43826:Achiever-test/5.0 8/2/07 2:05 PM Page 1 43826:Achiever-test/5.0 8/2/07 3:20 PM Page 2 ARKANSAS CHILDREN’S HOSPITAL BOARD OF DIRECTORS CONTENTS Pat McClelland, Chairman M. Edward Drilling, Vice Chairman Tom Baxter, Secretary Dorsey Jackson, Treasurer Whit Hall M.D., Chief of Staff Harry C. Erwin III, Past Chairman Jonathan Bates, M.D., President & CEO ACH Cystic Fibrosis Center Teamwork Helps Patients and Families While treating CF patients and keeping them as healthy as possible, team members in the ACH Cystic Fibrosis Center have successfully created a model program that focuses on enhanced communication with families and better treatment for patients. The CF team includes: (front row, from left) Thomas Wilkins, Amelia Harris, Heather Barkley, Lauren Willis, (second row) Mary Jo Chambers, Patty Burge, Kathy Robinson, Penny Ward, (back row) Dr. Dennis Schellhase, Sandy King, Lisa Bylander, Kenneth Myers. ACH RESEARCH INSTITUTE 2007 ACH Ambassadors Sharing Their Stories ACH Ambassador Anna Katherine Green shows off a copy of her ACH All Star card. The cards feature each Ambassador’s story and are used to hand out at speaking engagements. Beverly Morrow Eduardo Ochoa, M.D. Skip Rutherford Mark Saviers Kate Schaffer Philip Schmidt Robert L. Shults Bonnie Taylor, M.D. Everett Tucker III Rick Watkins Charles B. Whiteside III I. Dodd Wilson, M.D. John Bale, Jr. Ron Clark Dale Cook Haskell Dickinson Skip Frantz Paul R. Hart Bryan Hill J. French Hill Judge Marion Humphrey Richard F. Jacobs, M.D. Michael Joshua Diane Mackey Barbara Moore ACH Ambassadors are a group of current and former Arkansas Children’s Hospital patients who are giving hope and inspiration to other patient families, donors and volunteers by sharing their stories. The Ambassadors are true examples of the care, love and hope that ACH provides. 2007 CCC North American Leadership Conference Celebrating Philanthropy and Giving Pat and Jim McClelland, members of the Arkansas Children’s Hospital delegation of Children’s Circle of Care, enjoyed a clambake dinner held in Boston. Pat is chairman of the ACH Board of Directors, while Jim serves on the ACH Foundation board. Children’s Circle of Care (CCC) members from across North America recently visited Boston for the 2007 CCC Leadership Conference. Arkansas Children's Hospital was represented by 23 CCC members. Ron Clark, Chairman Jonathan Bates, M.D., Vice Chairman for Finance & Admin. Debra Fiser, M.D., Vice Chairman for Research Robert Porter, M.D., Secretary/Treasurer Richard F. Jacobs, M.D., President Kanwaljeet “Sunny” Anand, M.B.B.S., D.Phil M. Edward Drilling James Gaston Ellen Gray Tommy Hillman Roger Rank, Ph.D. Mark Saviers Robert Shults I. Dodd Wilson, M.D. ACH FOUNDATION Jonathan Bates, M.D., Chairman Charles B. Whiteside III, Vice Chairman John E. Bel, President Pat Allen John Bale, Jr. Tom Baxter Frances Buchanan William Clark James Cobb Robert G. Cress Don Edmondson Harry C. Erwin III Robin George Barbara Hanna Anne Hickman Ray Hobbs Ross Honea Beverly Keener Mark Larsen Diane Mackey Alice Mahony Mark McCaslin Jim McClelland Jeffrey Nolan Robert Porter, M.D. Steven Ransdell Sara M. Richardson Vicki Saviers Philip Schmidt Witt Stephens, Jr. Marianne Thompson Sue Trotter Kim Williams Tom Womack ACHiever Staff Editor: Chris McCreight Design: Lori Barlow, The Graphic Design Shop, Inc. Photographers: Kelley Cooper, ACH Foundation Staff Contributors: Alyssa Anderson, John Gregan, Kila Owens THE ACHIEVER is published by Arkansas Children Hospital Foundation for friends of ACH. 800 Marshall St., Slot 661, Little Rock, AR 72202-3591 (501) 364-1476 • FAX (501) 364-3644 TDD (hearing imparired) 364-1184 www.archildrens.org 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 3 Cystic Fibrosis Team is Helping Children and Families Breathe Easier HOSPITAL PROGRAMS Cameron and Carter Wilkins have both been CF patients almost since birth. Their father, Thomas, is very active in the ACH CF Family Advisory Board. Kila Owens A s a parent, being told your child has a life-threatening illness can be heart-breaking. Imagine having to hear it twice. Thomas and Karena Wilkins have two sons, 4-year-old Cameron and 1-year-old Carter, and both