The trouble with dying The Sun Life Direct Cost of Dying Survey 2011 Welcome to the Sun Life Direct Cost of Dying Survey 2011. This is our 5th Annual Survey into the cost of dying and End of Life Planning. As an organisation which is neither a funeral director, legal services provider nor a government agency, Sun Life Direct occupies a special position in the debate about death and dying. We have valuable information and insights into consumer behaviour which we are happy to share with those charged with developing strategies to help defuse the looming end of life crisis. 2 Contents Foreword – The basis for the research 4 6 Why the end of life matters – Outline of principle findings 8 8 The Cost of Dying –Non-discretionary funeral costs, discretionary funeral costs and estate administration costs – UK national average cost of dying 2007-2011 – Average Funeral Price – Size of the market 10 10 11 11 12 Changes to The Cost of Dying – Non-discretionary funeral costs – Discretionary funeral costs – Estate Administration costs – Increases in the costs of cremations – Sensitivity of costs to economic growth – Impact of technology – Legal Expenses – Funding funeral costs 13 13 14 14 15 15 16 16 17 How do we see the journey to old age and death? – The conventional wisdom – Stages on the journey to death – Women are different! – Death: someone else’s problem? –Can we count on traditional social networks in the future? 18 18 19 21 22 25 Taking control can be empowering – What does taking control mean? – Who to talk to? – Who should foot the bill for old age and death? 26 27 27 28 The basis for a plan – The effect of affluence on planning – Barriers to planning – Those that cannot plan 30 31 34 35 Conclusion 36 About the authors 38 3 Foreword The report illustrates how people in the UK are approaching the issue of End of Life Planning against a backdrop of continuing above-inflation rise in the costs associated with dying. The cost of dying in 2011 was £7,248. This is £436 more than 2010, and the highest figure since our annual survey began five years ago. This figure incorporates a 61% increase in non discretionary funeral costs over the past seven years. Our research suggests that nearly one in five (over 100,000 people a year) struggle to pay for the cost of a funeral. What is more, we appear to have confused and contradictory attitudes as to who is responsible for – and what role we, our families and the State should play in – planning for our later years. Given that the number of deaths each year is set to rise by 17% in the next two decades as a consequence of the UK’s ageing demographic, the problem of financing the end of life is set to worsen1. In simple terms, the nation is facing an End of Life Time Bomb. We have commissioned research with the principal aim of contributing to the growing national debate on End of Life Planning, which we anticipate will be of value to the general public and policymakers alike. Source: 1 4 omes B and Higginson I (2008) Where people G die [1974 2030]: past trends, future projections and implications for care. Palliative Medicine 22: 33-41. For more information, contact Simon Cox, Head of Life Planning at Sun Life Direct on 07977 917 482 or Paul Riddell, Head of PR and Communications at AXA UK on 01256 798 442. Foreword Specifically, the report: Outlines why we need to be paying attention to the cost of dying now; Details how the cost of dying continues to rise well ahead of inflation; Demonstrates that many of us are not paying sufficient attention towards the broader matter of End of Life Planning (by which we mean the provision of care, the cost of dying and the handling of our affairs pre and post death where we are no longer able to do so ourselves); Indicates who we turn to for advice and support on end of life matters; Examines triggers and barriers to planning for the end of life; Suggests why so many of us are not making adequate provision for our end of life by drawing attention to often contradictory attitudes we have towards the role of our families, the State and ourselves in planning for our final years; Makes observations and suggestions to policymakers and the general public on how End of Life Planning might be encouraged. 5 The basis for the research At the beginning of 2011 Sun Life Direct held a round table debate with recognised industry experts to discuss ‘the trouble with dying’. The debate was based on the proposed journey illustrated by the schematic below. Observations and conclusions from this event underpinned the research that follows. Illness House purchase Divorce Consciousness of Own Mortality Marriage Death of a relative Children What do they do about it? Trigger Plan Don’t Plan Driven by Trigger Need Education Apathy Funeral Planning Care Home Children Retirement Wills Age LPA Death Review of Plan Driven by Trigger Hospice Cost Mortgage Redundancy Illness Income Income 6 Funeral Planning Funding Hospice Care Home Funding Social Fund Funeral Cost Estate Admin Post Funeral Re-distribution of assets Dying Personal Wishes Onset of ill health Foreword About some key issues The round table debate allowed us to shape specific issues as a basis for a new piece of research to broaden our analysis beyond the cost of dying. The cost of dying was again established using two surveys; the first contacting a panel of funeral directors in 10 regions and the second asking a sample of UK adults aged 18 and over who had been responsible for planning a funeral and administering an estate. In our new research we asked a sample of UK adults aged 40 and above about their attitudes and behaviours on the journey towards death. We asked a range of questions about a number of topics, including; attitudes towards getting older; the importance for later life planning; specific arrangements made; barriers to planning; trustworthy and convenient sources of provision; and who should foot the bill. Specifically we have organised these into five end of life planning issues: Five end of life planning issues Referred to in the document as: AWho will handle your affairs if you are unable to care for yourself due to illness (physical and/or mental) when you are older? A – Physical and Mental incapacity BWhere you will live and be cared for if you are unable to care for yourself in old age (e.g., care home, with relatives, etc.)? C – Protection of Assets (Wills) CWhat will happen to your financial assets and belongings after you have died (e.g. a Will)? E – Funeral costs B – Where cared for D – Care costs DHow your care will be paid for if you are unable to care for yourself in old age in order to prevent the costs being met from your savings or personal possessions (e.g. your house)? EHow your funeral will be paid for/who will pay for it? The responses to these questions are explored fully starting on page 19 “How we see the journey to old age and death”. However, we introduce our report by looking at “Why the end of life matters” followed by presenting the 2011 cost of dying results. Simon Cox Dr Kate Woodthorpe Head of Life Planning at Sun Life Direct Lecturer in Sociology, Centre for Death and Society at the University of Bath 7 The projected rise in the number of deaths each year equates to an increase of 17% in less than two decades. Why the end of life matters There are growing concerns about how we talk about, pay for, plan and organise the process of ageing and dying. Current arrangements for providing support and advice are already creaking but we face much greater financial challenges and potential human misery if we do