk How To... A Guide for Carers in Croydon 2009-2011 ADDRESS BOOK Directory of Social Change 08450 777 707 www.dsc.org.uk Docklands Light Railway 020 7363 9700 www.tfl.gov.uk/dlr DisabilityCroydon Strand House, Zion Road, Thornton Heath CR7 8RG 020 8684 5538 www.disabilitycroydon.org.uk Driver and Vehicle Licensing Agency (DVLA) 0870 600 0301 www.dvla.gov.uk Disability Employment Advisor Jobcentre Plus, 17-21 Dingwall Road, Croydon CR9 2TN 020 8700 8362 Disability Equipment Register 01454 318 818 www.disabilityequipment.org.uk Disability Law Service 020 7791 9800 www.dls.org.uk Drug and Alcohol Action Team Carolyn House, 22-26 Dingwall Road, Croydon CR0 9XF 020 8726 7750 www.croydondaat.org.uk Drugs ‘n’ Alcohol Service (DNA) 72 Queens Road, Croydon CR0 2PR 020 8296 9655 www.offtherecordcroydon.org Disability Now 020 7619 7336 www.disabilitynow.org.uk Early Support Programme for Disabled Children Morland Road Clinic, 6 Morland Road, Croydon CR0 6NA 07799 471428 www.earlysupport.org.uk DisabledGo www.disabledgo.info Ebay www.ebay.co.uk Disabled Living Foundation 0845 130 9177 www.dlf.org.uk Elderly Accommodation Counsel 020 7820 1343 www.eac.org.uk Disabled Persons Railcard 0845 605 0525 www.disabledpersons-railcard.co.uk Electronic Medicines Compendium www.emcmedicines.org.uk How To... A Guide for Carers in Croydon 2009-2011 121 ADDRESS BOOK Emergency Minor Treatment Centre Parkway Health Centre, Parkway, New Addington CR0 0JA 020 8251 7225 Employers for Carers 020 7378 4956 www.employersforcarers.org Enterprise Swimming Club Purley Swimming Pool, 50 High Street, Purley CR8 2AA 020 8644 4851 Face 2 Face 1-8 Ramsey Court, 122 Church Street, Croydon CR0 1RF 020 8667 0207 www.croydon-homestart.co.uk Family Fund 0845 130 4542 www.familyfund.org.uk Family Information Service 10 Katharine Street, Croydon CR9 1JU 0845 1111 100 www.croydonchildcare.com First Capital Connect 0800 058 2844 www.firstcapitalconnect.co.uk Fledglings 0845 458 1124 www.fledglings.org.uk 122 Frank 0800 776 600 www.talktofrank.com Gingerbread 0800 018 5026 www.gingerbread.org.uk GuideStar UK www.guidestar.org.uk Health Visiting Team for Older People Shirley Clinic, 135 Shirley Road, Croydon CR0 7LR 020 8714 2800 Help The Aged Care Fees Advice Service 0500 76 74 76 www.helptheaged.org.uk Help with Health Costs – Low Income Scheme 0845 850 1166 www.dh.gov.uk/helpwithhealthcosts Help with Health Costs – Prescription Prepayment Scheme 0845 850 0030 www.dh.gov.uk/helpwithhealthcosts HM Revenue and Customs Advice Service 0845 010 9000 www.hmrc.gov.uk How To... A Guide for Carers in Croydon 2009-2011 ADDRESS BOOK HM Revenue and Customs Charities Helpline 0845 302 0203 option 3 www.hmrc.gov.uk Independent Complaints Advocacy Service (ICAS) 0845 337 3063 www.pohwer.net Home Safety Service FREEPOST CN2332, Croydon CR9 1DH 020 8407 1399 Independent Living Funds Rees House, 2 Morland Road CR0 6NA 020 8239 4384 www.ilf.org.uk Home-Start Croydon 1-8 Ramsay Court, 122 Church Road, Croydon CR0 1RF 020 8667 0207 www.croydon-homestart.co.uk Independent Panel for Special Education Advice (IPSEA) 0800 0184016 www.ipsea.org.uk Hospice Information Service 020 7520 8222 www.helpthehospices.org.uk Information Commissioner’s Office 08456 30 60 60 www.ico.gov.uk Hospital and Home Tuition Service The Phil Edwards Centre, 17 Sylvan Road, Upper Norwood SE19 2RU 020 8771 5603 Infrastructure Traffic Design See Croydon Council Houseproud 0800 