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2014 ISONG
World Congress on Nursing and Genomics
Nurses
Education
November 7-9, 2014
Scottsdale, Arizona USA
2014 ISONG
Research
Practice
World Congress on
Nursing and Genomics
Ethics
CONGRESS BROCHURE
Doubletree by Hilton Paradise Valley
Scottsdale, Arizona USA
November 7-9, 2014
Diagnosis
Care
Policy
Science
Therapy
Counseling
Treatment
Families
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2014 ISONG
World Congress on Nursing and Genomics
November 7-9, 2014
Scottsdale, Arizona USA
Congress Invitation
On behalf of the International Society of Nurses in Genetics (ISONG) Program Committee and the Board of Directors,
it gives us great pleasure to invite nurses in genetics and geneticists worldwide to the Society’s World Congress on
Nursing and Genomics in Scottsdale, Arizona.
ISONG is a global specialty organization dedicated to fostering the scientific and professional growth in human
genetics and genomics worldwide. The Congress provides a forum for nurses and other healthcare professionals
dedicated to all aspects of human genetics including basic science research, clinical research, clinical practice and
professional and lay education.
The 2014 congress encompasses three days of exciting state of the science invited presentations, panel sessions,
scientific presentations, and professional interactions. New this year are focused practice and education sessions
including: Emerging Technology, Research Oncology, Advanced Practice Oncology, Scope of Genomic Practice, Culture
and Genetic Testing, Case Studies and Genetic Literacy. In addition there is a new opportunity to participate in the
Interactive Posters. Attendees will contribute to strategic thinking by posting individual comments and answers to
genomic-related questions and then watch as a poster develops throughout the Congress. A summary of the final poster
content, comments, and ideas will be revealed and discussed during a plenary session on Sunday morning.
The 2014 World Congress will help attendees to:
1. Present and discuss research, education and clinical topics that promote the knowledge and scientific foundation for
nursing genetic/genomic practice and scholarship.
2. Highlight recent genetic scientific advances globally and the implications for nursing research and practice.
3. Provide a forum for nurses and other healthcare providers globally to interact, network, share experiences and
discuss the state of the science related to nursing and genetics/genomics.
4. Identify genetic discoveries that influence the biology of health and disease.
5. Provide a forum for debate on the application and use of genomic technologies and information and the implications
for health and wellbeing of communities, cultures and populations, from societal and ethical perspectives.
We hope you will be able to participate in the Congress and look forward to welcoming you to Scottsdale.
MaryMindy
Mary T. Quinn Griffin, PhD, RN, FAAN, ANEF Mindy Tinkle, PhD, RN, WHNP-BC, FAAN
Congress Co-ChairCongress Co-Chair
Congress Registration and Fees
Early registration deadline: September 2
Take advantage of the registration discount and register early!
Before September 2
After September 2
ISONG active dues member....................$495.00................................ $525.00
Non-member (joining now).....................$645.00................................ $675.00
(Includes membership fee)
Podium / Abstract Presenter...................$495.00................................ $525.00
Full-time students......................................$295.00 (With copy of University/Program ID card)
On-line registration and payment is available at: http://isong.wildapricot.org/event-902760/Registration.
You will receive a confirmation letter from ISONG after you have registered. If you do not receive a receipt
of your registration, please call us at +1 412-344-1414 or via email at: [email protected].
All cancellations must be received in writing. A $50.00 USD administrative fee will be deducted from
cancellations received up to 7 days in advance. After that time, no refunds can be made.