not address problems now. The recent Dilnot Commission Report2 has highlighted the problems around the rising cost of, and the responsibility for, paying for social care as the population of the United Kingdom ages and the baby boomer generation reaches the latter decades of their lives. There are a number of other financial and practical planning considerations related to end of life needs which should be part of this discussion. The number of deaths each year in England and Wales is at an all time low, with 491,348 deaths registered in 2009. This was a fall of 3.5% from the previous year and the first time the number had fallen to under half a million since records began3. Including Scotland and Northern Ireland, the total number of people who died in the UK in 2009 was approximately 560,0004. It is anticipated that from 2012 to 2030 the number of deaths each year will rise significantly. In England and Wales alone there will be an additional 80,000 people dying a year. The projected rise in the number of deaths equates to an increase of 17% in less than 20 years. At the same time, people are living longer. Longer life is often accompanied by chronic disease and as a result requires more resources from both the individual and the State. This has created something of a demographic time bomb; demand for social care is rising, living standard expectations are high, and yet there remains an expectation that wealth is passed through the generations. All in all, it is becoming increasingly expensive to age, and to die. Sources: 8 2 airer Care Funding: the report of the F Commission on Funding of Care and Support (2011) 3 ONS 4 eneral Register office for Scotland, Northern G Ireland Statistics and Research Agency Why the end of life matters Key for us is the belief that people should plan more effectively for their final years. A key societal concern is whether the infrastructure established at the end of World War Two to support people at the end of their life is fit for purpose today. The relationship between the public, commercial and voluntary sectors in the resourcing and provision of care, information, advice, support and services in old age and planning for death is open to debate. Through our annual reports we continue to raise these and similar questions. These questions remain acute and will be ever more pressing in future years. Key for us is the belief that people should plan more effectively for their final years. In the following report we outline our principal findings including: This year’s headline figures and key changes from last year How we see the journey to old age and death, including who we turn to for advice and support on end of life matters The benefits of planning for end of life and death The basis for planning, including triggers and barriers Suggestions on how planning for the end of life might be encouraged. 9 The Cost of Dying Our research shows that the cost of dying is increasing over and above inflation. The average cost of dying in the UK in 2011 is £7,248*, equivalent to three months’ average pre-tax UK salary5. This represents a 20% rise from our first survey published in 2007. Non-discretionary Funeral costs These are costs incurred to a varying degree for every death and include: Funeral director’s costs Doctor’s fees for certification Fees for a religious or secular service Burial or cremation fees (Please contact Sun Life Direct for full details of what is included in funeral director’s costs) Discretionary Funeral costs Consumers can choose if and how much they want to spend and include: Death and funeral notices Flowers Order sheets Limousines Catering for the wake Venue hire for the wake Memorial, e.g. headstone Estate Administration costs Includes: A discretionary cost of using professional services to wind up the estate of the deceased *T he cost of dying is the total average cost of funerals (non discretionary and discretionary) and estate administration, assuming all services are used. Source: 5 10 ONS The Cost of Dying UK national average cost of dying 2007-2011 The cost of dying in 2011 is £7,248, £436 more than it was in 2010 and a record for this annual survey. Low growth in the wider economy is reflected in the discretionary elements of funeral costs: average discretionary funeral costs have increased 6.8% to £1,864 in 2011, but this is still lower than the record of £2,156 in 2009. £7 ,5 00 £7 ,0 00 £6 ,5 00 £6 ,0 00 £5 ,5 00 £5 ,0 00 £4 ,5 00 £4 ,0 00 Changes to the cost of dying 2007-2011 2007 2008 2009 2010 2011 Source: The Sun Life Direct Cost of Dying Survey, 2011 Average Funeral Price Sources: ONS, DWP Annual Report by the Secretary of Sate for Work and Pensions on the Social Fund 2010/2011 6 Cumulative increase from base year 2004 Non-discretionary funeral costs are the largest contributing factor to the 2011 record cost of dying figures with a rise of 8.2% over the last 12 months. We first started research in this sector in 2004. These costs have increased by 61% over this period. This increase outstrips Retail Price Index (RPI), Wage and Social Fund Average Funeral Payment inflation which have increased by 24.4%, 22.5% and 19.4% respectively6. When factors mentioned later in the report are taken into consideration, such as environmental targets and the costs of fuel, we expect these above inflation increases to continue. 60.0% 50.0% 40.0% 30.0% 20.0% 10.0% 0.0% 2004 Social Fund Funeral 2005 2006 2007 RPI CHAW (June) Source: Sun Life Direct Cost of Dying Survey, 2011 2008 2009 Average Funeral cost 2010 2011 Wage Inflation 11 Our estimate of the size of the cost of dying market is £2.7 billion per annum. Size of the market With approximately 560,000 deaths per annum7 in the United Kingdom, based on this year’s research our estimate of the size of the cost of dying market is £2.7 billion per annum. Our research suggests that respondents increasingly feel that the cost of dying is more than they expect. This year, over half of the 1,505 people surveyed said that costs were higher than they anticipated. In last year’s report, many respondents told us that they had experienced problems or concerns with paying for funeral expenses and had been forced to find alternative ways to meet these costs including borrowing from family and friends, selling possessions and taking out loans. In the last two years the number of people reporting having difficulties or concerns has doubled from 9% in 2009 to 18% this year. If representative of the 560,000 deaths in the UK this would suggest that currently over 100,000 people are experiencing these difficulties. Potentially over 100,000 people each year find it difficult to pay for a funeral. Source: 7 12 ONS, General Register for Scotland, Northern Ireland Statistics and Research Agency 2009 2010 2011 25 % 20 % 15 % 10 % 0% 5% Number of people where the costs of funerals caused notable problems or concerns Changes to The Cost of Dying Non-discretionary funeral costs Increased by £234 to £3,091 Funeral director’s costs Increased by 6.7% in the last 12 months. The factors driving rising costs remain present; increased service provision, increasing bad debt, rise in wholesale energy prices, difficult investment environment and declining death rate. Doctor’s fees Remained static Fees for a religious or secular service Have risen by 4.6% – having remained static last year. Burial or cremation fees Cremations have increased on average by 8.7%. Continued efforts to meet DEFRA mercury abatement regulations by 2012, together with local authorities turning to cremation income following budget cuts are considered the key reasons driving cremation inflation. UK National Average Funeral Pricing 2004 - 2011 £3,500.00 £3,000.00 £2,500.00 £2,000.00 £1,500.00 £1,000.00 £500.00 Cremation Burial Source: The Sun Life Direct Cost of Dying Survey, 2011 2011 2010 2009 2008 2007 2006 2005 2004 £0.00 Burial costs have risen on average by 13.4%. The differential between cremations and the more expensive burial, mean a significantly more expensive funeral. Lack of burial plots is commonly quoted as the key driver of price increases with some press reported cases of a “postcode lottery” accentuating the problem. 