783 7569 www.houseproud.org.uk Housing Enquiry Team See Croydon Council Inclusion Support Worker Leon House, 233 High Street, Croydon CR0 9XT 020 8604 7570 How To... A Guide for Carers in Croydon 2009-2011 Jobcentre Plus Claims Line 0800 055 6688 www.jobcentreplus.gov.uk Jobcentre Plus (for the Social Fund) 0845 608 8661 Kids Croydon Parent Partnership Service Leon House, 217 High Street, Croydon CR9 1LJ 020 8688 8288 www.kids.org.uk 123 ADDRESS BOOK Law Society 0870 333 3084 www.lawsociety.org.uk Learndirect 0800 101 901 www.learndirect.co.uk Learning Curves CALAT Croydon High Street Centre, 217 High Street, Croydon CR9 1LJ 020 8253 8560 Learning for Living 020 7294 8217 www.learningforliving.co.uk Leisure Link 020 8239 4397 www.croydononline.org/leisure Lions Club of Croydon 61 Quadrant Road, Thornton Heath CR7 7DB 020 8689 5411 Local Government Ombudsman 0845 602 1983 www.lgo.org.uk London Fire Brigade 08000 284 428 London Taxicard Scheme www.taxicard.org.uk 124 Macmillan Cancer Information and Support Service Mayday University Hospital, 530 London Road, Croydon CR7 7YE 020 8401 3441 Making Contact www.makingcontact.org Mayday Children and Families Service Mayday University Hospital, 530 London Road, Croydon CR7 7YE 020 8401 3409 Mayday University NHS Trust 530 London Road, Croydon CR7 7YE 020 8401 3000 www.maydayhospital.org.uk MedicAlert 0800 581 420 www.medicalert.org.uk Mencap Wills and Trusts Team 020 7696 6925 www.mencap.org.uk MERU 01372 725203 www.meru.org.uk Mind in Croydon 26 Pampisford Road, Purley CR8 2NE 020 8668 2210 www.mindincroydon.org.uk How To... A Guide for Carers in Croydon 2009-2011 ADDRESS BOOK Mind in Croydon Furniture Service Orchard House, 15a Purley Road, South Croydon CR2 6EZ 020 8253 8201 National Society for the Prevention of Cruelty to Children (NSPCC) 0808 800 5000 www.nspcc.org.uk Mobilise 01508 489 449 www.mobilise.info Network 81 0845 077 4055 www.network81.org Mobility Information Service 01743 340269 www.mis.org.uk NHFA Care Advice Line 0800 998 833 www.nhfa.co.uk Motability 0845 456 4566 www.motability.co.uk NHS Croydon Leon House, 233 High Street, Croydon CR0 9XT 020 8274 6000 www.croydon.nhs.uk Naidex www.naidex.co.uk National Debtline 0808 808 4000 www.nationaldebtline.co.uk National Express 08717 818 179 www.nationalexpress.com National Extension College 0800 389 2839 www.nec.ac.uk National Rail Enquiries 08457 48 49 50 www.nationalrail.co.uk How To... A Guide for Carers in Croydon 2009-2011 NHS Croydon Community Health Services 12-18 Lennard Road, Croydon CR9 2RS 020 8274 6300 www.croydon.nhs.uk NHS Direct 0845 46 47 www.nhs.uk NSF Carers Group Courtyard House, 1d Church Road, Croydon CR0 1SG 020 8660 3746 Office of the Public Guardian (OPG) 0845 330 2900 www.publicguardian.gov.uk 125 ADDRESS BOOK Older People’s Network (OPeN) c/o Croydon Voluntary Action, 97 High Street, Thornton Heath CR7 8RY 020 8683 7015 PALS at South London and Maudsley (SLaM) NHS Foundation Trust 0800 731 2864 Pension Service 0800 99 1234 www.thepensionservice.gov.uk Open University 0845 300 60 90 www.open.ac.uk Pension Service for Croydon Boundary House, 317-321 London Road, Mitcham CR4 4YF 020 8687 3641 Oyster Card Helpline 0845 330 9876 www.tfl.gov.uk/discountcard Parents in Partnership 26 West Hill, South Croydon CR2 0SA 020 8651 6198 www.pipcroydon.btik.com Pillbox UK 0800 1123147 www.medicineblisterpacks.co.uk Portage and Early Childhood Team Leon House, 