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2014 ISONG
World Congress on Nursing and Genomics
November 7-9, 2014
Scottsdale, Arizona USA
2014 Congress Host Hotel and Travel Details
Doubletree by Hilton Paradise Valley – Scottsdale
5401 N. Scottsdale Road
Scottsdale, Arizona 85250
Phone +1 480-947-5400 (main) or +1 800-222-8733
Room Rate: $139 (USD) plus tax per night
Cut-off date for the Group room rate: October 15, 2014
Reserve your room early! The special conference rate and room availability cannot be guaranteed after
the October 15, 2014 cut-off date. For hotel reservations, go to: http://doubletree.hilton.com/en/dt/groups/
personalized/P/PHXSJDTISN-20141105/index.jhtml?WT.mc_id=POG
Check in: 4:00PM Check out: 12:00PM
Scottsdale offers a warm welcome stay in tranquil surroundings. Relax and recharge at this beautifully
landscaped property surrounded by lavish courtyards, cactus and tropical palm trees.
Resort highlights include:
• AAA Four Diamond Scottsdale, Arizona resort set on 22 lush acres
• 1.5 miles from Old Town Scottsdale with free shuttle (2 mile radius)
• Tranquil environment with 2 outdoor pools and health club with spa treatments
• Private balcony or patio in all rooms offer breathtaking Arizona views
• Leisure amenities include putting green, racquetball, basketball and tennis
Located in the heart of the city, great dining nightlife and shopping are just steps from the Doubletree
resort. The resort offers a great location less than two miles from downtown Scottsdale and the complimentary
resort shuttle is great for exploring the local area. Head for Old Town Scottsdale and enjoy the influence of the
Old West as you stroll around the unique shops.
Visit Scottsdale Fashion Square, one of the largest shopping malls in the Southwest. Downtown Scottsdale
pulses with a vibrant energy — by day, shopping, gallery hopping and dining alfresco are among the most
popular pastimes. After dark, Downtown takes on a whole new glow with evening Art Walks, performing
arts and an array of sophisticated dining options. Hike the trails in the Sonoran Desert or in the imposing
Camelback Mountain and be rewarded with breathtaking views over the city. Or catch a ride on the free
Scottsdale Day Tripper Trolley with a stop near the resort; it’s a great way to see all the things nearby.
Hotel Parking
Valet and Self Parking is offered complimentary at the Doubletree Scottsdale resort.
Travel Details
Phoenix Sky Harbor International Airport is approximately 12 miles (just 20 minutes) from the resort.
Super Shuttle and Taxi transportation is located near the baggage claim area. Super Shuttle is available
daily from 7:00AM to 11:00PM. A reservation is needed for off-peak times. Discounted rates are available for
shuttle reservations made in advance. Contact Super Shuttle for reservations by calling: +1 602-232-4610 or
www.supershuttle.com. Sedan service is available by calling the Doubletree resort and by making a reservation with the
concierge. Approximate costs are as follows:
Super Shuttle: $17 Taxi: $40 Sedan Service: $35
All rates are quoted in USD and are subject to change.
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2014 ISONG
World Congress on Nursing and Genomics
November 7-9, 2014
Scottsdale, Arizona USA
CONGRESS SESSION DESCRIPTIONS
Focused Session:
The Scoop on Our Scope: What’s New with the
Scope of Practice for Genetics Nursing
This session will offer information on the scope
of practice of Genetics/Genomics Nursing, both
nationally and internationally. Presentations will
include: An update of the work ISONG has been
doing with the ANA to update our scope and
standards, the scope of genomics/genetics nursing in
the context of the overall focus in the US on working
at the top of our licensure, and Current healthcare
reform and an international perspective detailing the
current trends in the UK and Europe on the provision
of genetic counseling services. At the conclusion of
the presentations there will be an opportunity for
questions and discussions.
We want to encourage a lively discussion after the
presentations. Please bring your questions!
Abstract Sessions
The 2014 Abstract Sessions reflect a focus on the
titles as listed and offer current and late breaking
information in Genetics/Genomics. There were over
70 abstracts submitted. Those that were accepted for
podium presentations will be presented throughout
the congress. Those that were accepted for poster
presentation will be displayed and highlighted
during the Poster Session and Reception on Saturday
evening.