13 Discretionary funeral costs Increased by £118 to £1,864 Death and funeral notices Flowers Order sheets Limousines Catering for the wake Venue hire Memorial Consumers are choosing to spend slightly more than last year on discretionary items. Possibly reflecting a small growth in consumer spending and confidence, flowers, limousines and venue hire have all seen double digit increases in average spend. However, spending on all of these items still has some way to go to match the record levels seen in previous years. Falls in average spending continue on death and funeral notices. At £54, the amount spent on a funeral notice is under half of that in 2008. In contrast, the trend towards more expensive memorials has continued, with the average spend rising from £637 in 2008 to £794 in 2011. The memorial is the stand out discretionary cost, accounting for 43% of the total discretionary costs. Estate Administration costs Increased by £93 to £2,292 14 The cost of using professional services to wind up the estate of the deceased. Average spend has risen by 4.2% year on year. The most notable change has been a move away from those choosing to administer the estate themselves. Solicitors, banks, probate specialists and Will writers have all received increases in the numbers using their services. Changes to The Cost of Dying Increases in the cost of cremations This year we asked funeral directors to consider what they perceived to be the most significant cause of crematoria cost increases. Our speculation in last year’s annual report was confirmed. Almost half responded that they believe the cause was the ongoing effort to meet DEFRA’s mercury emissions abatement regulations by the end of 2012. We also speculated that local authority owned crematoria might be one ready source of income for local authorities hit by central government budget cuts. Over a third of funeral directors surveyed confirmed that they felt this was indeed the main cause in the increasing costs of cremation. The other significant reason cited was escalating fuel prices. One in ten funeral directors surveyed believed this was the main reason for rising cremation costs. Sensitivity of costs to economic growth It is interesting to compare the sensitivity of the costs associated with funerals to the growth of the overall economy. Non-discretionary funeral costs do not appear to be as sensitive as discretionary funeral costs. The non-discretionary elements of a funeral have continued to reach record levels year on year since we started to track them in 2004. These rises have been at a greater rate than price inflation. This growth in costs has continued throughout both the recent recession and subsequent period of low growth. We can only expect that they will continue to rise in future years. Conversely, discretionary funeral spend has been impacted, most notably flowers and limousines. This was well documented in last year’s report where we calculated the value of national total spend on flowers for funerals fell over £55m to just £61m between 2007 and 2010. This figure has increased to £67m in 2011. Likewise, the average spend on limousines has followed the same pattern with an increase of 14% in 2011 after falls in recent years. Therefore, like the economy, spend on discretionary items is displaying a fragile recovery, but is nevertheless vulnerable to downturns in consumer spending habits and confidence. On the surface it would appear that non-discretionary funeral costs are price inelastic (i.e consumers would appear to have little option but to meet the costs quoted). Discretionary funeral costs, however, allow consumers a degree of control over what they spend on these items or services. There are ways and means of keeping both discretionary and nondiscretionary funeral costs down. These can range from choosing a cremation over a burial to conducting some of the responsibilities yourself, for example hosting and catering for the wake, or overseeing estate administration. 15 Impact of technology While some of the discretionary items have showed signs of recovery in terms of average spend, death and funeral notices have continued to fall. This trend began before the recent recession. While many of the items covered by the survey remain largely unaffected by technology and the internet, death and funeral notices appear to be an exception. The number of funerals that include death and funeral notices remains consistent, but amounts spent have fallen. The average spent on a funeral notice has halved in the last four years. Traditionally, notices appeared in newspapers to pay tribute to the deceased and announce the funeral. Technology now makes this practice more accessible and provides more options for bereaved people. For example, some local newspapers allow you to post obituaries through the internet and into the newspaper itself for as little as £9. Interestingly, the average spend on order sheets is £67, an increasing trend and the highest it has been since our survey started. One reason for this may be that digital printing now allows for the rapid production of highly personalised order sheets (in themselves becoming a valuable keepsake), leading to a higher demand and willingness to pay more for high quality booklets. Legal Expenses Over the 12 months up to when the survey was conducted this year there was a small decrease in the price of houses. This is important as typically the house is the deceased’s single biggest asset and is therefore the largest driver of legal expenses. Solicitors continue to be by far the provider of choice for assistance with estate administration and have seen a larger number of people use their services than last year. This is also true of other providers, with banks, probate specialists and Will writers all seeing increases in those seeking professional help. 16 Changes to The Cost of Dying Continuing to increase in popularity are both life insurance and pre-paid funeral plans. The number of people choosing to administer the estate themselves has declined. This group of people now account for less than a third of all estates administered. However, a substantial 94% who did take estate administration on themselves did not have any regrets (down from 98% last year). This suggests that those that do have the confidence to take this task on are happy with the results and potentially save sizable costs. The rise in the cost of estate administration indicates that professional providers may have increased their prices. What is more, the increased usage of professional service providers may suggest a greater level of awareness of the services they provide, potentially as a result of advertising and promotion. Both of these factors are possibly a result of the need to generate more revenue in tough economic times. Funding funeral costs From our research we found that over 60% of those responsible for arranging a funeral knew the funeral