have been diagnosed with cystic fibrosis (CF). In CF patients, the cells that line airway tubes and other passageways in the body do not secrete normal, free-flowing fluid. Instead, a defective gene causes the body to produce abnormally thick, sticky secretions that block airway tubes and other passageways, particularly in the lungs and intestines, interfering with vital functions such as breathing and digestion. Cystic fibrosis is a genetic or inherited disease, beginning at conception from a defect or gene abnormality. Cameron and Carter have been visiting the ACH Cystic Fibrosis Center almost since birth. The CF Center meets the many needs of CF patients across the region, from initial diagnosis to ongoing treatment. The CF program’s staff is an interdisciplinary team of individuals, including representatives from the full spectrum of health care — physicians, specialty nurses, social workers, respiratory therapists, nutritionists, child life specialists and chaplains, among others. “It takes a multidisciplinary team to care for patients with CF,” says Lauren Willis, respiratory therapist. “We really have a fantastic group of folks who meet regularly, work very well together and are committed to providing the highest quality of care.” The CF Center is always working to improve the level of care provided to patients. Thanks to the team’s hard work, many great things have been achieved recently. One such accomplishment is the creation of a CF Center Family Advisory Board (FAB). The board, comprising parents of CF children, was spearheaded by social worker Mary Jo Chambers. “Since CF patients are not allowed to socialize together, due to the need to avoid infections, parents and families felt isolated,” Chambers says. “We wanted to bring these parents together to discuss many issues — how they felt, how they thought we were doing, how we could improve.” The program has been a great success. Communication between parents and the CF team has been greatly enhanced with FAB-driven projects, such as a quarterly newsletter and online bulletin board. The program is being used as an example for other ACH departments, and Chambers was asked to present about the FAB at the North American CF Foundation conference. In fact, because of the team’s successes this past year, several members were asked to present information at the conference. Another new development is the recent commitment by the Arkansas Department of Health to screen newborns for CF (and a number of other diseases) beginning in July 2008. According to Dr. Dennis Schellhase*, director of the ACH CF Center, implementing newborn CF screening will be a challenge, but the benefits will be substantial. “The earlier you can make a diagnosis, the more opportunities you have to begin early treatment of the child’s nutritional problems and lung disease,” says Schellhase. The outlook for young CF patients is bright, due to many advances in medicine. Twenty years ago, the life expectancy of a CF patient was barely out of adolescence. Today, the median life expectancy is 37 years and increasing. Members of the ACH CF team feel a family-centered approach is integral to providing quality care. “We develop very close relationships with our patient families,” Schellhase says. “We see the kids so often, it’s like we become a member of their family.” Wilkins is thrilled with the care his children receive from the ACH CF team. It is hard having one child with CF, much less two, but he says the support from the team is unparalleled. “They have great respect and love for their patients and their families,” he says. “The support they offered to us when our children were diagnosed was amazing. They gave us information about the disease and let us know we were going to fight it together.” *Dennis Schellhase, M.D., is director of the Cystic Fibrosis Center at ACH and associate professor in the department of pediatrics, UAMS College of Medicine. 