Focused Session:
Case Studies to Enhance Education
This session is targeted to nurse educators and
clinicians who provide health education to individual
patients and populations. It provides the attendee
real world examples of the use of case studies in
education of nursing students across the educational
spectrum. International faculty will present case
studies they have used in nursing education with a
focus on single gene disorders, cardiovascular health,
neurologic health and pharmacogenomics across the
curriculum.
The attendee will gain knowledge about
important components of case studies, ways to
incorporate them into learning experiences, and
strengths and weaknesses of their use.
Focused Session:
Research Oncology: The Science of Symptoms
The Science of Symptoms is a two hour
symposium presented by nurse researchers who are
studying the association of genetic predictors and
symptoms experienced by patients who are cancer
survivors. Participants who attend this session will
understand our current knowledge of the genomic
risk factors of some of the more frequently occurring
symptoms including pain, nausea, vomiting,
depression, quality of life and cognitive function. In
addition, we will discuss the science of symptoms
research from a funding perspective.
This symposium has been primarily designed for
nurses who work with or study patients with cancer,
but nurses from all areas will be fascinated to learn
about potential genetic links to these symptoms that
may occur in any patient population.
Focused Session: Culture and Genetic Testing
This session will provide a global perspective and
discuss minority attitudes toward genetic testing.
Focused Session: Advance Practice Oncology
This session will be held during one of the
concurrent sessions on Saturday afternoon and will
focus on Advanced Practice Oncology.
Focused Session: Emerging Technology
This session will be held during one of the
concurrent sessions on Saturday afternoon and will
focus on Emerging Technology and Next Generation
Sequencing will be highlighted.
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2014 ISONG
World Congress on Nursing and Genomics
November 7-9, 2014
Scottsdale, Arizona USA
ISONG Research Awards
Continuing Education Credits
Fostering scientific research in genetics is an important
part of ISONG’s mission. In 2014, ISONG embarked on a
Nursing Research Directed Donations Campaign. With the
generous support from ISONG members who donated to
support their fellow members, ISONG, as an organization,
will be able to fund a grant for early career researchers in
addition to the other grants available. The Research Grant
applications are available to ISONG members. All grant
submissions undergo rigorous peer review by a committee
of Research Committee members. Each award is $2,500.
Grant information and an application form can be found at
http://www.isong.org/ISONG_research_grant_program.php.
This learning activity will be developed in
collaboration with the University of Pittsburgh School of
Nursing.
The University of Pittsburgh School of Nursing, is
accredited as a provider of continuing nursing education
by the American Nurses Credentialing Center’s
Commission on Accreditation.
Exhibits
Please visit and support our sponsors and exhibitors in
the exhibit hall during the congress. This is an opportunity
for attendees and companies to interact personally. Visit
University Row, a reserved section in the exhibit hall which
will highlight genetic nursing programs.
Scientific Posters
All posters will be available for review throughout
the congress. Authors will be available for small group
discussions about their posters during the Poster Session and
Reception on Saturday evening. Posters must be removed by
the end the afternoon break on Sunday.
!
*New
ISONG Raffle / Silent Auction
Attendees will be given an opportunity to participate
in the exciting raffle / silent auction. ISONG members hail
from all over the world and usually donate an array of
unique items. All proceeds from the raffle / silent auction
will directly benefit the on-going goals and objectives of
ISONG.
Items will range in value, raffle tickets or silent auction
payments can be made in US funds only by cash, check
(drawn on a US Bank) or credit card.
Interactive Poster Session
New this year to the ISONG World Congress, four
(4) interactive posters will provide attendees with the
opportunity to contribute to strategic thinking in the key
areas of Education, Research, Professional Practice and
Ethics & Public Policy. Each of these themes will have
a poster on display that poses a question on a priority
issue that we want you to help answer. As you view each
poster, you can add your comments and watch how the
poster develops. The final posters will be summarized and
discussed during the plenary session on Sunday morning.