preferences of the deceased person, either directly from the deceased person themselves, from family and friends, or from the Will. Yet only 58% of those surveyed said specific provision had been made to pay for the funeral and estate administration costs; 57% of those through savings and investments. There are a number of issues with using savings and investments in this way. Money may not be released before the funeral, due to probate, so a family may need to find the funding themselves until they are reimbursed by the estate. Potentially, we also do not save enough. The average level of personal savings is £1,6848, well below the £7,248 cost of dying. Continuing to increase in popularity is both life insurance and pre-paid funeral plans. Both can be effective ways to fund funeral expenses. Pre-paid funeral plans have seen the largest increase with almost 30% of respondents stating this was the chosen method of ensuring that funeral costs were covered, up from 18% in 2010. Source: 8 ING Direct Consumer Savings Monitor July 2011 17 How do we see the journey to old age and death? The conventional wisdom There are a variety of preconceptions about how we plan and prepare for old age and death. For the majority of people these preconceptions may include paying into a pension during their working life, writing a Will (either using a pre-paid Will writing kit or with assistance from a solicitor or Will writer), purchasing a life assurance or pre-paid funeral plan, telling family and friends about what they would like at their funeral, and organising what should happen to sentimental items that they may own after they have died. Alongside these actions there may also be an element of anxiety about the health complications that can accompany the ageing of the mind and body. Our research indicates that a number of these are misconceptions, and we discuss these in the next section. However, others are confirmed. Perhaps one of the most important of these, with consequences that are unexpected and which we will discuss later, is that as we approach old age and death it is to our nearest and dearest that we instinctively and overwhelmingly turn. In fact, of the respondents surveyed who knew all or some of the deceased person’s wishes, 67% had learnt these directly from them. 18 How do we see the journey to old age and death? Stages on the journey to death There are a number of reasons why people do, or do not, plan for the end of their life. These are covered throughout this report, and specifically in relation to socio-economic background on page 30. Broadly speaking however, a key finding in the research was that the majority of respondents aged over 60 who planned did so because they felt they had reached an ‘appropriate age’. The strength of this feeling, perhaps unsurprisingly, tends to grow as we get older but is strongest in the 60+ age groups. Ageing increases the propensity to plan (respondents who have made an arrangement for the five end of life planning issues) 70 % 40 % 30 % 20 % 10 % See page 7 for a full description of these five end of life planning issues. 0% E – Funeral costs 50 % C – Protection of Assets (Wills) D – Care costs 60 % B – Where cared for 80 % A – Physical and Mental incapacity 90 % Five end of life planning issues 40-50 50-60 Planning Issue D Planning Issue E Planning Issue B Planning Issue C Planning Issue A Have not planned anything 60-70 70+ 19 In addition, the younger age bands (40-60) demonstrate that certain triggers or life events can also drive specific action or purchasing behaviour. Interestingly the relevance of these life events vary depending on the scenario presented. What event or reason caused you to make a specific arrangement 40 % 50 % 60 % 70 % (respondents who have made an arrangement for issue C – Protection of Assets (Wills)) 0% 10 % 20 % 30 % 36% of respondents felt there was an actual identifiable age at which people start thinking about later life planning; of these respondents, the average appropriate age was 47. 40-50 50-60 60-70 70+ My financial situation changed positively (more money), prompting a need to plan Death of a parent I got married I reached a certain age where it seemed responsible to make this arrangement I became a parent 36% of respondents felt there was an actual identifiable age at which people start thinking about later life planning; of these respondents the average appropriate age was 47. This sense of an ‘appropriate age’ is significant in light of current concerns over resources at the end of life. One of the key issues outlined in the recent Dilnot Commission Report is that people are not making sufficient provision early on in life to fund their latter years. There is therefore a need for a cultural shift in thinking about an ‘appropriate age’ or time of life for planning for old age and death, which could be instigated through a combination of State, commercial and voluntary action. 20 How do we see the journey to old age and death? There is much scope to develop planning related services for older women specifically. Women are different! Our research suggested that gender has a substantial impact on attitudes towards planning for death. Overall, women were more concerned than men about ageing, with 45% of female respondents saying they feared the consequences of ageing, compared to 35% of men. Interestingly, after fears associated with health and poverty, men were more concerned about relationship/libido issues, whereas women were more worried about losing their looks! Across the board, in response to concerns about arrangements being in place for older age, women consistently outnumbered men when indicating that arrangements were ‘very important’. These arrangements included physical and mental illness, where to live, Wills, care costs, and funeral costs. 80 % There may be many reasons for this, including: 70 % 60 % 50 % 40 % 30 % 20 % 0% 10 % Importance of making arrangements before the issue arises (respondents answering ‘very important’) Women typically live longer than men9 so those in heterosexual partnerships are likely to outlast their partners Pl Is ann su in e g B Pl Is ann su in e g A While opportunities for work have expanded significantly for women in the last three decades, they are often also responsible for the majority of domestic activities, including family decision making (referred to as a ‘dualburden’) Pl Is ann su in e g C Women are less likely to have built up an occupational pension and are therefore more vulnerable to economic decline if their male partner dies before them10. Pl Is ann su in e g E Pl Is ann su in e g D As a result, in old age the “… death of a partner is largely the experience of older women, who are left living on their own with an economic legacy shaped by opportunities, resources, decisions and actions over a long life time” (Corden et al, 2008: 147)11. As a result, there is much scope to develop planning related services for older women specifically. Male Female Sources: 9 ONS 10 & 11 orden, A., Hirst, M. and Nice, K. (2008) C Financial Implications of death of a partner (University of York: Social Policy Research Unit) 21 Death: someone else’s problem? A key finding in our research suggested that people are highly dependent on family and friends to carry out their wishes as they approach old age and death. In many ways this is fitting and to be expected. The chart below shows what action the respondents had taken. This highlights the dependency on family and friends, with the exception of asset protection where there is a clear evidence of Will writing. A – Physical and Mental incapacity 70 % Five end of life planning issues 80 % Actions taken by respondents to different end of life planning issues E – Funeral costs 0% 10 % 20 % 30 % See page 7 for a full description of these five end of life planning issues. 