233 High Street, Croydon CR0 9XT 020 8726 7401 Partnership for Older People (POP) Service Central Hall, Davidson Lodge, Freemason’s Road, Croydon CR0 6PD 020 8654 4440 www.croydonpop.org.uk Princess Royal Trust for Carers 0844 800 4361 www.carers.org Patient Advice and Liaison Service (PALS) and Complaints Service Leon House, 233 High Street, Croydon CR0 9XT 020 8274 6333 Queen Elizabeth Foundation Mobility Centre Damson Way, Fountain Drive, Carshalton SM5 4NR 020 8770 1151 www.qef.org.uk PALS at Mayday Healthcare NHS Trust Mayday University Hospital, 530 Radar London Road, Croydon CR7 7YE 020 7250 3222 020 8401 3210 www.radar.org.uk 126 How To... A Guide for Carers in Croydon 2009-2011 ADDRESS BOOK Rainbow Trust 01372 453309 www.rainbowtrust.org.uk Register Services Orchard Hill, Fountain Drive, Carshalton SM5 4NN 020 8770 8237 www.registerservices.nhs.uk Relatives and Residents Association 020 7359 8136 www.relres.org REMAP 0845 1300 456 www.remap.org.uk Respite Association 01406 701944 www.respiteassociation.org Rethink Croydon Carers Support Service Courtyard House, 1d Church Road, Croydon CR0 1SG 020 8649 9339, option 3 www.carerscontactline.co.uk/ www.rethink.org Rethink Croydon Counselling Service Courtyard House, 1d Church Road, Croydon CR0 1SG 020 8649 9339, option 4 www.carerscontactline.co.uk/ www.rethink.org How To... A Guide for Carers in Croydon 2009-2011 Royal National Institiute for the Deaf (RNID) 0808 808 0123 Textphone 0808 808 9000 www.rnid.org.uk Royal National Institute of Blind People (RNIB) 0303 123 9999 www.rnib.org.uk SAFE Project See Croydon Council Safeguarding Adults Team See Croydon Council Samaritans 08457 90 90 90 www.samaritans.org Sane 020 7357 1002 Saneline 0845 767 8000 www.sane.org.uk Saturn V The Rebound Hall, 1 William Road, Caterham CR3 5NN 08454 30 20 31 www.saturnv.co.uk Scope 0808 3333 www.scope.org.uk Senior Railcard 0870 942 3648 www.senior-railcard.co.uk 127 ADDRESS BOOK Sense 0845 127 0060 Textphone 0845 127 0062 www.sense.org.uk South London and Maudsley (SLaM) NHS Foundation Trust 020 3228 6000 www.slam.nhs.uk Shape 0845 521 3457 www.shapearts.org.uk SLaM Information Line 0800 731 2864 Shelter 0808 800 4444 Southeastern Railway 0800 783 4524 www.southeasternrailway.co.uk Sibs 01535 645 453 www.sibs.org.uk Southern Railway 0800 138 1016 www.southernrailway.com Social Fund See Jobcentre Plus Social Fund Spectrum CVA Resource Centre, 82 London Road, Croydon CR0 2TB 07976 912915 or 07906 276202 Social Information on Disability 0800 0439395 www.asksid.org.uk Social Services for Adults See Croydon Council Speech and Language Therapy for Adults Mayday University Hospital, 530 London Road, Croydon CR7 7YE 020 8401 3103 Soldiers, Sailors, Airmen and Families Association (SSAFA) Speech and Language Therapy for 0845 1300 975 Children www.ssafa.org.uk See Crystal Centre for Children’s Services South East Cancer Help Centre 2 Purley Road, Purley CR8 2HA St Christopher’s Hospice 020 8668 0974 51-59 Lawrie Park Road, Sydenham, www.sechc.org.uk London SE26 6DZ 020 8768 4500 www.stchristophers.org.uk 128 How To... A Guide for Carers in Croydon 2009-2011 ADDRESS BOOK Status Employment 6 West Way Gardens, Shirley CR0 8RA 020 8655 3344 www.statusemployment.org.uk Staying Put See Croydon Council Student Finance England 0845 300 50 90 www.direct.gov.uk/studentfinance Support Needs Assessment and Placement Service (SNAP) See Croydon Council SureStart