Your opinion, experience and expertise is important
to the success of this new approach to conference posters!
Be the first to experience this innovative approach to
knowledge mobilization.
Donate A Raffle / Silent Auction Item
Please consider making a donation to the ISONG raffle
or silent auction. Bring something from your hometown,
country or your hospital or academic institution. Make
sure that your item will travel well – meaning it is compact,
lightweight, and can be easily transported in a suitcase.
Pictures, books, jewelry, music CDs, t-shirts, sweaters,
chocolates, gift certificates, handmade items, autographed
items and cultural items are just a few popular suggestions.
We prefer that you carry the item with you to the congress,
but we will need a description of the item and its value in
advance. Please send the description and value to ISONG
headquarters via email to [email protected], please include
ISONG Congress - Item Description in the subject line.
Journal of Nursing Scholarship Award
The Journal of Nursing Scholarship is awarding a free
online subscription for one year to an ISONG member that
is an emerging nurse scholar who had an abstract accepted
for presentation at the ISONG congress this year. JNS is
very supportive of disseminating genetic and genomic
information and we are very pleased with this opportunity.
This award will be announced at the Congress. Eligible
abstracts for this award will be denoted in the program.
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2014 ISONG
World Congress on Nursing and Genomics
November 7-9, 2014
Scottsdale, Arizona USA
CONGRESS AGENDA
Thursday, November 6, 2014
4:00PM – 8:00PM
Congress Registration
Friday, November 7, 2014
7:00AM – 6:30PM
Congress Registration
10:45AM – 12:15PM
Robert Wood Johnson Foundation Panel Jump-Starting Your Career In Genetics
As A Nurse Scientist
Kathleen T. Hickey, EdD, FNP, ANP, FAHA, FAAN
Assistant Professor of Nursing
Columbia University School of Nursing
Nurse Practitioner Cardiac Electrophysiology
Robert Wood Johnson Nurse Faculty Alumna
Columbia University Medical Center
New York, New York USA
7:15AM – 8:00AM
Continental Breakfast / Visit Exhibits / Posters /
Interactive Posters
8:00AM – 8:30AM
Opening Remarks / President’s Welcome
Maggie Kirk, United Kingdom
8:30AM – 9:15AM
Keynote Presentation
Margaret M. Heitkemper, RN, PhD, FAAN
Professor and Chairperson
Chair - BNHS; Director - Center for Research on
Management of Sleep Disturbances
Elizabeth Sterling Soule Endowed Chair
Biobehavioral Nursing and Health Systems
University of Washington
Seattle, Washington USA
Maria Katapodi, PhD, RN, FAAN
Associate Professor
Robert Wood Johnson Foundation Nurse Faculty Scholar 2010
Division of Acute, Critical, and Long-term Care
University of Michigan School of Nursing
Ann Arbor, Michigan USA
Jacquelyn Taylor, PhD, PNP-BC, RN, FAAN
Associate Professor of Nursing
Robert Wood Johnson Foundation
Nurse Faculty Scholar Division
Primary Care Yale School of Nursing
Yale University
West Haven, Connecticut USA
Taura Barr, PhD
Assistant Professor
West Virginia University
School of Nursing
Center for Neuroscience
Morgantown, West Virginia USA
9:15AM – 9:30AM
Interactive Poster Session - Introduction
Maggie Kirk, PhD, BSc (Hons), Dip N,
Cert. Counselling, RGN, FRCN
Professor of Genetics Education
Genomics Policy Unit, Faculty of