50 % D – Care costs 40 % C – Protection of Assets (Wills) 60 % B – Where cared for Planning Issue A Planning Issue B Told a family member or friend Written a document by myself outlining my wishes 22 Planning Issue C Planning Issue D Had a legal document designed expressing my wishes Purchased a plan or service Planning Issue E How do we see the journey to old age and death Respondents reported that trust in external institutions and agencies diminishes with age – this was expressed by those stating who they felt was a trustworthy source of information or help in end of life matters. This loss of trust is quite striking whether Charities, Financial services sector, Funeral Directors, Government or even GPs! A consistent theme in our survey is the high level of trust people place in solicitors and this was evident across all of the age bands. Understandably, the strongest bond of trust our respondents reported was towards family and friends. However, this can result in reliance, which can be problematic as we age. It has long been recognised that social networks decline as people get older, yet as we age we place greater importance on and trust in family and close friends. Changes in the level of trust shown towards external institutions and agencies by age 80 70 60 50 40 30 20 10 0 40-49 50-59 60-69 70+ Charity Friend/family Bank or Building Society General Practitioner (GP) Solicitor Funeral Director Insurance Company Media, e.g. newspapers, television, radio Government/local government/local authority 23 A culture of dependency in old age can be a significant barrier to planning for death. 24 One result of this is that those relied upon by older people are increasingly tasked with providing advice, guidance, support and care – often for free and alongside employment and childcare responsibilities. This is likely to be increasingly problematic as those whom older people rely on struggle with their other responsibilities. A further potential consequence is that older people are ‘infantilised’; in other words they are encouraged to be reliant on others rather than being active and making decisions for themselves. A culture of dependency in old age can be a significant barrier to planning for death, as people assume that others will sort it out for them. Indeed, 44% of respondents who had not planned for their own funeral indicated that they had not so because they expected family and friends to organise it. How do we see the journey to old age and death Can we count on traditional social networks in the future? There are also other reasons for concern. At the same time as family and friends are heavily relied upon there are changing trends in the makeup of households, with more single occupancy, lone parent families and ‘blended families’12. We can no longer assume therefore that people are living within ‘traditional’ family structures or that they can rely on family members who may not be present and available to provide support in the future. As a result, how we approach the end of life and planning for death needs to take into account the decline of traditional social networks. Those providing care, support and services for people as they plan for death, including the funeral, need to be responsive to the ad hoc support systems that an individual has in place, and not simply assume that the traditional ‘next of kin’ will be the principal provider of support or proxy decision maker. Encouraging planning for the end of life beyond simply telling family and friends will be increasingly important as traditional support networks change in character and perhaps even decline in their ability to provide help. It may also help to obviate another problem to which we referred above, namely the infantilisation of older people. The irony here is that taking more explicit responsibility for our final years and our death may turn out to be an empowering experience. Making sure that your affairs are in order before you die can help provide you with peace of mind, and prevent further unnecessary heartache for your loved ones after you are gone. Sarah Craven, Irwin Mitchell Source: 12 ONS 25 Changes to The Total Cost of Dying Taking control can be empowering The opportunity to devote time and energy to oneself in older age can be regarded as empowering. None of us will go through life untouched by dying, death and bereavement, which is why is it so important that we have a more open approach to discussing end of life issues. Talking about end of life issues and planning means all of us can face the future with greater confidence and get our house in order. (Eve Richardson, Chief Executive of the National Council for Palliative Care and the Dying Matters Coalition) While the research supports some preconceptions about getting older, it also indicates that we suffer misconceptions about ageing and planning for death. Overall, our research showed that while people have concerns about ageing, primarily related to health and fitness, there was a general feeling of looking forward to old age in terms of changing priorities, less competition and having more time to undertake activities other than paid employment. These positive associations with ageing were more pronounced in older age bands, for example 81% of people aged 70 or above said not being competitive was an attraction in old age. For the 40-49 age band, it was half this amount. Somewhat contradicting the previous concerns identified in relation to dependency, one aspect of this anticipation is the ability to take control of one’s resources. The opportunity to devote time and energy to oneself in older age can therefore be regarded as empowering. Taking control of what happens towards the end of life can be part of this process. 26 Taking control can be empowering What does taking control mean? Taking control of one’s old age can mean different things to different people. For those that had taken action to plan for the latter years of their life and eventual death, 66% of respondents had identified what they wanted to happen to their assets, for example in making a Will. 39% had identified who would handle their affairs if they were unable to care for themselves due to illness. Of those people that had made specific arrangements, in terms of organising a funeral and who will pay for it, 26% of respondents had written it down in a legal document and 23% had purchased a plan or service to cover the cost. The propensity for people to purchase products or services is supported by evidence elsewhere: It has been estimated that with 564,000 funeral plans currently taken out, over £1 billion has been invested in pre-need funeral plans by the general public to date13. The Legal Services Consumer Panel estimates that 1.8 million Wills are prepared annually14. Between April 2008 and July 2011 there have been a total of 330,000 lasting power of attorney registered with the Office of the Public Guardian (OPG)15. Who to talk to? Overall, our research indicated that people are prepared to discuss death, with talking to family and friends consistently being cited as one of the major aspects of planning for the end of life. Yet we have already indicated that relying on family and friends may be increasingly problematic in the future. A further reason why this might be so is that family and friends may not be fully aware of the technical and legal aspects of planning. Interestingly, our respondents did not indicate a high level of resistance to talking about planning for death with commercial organisations. 