Broad Green 89 London Road, Croydon CR0 2RF 020 8649 8441 Tax Credit Helpline 0845 300 3900 www.taxcredits.inlandrevenue.gov.uk Talk 2 Croydon www.talk2croydon.co.uk Taxi One Number 0871 871 8710 Thames Water 0845 9200 888 www.thameswater.co.uk Thornton Heath Leisure Centre High Street, Thornton Heath CR7 8LF 020 8689 5300 How To... A Guide for Carers in Croydon 2009-2011 Transport for All 020 7737 2339 www.transportforall.com Transport for London Travel Information Call Centre 020 7222 1234 www.tfl.gov.uk Travel Mentoring Scheme 020 7027 5822 www.tfl.gov.uk Travel Services Team See Croydon Council Treetops Children’s Centre The Lodge, Geoffrey Harris House, Coombe Road, Croydon CR0 5RD 020 8688 3263 Turn2Us www.turn2us.org.uk TV Licensing 0844 800 6790 www.tvlicensing.co.uk U Can Do IT 020 7730 7766 www.ucandoit.org.uk Victoria Coach Station 020 7027 2520 www.tfl.gov.uk 129 ADDRESS BOOK Voices Forum Town Hall, Katharine Street, Croydon CR9 3JS 020 8464 7052 W4B-The TV and Radio Charity 01708 621 101 www.w4b.org.uk Waggy Tails Club Emmanuel Church Hall, Normanton Road, South Croydon CR2 7AF 020 8651 6728 www.waggytailsclub.co.uk Willow Children’s Bereavement Service Morland Road Clinic, 6 Morland Road, Croydon CR0 6NA 020 8714 2501 Wiltshire Farm Foods 0800 678 3060 www.wiltshirefarmfoods.com Women’s Service 158 Foxley Lane, Purley CR8 3NF 020 3228 5500 Welfare Rights Team See Croydon Council Working Families 020 7017 0072 www.workingfamilies.org.uk Wheelchair Service See Access Ability Centre Young Carers www.youngcarers.net Whitgift Foundation North End, Croydon CR9 1SS 020 8680 8499 www.whitgiftfoundation.co.uk Young Carers Support Project Courtyard House, 1d Church Road, Croydon CR0 1SG 020 8649 9339, option 2 www.carerscontactline.co.uk/ www.offtherecordcroydon.org.uk Whitgift SNAP Whitgift School, Haling Road, South Croydon CR2 6YT 020 8405 6933 www.whitgiftsnap.org.uk Whizz-Kidz 0845 052 1231 www.whizz-kidz.org.uk 130 Your Local Cinema www.yourlocalcinema.com Youth Disabilities Project Waddon Youth Service, 85 Waddon Way, Croydon CR0 4HY 07990 790183 How To... A Guide for Carers in Croydon 2009-2011 We hope that you have found this guide helpful. If you have any comments you would like to pass on to us please feel free to do so. We welcome feedback and will use it to make improvements to the next edition of the How To… A Guide for Carers. If you would like to request another copy, for yourself or someone else, we will be happy to send individual copies in the post. You can also view this guide online at www.carerscontactline.co.uk. If you have any questions that are not answered in this guide, we are here to help. Carers’ Information Service How To... A Guide for Carers in Croydon 2009 - 2011 If you care���������������� for someone who is ill, frail or disabled then you are a carer. The Carers’ Information Service supports carers in Croydon; to find out how we can help you, or to request copies of ������������������ this guide please contact us. ��������������������������� ��������������� �������������� ��������������� ������������������ ����������������������������������� ������������������������������������ Carers’ Information Service Courtyard House, 1d Church Road, Croydon CR0 1SG 020 8649 9339, option 1 | www.carerscontactline.co.uk Whitgift Comp CIS.indd 1 Registered Charity No 3126121 �������������������� 7/5/09 1
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