Life Sciences & Education
University of South Wales, United Kingdom
9:30AM – 10:00AM
Refreshment Break/ Visit Exhibits / Posters /
Interactive Posters
10:00AM – 10:45AM
Plenary Session: Genetic Predictions Using GWAS:
Fact or Fiction
A. Cecile J.W. Janssens, MA, MSc, PhD
Professor of Translational Epidemiology
Emory University, Rollins School of Public Health
Department of Epidemiology
Atlanta, Georgia USA
12:15PM – 1:30PM
Lunch / Networking
VU University Medical Center
Department of Clinical Genetics
Amsterdam, Netherlands
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2014 ISONG
World Congress on Nursing and Genomics
November 7-9, 2014
Scottsdale, Arizona USA
CONGRESS AGENDA
Friday, November 7, 2014
Focused Session —
Culture and Genetic
Testing
Focused Session —
Abstract Session —
The Scoop on Our Scope: Complexities of Genomic
What’s New with the
Care
Scope of Practice
For Genetics Nursing
1:30PM – 2:50PM
Concurrent Sessions
2:50PM – 3:25PM
3:25PM – 4:45PM
Concurrent Sessions
5:00PM – 6:30PM
Refreshment Break / Visit Exhibits / Posters / Interactive Posters
Abstract Session —
Genomics: Family
Perspectives
Focused Session —
Case Studies To Enhance
Education
Welcome Reception
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Abstract Session —
Genomic Pathways
2014 ISONG
World Congress on Nursing and Genomics
November 7-9, 2014
Scottsdale, Arizona USA
CONGRESS AGENDA
Saturday, November 8, 2014
7:15AM – 6:30PM
Congress Registration
7:15AM – 8:00AM
Continental Breakfast /
Visit Exhibits / Posters /
Interactive Posters
8:00AM – 8:05AM
Announcements
10:10AM – 12:10PM
Concurrent Sessions
12:10PM – 2:00PM
2:00PM – 3:20PM
Concurrent Sessions
3:20PM – 3:50PM
3:50PM – 5:10PM
Concurrent Sessions
5:10PM – 6:30PM
8:05AM – 8:50AM Keynote Presentation –
Can Genomic Markers Be Used to
Improve Symptom Management
in Oncology Patients?
Christine Miaskowski, RN, PhD, FAAN
Clinical Research Professor
Associate Dean for Academic
Affairs
Professor and Sharon A. Lamb
Endowed Chair in Nursing
University of California at
San Francisco
San Francisco, California USA
Focused Session —
Research Oncology: The
Science of Symptoms
8:50AM – 9:35AM
Plenary Session –
Personal Genetic Information:
Its Power, Promise and Problems
Sandra Daack-Hirsch PhD, RN
Associate Professor
University of Iowa
College of Nursing
Iowa City, Iowa USA
9:35AM - 10:10AM
Refreshment Break /
Visit Exhibits / Posters/
Interactive Posters
Abstract Session —
Genomics Education
Abstract Session —
Genomics in Practice
Business Lunch / Research Awards
Focused Session —
Emerging Technology –
Next Gen Sequencing
Focused Session —
Advanced Practice
Oncology
Abstract Session —
Genomics and Chronic
Disease
Refreshment Break / Visit Exhibits / Posters / Interactive Posters
Focused Session —
Focused Session —
Genetic / Genomic
Advanced Practice
Literacy: What Do Health Oncology (Continued)
Professionals Need To
Know
Poster Session and Reception
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Abstract Session —
Perinatal Genomics
2014 ISONG
World Congress on Nursing and Genomics
November 7-9, 2014
Scottsdale, Arizona USA
CONGRESS AGENDA
Sunday, November 9, 2014
7:00AM – 4:00PM
Congress Registration
9:45AM – 10:15AM
Refreshment Break
7:00AM – 8:00AM
Continental Breakfast / Visit Exhibits / Posters
10:15AM – 11:15AM
Interactive Posters Presentations