78% of respondents felt it was acceptable for commercial organisations such as banks, building societies, insurance companies and supermarkets to talk to their customers about later life issues and to offer practical advice on information and options available. Source: 13 arland, S. (2010) ‘A fair deal for all’, Interview by H Louise Hoffman, Funeral Service Times, May: 18-19. 14 egal Services Consumer Panel, Regulating WillL writing, July 2011 15 Office of the Public Guardian, July 2011 27 At the same time however, half of the respondents in the research indicated that their trust in financial services had declined since 2008. Of those respondents, 77% said that the recession had impacted on the trust in banks and building societies; 66% said that they trusted insurance companies less. Despite this erosion of trust, confidence in solicitors as sources of information and guidance remains relatively high, with one in two respondents saying that they trusted a solicitor’s advice. This finding is echoed by a recent report by the Legal Services Consumer Panel17. The implications of a high level of trust in solicitors will become more apparent as the Legal Services Act 2007 is implemented and new legal practices (Legal Disciplinary Practices) are introduced to the market. Nonetheless, policymakers and commercial organisations alike should consider how to respond to and utilise these existing trusted networks. The question as to who should be providing guidance, advice and support has perhaps a more complex answer than the simplicity of the question. Bill Stewart, The Will Writing Company Over half of our respondents felt that either central or local government should pay for care at the end of life. Who should foot the bill for old age and death? Planning and talking is one set of issues around old age and death. Paying for it is another! The issue of who is responsible for paying for death is a contentious one, particularly at a time when public services are being cut. Despite Andrew Dilnot’s assertion that most people are happy to contribute towards the cost of their long term care, our research suggests that the perception remains that the State should provide even though we are living through times of austerity and a narrowing of the welfare state safety net. Over half of our respondents felt that either central or local government should pay for care at the end of life. There is an acknowledgement however that the individual has a responsibility, although only 15% think this should amount to the sale of their personal assets including their home. Most people are happy to contribute towards the cost of their long-term care, but they want a simpler system which gives them greater certainty over what the State will provide and what their responsibilities will be. Andrew Dilnot, 18 May 2011 Source: 17 28 egal Services Consumer Panel, Regulating L Will Writing, July 2011 Taking control can be empowering Our research showed that over a quarter (26%) of our respondents had not undertaken any planning for later life arrangements. m T y h th as e s an se al m ts, e o y o f ho th m er e m T y h as e s s m ets ale y , i of ho nc a m lu ll e din g fa M m y ily im , m ch e.g ed ild . p ia re ar te n tn er , Ch ar ity pa y Is ho ul d au Loc th al or ity go Ce ve nt rn ral m en t 0% 10 % 20 % 30 % 40 % 50 % 60 % Who should pay or contribute towards any care required at the end of your life? However, while respondents’ opinion was that the State should provide, in reality only 5% expected that the State would provide when asked why they have not made an arrangement for how care would be paid for. With a low expectation of State support we could anticipate that individuals would make provision for their own older age. So while there is a clear disparity between what people think should happen versus what they think will actually happen, our research showed that across all of the issues presented over a quarter (26%) of our respondents had not undertaken any planning for later life arrangements. We already know that the costs of dying are increasing and this coupled with the ageing UK population means that these issues can only become more problematic. So why might people not be making any arrangements? 29 The basis for a plan The evidence presented in this research indicates three key points: costs at the end of life are rising; family and friends are often relied upon to make decisions and carry out wishes, including meeting costs; and many people do not plan sufficiently for old age. All these point to a need for more coherent planning in order to relieve the burden on others and organise resources as efficiently as possible. My father left us a wonderful gift. His desire to make sure he had a Financial “Plan B” in place is a legacy that truly underscores the love he had for his family. Quote from How Dad’s Planning Helped Us Cope With His Death; By: Sharon Epperson, Correspondent for CNBC Socio-demographics and planning One objective of our research this year was to establish what difference affluence made to people’s propensity to plan and whether there was an autonomous planning variable that influenced behaviour: in other words, are some people just good planners regardless of how much they have to gain or lose by approaching their old age well prepared? 30 The basis for a plan The effect of affluence on planning We grouped and analysed the respondents of the survey into four segments based on their affluence (socio demographic A, B & C1 versus C2, D & E) and whether they were planners or not planners – which was determined by their responses to a number of the questions in the survey. Below we outline the general characteristics of the four groups to emerge: Organised wealth (affluent planners) Misplaced trust (less affluent planners) Predictably the best placed category, this group are affluent, have thought ahead and made the effort to plan – more likely than not with traditional service providers (i.e a solicitor) and least likely to buy a funeral plan in advance (although likely to leave instructions in a Will). Perhaps the most interesting category in the sense that this group, more than any other, is worried about and has considered the issues that might face them in old age. They recognise that they are unlikely to be able to spend their way out of trouble. As they have planned they understandably look forward to older age more than the less affluent. They are more ambitious about what they might be doing as they get older and perhaps the only thing to worry them in their twilight years is the risk to their health. They consider themselves planners and have done something about these issues – but that action often turns out simply to be to tell their family and friends. Further, where they have said they have not made any plans they overwhelmingly expect friends and family to sort things out. Therefore they and their next of kin may be exposed to “The State will decide” when the time comes. Lazy affluence (affluent non planners) Unengaged underserved (less affluent non planners) With affluence but little planning arguably this category has most at risk. At a superficial level this group are least likely to have thought about their dotage, in particular how they would celebrate your 90th or 100th birthday. More worryingly they have not thought about some of the key issues such as where they would live if unable to look after themselves, and how this would be paid for. This category are least likely to be worried about the issues presented. They have thought least about them probably because they feel they are unable to do something about the situation and therefore as a consequence, the most likely to be dependent on the State. This groups trust has been hardest hit than any other by the economic crisis, suggesting that there is an awareness that when things go bad they become more aware of the risk to their wellbeing. We suspect that their lack of trust is a symptom of the “cruel hand life has dealt them”. This group are the least trusting of commercial organisations and typically need to be “told to do something” (often by a friend or family member). 