Education, Research, Professional Practice and Ethics
and Public Policy
Moderator: Maggie Kirk
8:00AM – 8:30AM
Incoming President Address
Sheila Alexander, PhD, RN
Assistant Professor
University of Pittsburgh School of Nursing
Pittsburgh, Pennsylvania USA
11:15AM – 12:00PM
Committee Meetings
12:00PM – 1:00PM
Lunch / Networking
8:30AM – 9:45AM
ELSI – Ethical, Legal and Social Issues
Maria Villegas, MeD, PhD (c)
Director
Policy Research Center
National Congress for American Indians
Washington, DC USA
1:00PM – 2:20PM
Concurrent Sessions
2:20PM – 2:30PM
Abstract Session –
Genomics: Client
Attitudes and
Understanding
Abstract Session –
Epigenetics
Refreshment Break
2:30PM – 3:30PM
Closing Keynote: Brain Imaging, Genomics and the
Prevention of Alzheimer’s Disease
Eric M. Reiman, MD
Executive Director, Banner Alzheimer’s Institute
CEO, Banner Research
Clinical Director, Neurogenomics Division,
Translational Genomics Research Institute (TGen)
Professor of Psychiatry, University of Arizona
Director, Arizona Alzheimer’s Consortium
Phoenix, Arizona USA
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Abstract Session –
Genomics in the
Workforce
2014 ISONG
World Congress on Nursing and Genomics
November 7-9, 2014
Scottsdale, Arizona USA
ISONG acknowledges the generosity and support
from the
2014 ISONG Congress Sponsors
Inspiring Excellence, Exceeding Expectations
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2014 ISONG
World Congress on Nursing and Genomics
November 7-9, 2014
Scottsdale, Arizona USA
2014 ISONG Congress Co-Chairs
Mary T. Quinn Griffin, PhD, RN, FAAN, ANEF
Case Western Reserve University
Cleveland, Ohio USA
Mindy Tinkle, PhD, RN, WHNP-BC, FAAN
University of New Mexico
Albuquerque, New Mexico USA
2014 Congress Committee
Sivia Barnoy, RN, PhD
Tel-Aviv University
Tel-Aviv, Israel
Maggie Kirk, PhD, BSc (Hons), Dip N,
Cert. Counselling, RGN, FRCN
University of South Wales
Pontypridd, Wales United Kingdom
Julie Eggert, PhD, GNP-BC, AOCN
Clemson University
Clemson, South Carolina USA
Deborah Tamura, MS, RN
National Institutes of Health
Bethesda, Maryland USA
Kathleen T. Hickey, EdD, FNP, ANP, FAHA, FAAN
Columbia University
Robert Wood Johnson Nurse Faculty Alumna
New York, New York USA
Linda D. Ward, PhD, ARNP
Washington State University
Spokane, Washington USA
Susan W. Wesmiller, PhD, RN
University of Pittsburgh
Pittsburgh, Pennsylvania USA
ISONG Board of Directors
President
Maggie Kirk, PhD, BSc (Hons), Dip N,
Cert. Counselling, RGN, FRCN
University of South Wales
Pontypridd, Wales United Kingdom
Board Members at Large
Sandra Daack-Hirsch, PhD, RN
University of Iowa
Iowa City, Iowa USA
Jeanine Santelli, PhD, ANP-BC, GNP-BC
Nazareth College
Rochester, New York USA
Past-President
Kathleen T. Hickey, EdD, FNP, ANP, FAHA, FAAN
Columbia University
Robert Wood Johnson Nurse Faculty Alumna
New York, New York USA
Executive Director
Beth A. Kassalen, MBA
President-Elect
Sheila Alexander, PhD, RN
University of Pittsburgh
Pittsburgh, Pennsylvania USA
ISONG Administration
Linda Mason
Debbie Zaparoni
Treasurer
Mindy Tinkle, PhD, RN, WHNP-BC
University of New Mexico
Albuquerque, New Mexico USA
ISONG
461 Cochran Road, Box 246
Pittsburgh, Pennsylvania 15228 USA
+1 412-344-1414
Secretary
Sandy Founds, CNM, FNP, PhD
University of Pittsburgh
Pittsburgh, Pennsylvania USA
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