31 B – Where cared for C – Protection of Assets (Wills) D – Care costs 70 % 60 % A – Physical and Mental incapacity 50 % Five end of life planning issues 80 % Have you made any arrangements? 0% 10 % 20 % See page 7 for a full description of these five end of life planning issues. 30 % 40 % E – Funeral costs Planning Issue A Planning Issue B Planning Issue C Affluent planners Less affluent planners Affluent non plannners Less affluent non planners Planning Issue D Planning Issue E Have not yet planned anything Overall, our research showed that 66% of respondents had planned for what will happen to their financial assets and belongings after they have died (for example, a Will). This number increased to 76% for ‘Organised Wealth’. This group had consistently higher results for ‘written a legal document’ when asked what preparations they had put into place for the different planning issues. They were also more trusting of commercial organisations. ‘Misplaced Trust’ interestingly had the largest propensity to plan. This group have considered addressing care in the event of physical and mental illness issues, where to live, Wills, care costs, and funeral costs. However, they were also less trusting of commercial organisations. If organisations can overcome this suspicion and tap into their circle of trust, there would be an opportunity to help them take proactive and more robust control of their future. Currently, they display an over reliance on friends and family that could be placing a burden on the very same people they are trying to protect. Although not dramatically overrepresented this group is more likely to contain older women than the other groups. 32 The basis for a plan ‘Lazy Affluence’ are less likely to be confident than those in our ‘planning’ groups in making decisions, and therefore to have made other arrangements for their old age, such as mental and physical illness issues. If they were unable to make decisions about their own affairs whether due to physical or mental incapacity a drawn out and expensive legal process is required if a legal document (Lasting Power of Attorney) is not already in place. Their lack of planning could therefore mean this group are in the position to lose out the most financially. 60% of this group say the adverse economic events of the last few years have impacted on their trust in organisations as sources to help prepare for older age issues (the other categories only registering 44%-48%). Based on our findings, the ‘Unengaged Underserved’ are more likely to be a burden on their friends, families and the State. When asked throughout the survey about the different issues in old age, including where to live and what will happen to their financial assets, they were the least likely to be concerned. However, where they have made an arrangement they were most likely to have done so because a friend or family member had told them to. As a result, we question here if there is an opportunity for the State, commercial organisations and the voluntary sector to work together, or a case to be made to encourage non traditional providers to offer services to enable people in this category to get into better shape when it comes to planning for older age. 33 In terms of barriers, there was considerable variation across age groups as to why arrangements were not in place. Barriers to planning Triggers for planning have already been identified in this report, principally around the idea that there is an ‘appropriate age’ to plan. This sense of an appropriate age is connected to various life events including marriage and divorce, inheriting or losing money, and the death of a parent. In terms of barriers, however, there was considerable variation across age groups as to why arrangements were not in place. For those aged over 60 family and friends were again an issue, with expectations that they will make the appropriate arrangements for the five issues. In the 70 plus age band this ranged from 33% of respondents suggesting that family and friends would put in place arrangements for financial assets and personal belongings, up to 64% suggesting they would pay for their funeral. In the 40-50 age band there was a sense of leaving it until later in life because of both their financial situation and their age. When asked why they have not arranged how their funeral will be paid for, 22% stated they would plan this when they had more money and therefore more options. When asked why they had not arranged where they will live and be cared for if they were unable to look after themselves, 21% said they were too young; in their eyes they did not need to do this yet. There was one universal barrier for our respondents regardless of age. There was a consistent response across all of the age bands for all of the issues presented that they simply did not yet know what they want to happen. 34 The basis for a plan Informed forward planning in preparation for old age may positively impact on those who are most vulnerable. Those that cannot plan There remains a group of people who either lack resources entirely or have no need to plan because they do not have sufficient wealth or assets to warrant it. In the case of funerals, evidence from the Department of Work and Pensions’ administer the Social Fund Funeral Payments Scheme, suggests there is a sizeable number of people for whom meeting the cost of a funeral is impossible. Within this scheme, 38,000 awards were made from 69,000 applications in 2010/11, worth £46.2 million in total18 and averaging around £1,200 per applicant (£700 for funeral costs + burial/cremation fees). If using the 560,000 UK deaths per year average the number of people applying to the Funeral Payments Scheme thus equates to around 7% of all deaths. Not only is this figure quite startling, 44% of applicants to the Scheme were unsuccessful19. Furthermore, for those that are successful in their application, there is a shortfall in State support for people from low income backgrounds when it comes to funding a funeral. How individuals meet this shortfall was explored in last year’s report with individuals suggesting a range of alternative solutions ranging from taking from savings, borrowing from friends and family to selling possessions. As stated earlier the costs of dying are increasing, this coupled with the ageing UK population means that these issues can only become more problematic. As a result, family breakdowns, lack of income and health and social care costs mean that old age is a potentially vulnerable time of life for many. Informed forward planning in preparation for old age may positively impact on those who are most vulnerable. While there is an expectation that the State will act as a safety net for people in this position, this is not always the case. There is much opportunity for commercial organisations and trusted networks to ‘plug the gap’ in offering a range of services, guidance and advice tailored to specific groups of people, such as women or those people who have limited resources. Our research suggests that there is little resistance to commercial organisations taking on an advisory role. This role, however, needs to be appropriate and tailored towards groups of people identified, based on their affluence and attitude towards planning. Sources: 18 & 19 WP Annual Report by the Secretary of State for D Work and Pensions on the Social Fund 2010/11 35 Conclusion The costs associated with ageing are frightening. We face an End of Life Time Bomb in the next two decades as the number of deaths rises, by over 80,000 people a year in England and Wales alone. The extent to which services are in place to support those people at the end of their lives, and those bereaved after their death, is debatable. At the same time, the cost of dying is rising above the rate of inflation. The cost of dying in 2011 is £7,248. This is £436 more than 2010, and the highest figure since our annual research began. This figure incorporates a 61% increase in funeral costs over the past 7 years. There are confused and contradictory messages about the extent to which individuals rely on family and friends when it comes to planning for death. On the one hand, family and friends are looked to for advice, guidance, and information. In many cases it is also assumed that they will organise and fund a funeral. While this is a testament to the strength of relationships within the UK, we see significant causes for concern. With changes in households and family structure, and the decline of traditional social networks associated with ageing, many older people are at risk of isolation and poverty. Subsequently, the opportunity to discuss options and inform others about wishes may be limited. Furthermore, we argue that a reliance on family and friends can actually be a barrier to planning. Fostering a culture of dependency, this can lead to the infantilisation of older people and an unsustainable sense of responsibility and burden on others. For more information, contact Simon Cox, Head of Life Planning at Sun Life Direct on 07977 917 482 or Paul Riddell, Head of PR and Communications at AXA UK on 01256 798442 36 Conclusion A reliance on family and friends can actually be a barrier to planning for the end of life. Taking control of one’s latter years can therefore be an empowering and liberating experience, for both the individual and those around them. Formalising this through organised and informed decision making, clearly articulating wishes and ensuring that sufficient funds are available to cover the cost of dying would provide both the planner and their networks with peace of mind. Our research has shown that there is limited resistance to the input of commercial services when it comes to planning, although this does depend on an individual’s affluence and attitude towards planning. Trust in financial services has declined since the recession, but there is evidence that established legal services are highly regarded. Bearing this in mind, commercial organisations should be both leading the way in, and being looked to for, encouraging people to plan for their ageing and death. Our respondents indicated a general willingness to talk about death and this could be capitalised on. In other words, we should not shy away from death. Finally, there is much scope to examine the relationship between commercial organisations, the State and the voluntary sector in planning for death. At a time when public sector funding is extremely tight, opportunities to collaborate may be more important than ever. Certainly, the 100,000 people who struggle to pay for the cost of a funeral (probably including the 69,000 who apply to the Social Fund Funeral Payments Scheme) could benefit from further insight and innovation into how people from lower income backgrounds can meet the costs associated with dying via support, advice and guidance from the three sectors. 37 About the authors Kate Woodthorpe Dr Kate Woodthorpe is a lecturer in Sociology at the Centre for Death and Society (CDAS), the University of Bath. CDAS is the UK’s only centre devoted to the study and research of social aspects of death, dying and bereavement. Through her research Kate has worked extensively with funeral and cemetery associations examining the provision of services for people who are dying and bereaved. Kate has published widely on the cost of death, the material culture of death, and the experience of bereavement. Her research has been featured in the Guardian and the Telegraph, and she has spoken about her field of expertise on Radio 4’s ‘Thinking Allowed’ and ‘Today’ programme, as well as numerous local radio stations. She has appeared on BBC Breakfast and acted as an academic consultant on two Open University/BBC programmes, Two Feet in the Grave (BBC 1) and The Art of Dying (BBC 4). Kate’s current research is funded by the British Academy and examines the provision of mortuary services. She is also investigating the status of funeral directors, including issues surrounding the trade’s educational requirements and regulation. Bob Tyrrell Bob is an independent consultant who specialises in analysing the nature and direction of social change. He works with business and public policymakers on the strategic implications of social change. As well as Sun Life Direct, amongst his other recent clients are Tesco, Bupa, O2, Milligan Retail, Cadbury and Heinz. He was formerly Chairman and Chief Executive of the Henley Centre for Forecasting. He established the Centre as an independent private company in 1985 and after building it up to become one of Europe’s foremost strategic planning consultancies, he sold the company to WPP. He has served as Chairman of the think tank Demos, been a Visiting Professor at the City University Business School, an advisor to the Conservative Party and a member of the Conservative Policy Forum. He also works in the field of journalism and broadcasting with articles published in the Sunday Times, a programme in Channel 4’s ‘Opinions’ series and programmes presented for the Radio 4 Analysis programme. The subjects covered include the future of Europe, the cultural implications of the ageing society, the impact of competition on the health service and the nature of consumerism. 38 Simon Cox In 2007 Simon commissioned the first ‘Cost of Dying’ survey as a means of identifying the extent of end of life costs faced by consumers. Simon has worked within the life assurance industry for 25 years. He was instrumental in the introduction and innovation of funeral-linked life assurance plans, a regular contributor to Mintel’s Life Protection reports, and his input highly influential in Mintel’s decision to publish for the first time a standalone report on the whole-of-life sector, with particular emphasis on the links between the over-50s market and funeral plans. Simon sits on the Money Advice Service Bereavement Advisory Group, Bereavement Advice Centres policy steering group and works with the Dying Matters coalition to promote greater debate about death, dying and bereavement. The trouble with dying The Sun Life Direct Cost of Dying Survey 2011 39 Sun Life Direct, PO Box 1810, Bristol BS99 5SN www.sunlifedirect.co.uk
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