3 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 4 PATIENTS & FAMILIES WE HAVE KNOWN 2007 ACH All Stars Sharing Their Stories ACH Ambassadors are a group of current and former Arkansas Children’s Hospital patients who are giving hope and inspiration to other patient families, donors and volunteers by sharing their stories. D uring the Wal-Mart/Sam’s Club Miracle Day on the ACH campus last spring, guests heard the stories of care, love and hope shared by three patient families. One of those patients was 11-year-old Shelby Clinton of Sherwood. In December 2003, Shelby was sent to ACH after a CT scan showed a brain tumor. He was diagnosed with medulloblastoma and immediately had surgery to remove the tumor. After surgery, Shelby began chemotherapy and radiation. Through it all, he stayed strong, and Shelby has now been cancer-free for two years. He loves to play soccer and basketball and is a stellar student. Shelby’s medical experiences have helped him determine a future career — helping children with cancer. Shelby and other patients were introduced in March as the 2007-08 ACH Shelby Clinton Ambassadors, a group of current and former ACH patients who were nominated and chosen by hospital staff members to serve as advocates for the hospital. For one year, Ambassadors and their families will share stories about their ACH experiences at special events and through direct mail and other printed materials. The Ambassadors represent the thousands of children treated annually at Arkansas Children’s Hospital and its clinics. A synopsis of each Ambassador’s story is below. For an expanded version of the stories, visit the “Meet the Ambassadors” page in the Foundation section at www.archildrens.org. Carson Bayird, 8, Paragould When Carson was born, doctors Carson knew he had a cleft lip and palate, but they soon discovered other birth Bayird defects. He was immediately sent to ACH, where he was diagnosed with Trisomy 18, a chromosomal disorder that is usually fatal. His parents were told Carson probably would not live a year. In addition to his other health problems, doctors at ACH diagnosed Carson with liver cancer when he was 18 months old. He underwent chemotherapy for the cancer, along with multiple surgeries for his other problems. He has now been cancerfree for five years but will face ongoing health problems due to the Trisomy 18. Carson loves tractors, mowing the yard, playing with his brother and listening to country music. Alexis Casey, 7, Hardy When Alexis was 2 days old, her mother noticed a broken blood vessel on her daughter’s left cheek. By the time she was a week old, the blood vessel had turned into what looked like a large birthmark. It covered most of the left side of her face, including inside her mouth. Alexis was sent to ACH where she was diagnosed with a large compound facial hemangioma. To treat the hemangioma, Alexis had many laser surgeries until she was 18 months old, at which time she had major surgery to remove the growth from her face. She later had surgery to repair her nose and upper lip. She will continue receiving treatments at ACH, but the most difficult of her treatments is over. Alexis loves music, Alexis singing and writing her own songs. Casey 4 43826:Achiever-test/5.0 Ryan Garrett Anna Katherine Green Keely Keenom Cade McCredy 8/2/07 2:06 PM Page 5 Ryan Garrett, 4, El Dorado Ryan was diagnosed with an inguinal hernia shortly after birth, and at 5 weeks old, he was diagnosed with intussusception, a condition in which part of his intestine folded inward and into itself. Doctors were able to perform a simple, non-surgical procedure that relieved his intussusception symptoms. Ryan also had outpatient surgery at ACH a few months later to repair his inguinal hernia. His mother describes him as a sweet child who loves exploring his surroundings. Anna Katherine Green, 5, Little Rock Anna Katherine had her first heart surgery when she was just 1 day old. After the first surgery, a “kink” was discovered in her intestines, so another surgery was necessary to repair her small intestine. Seven months later, Anna Katherine had her second heart surgery at ACH. In early 2007, she was back in the hospital with pancreatitis, a disease that normally does not affect children. Today, Anna Katherine visits ACH every six months to monitor her heart condition. In June 2007, she had her third and final heart surgery. Anna Katherine currently takes piano lessons, dance and gymnastics classes, and she loves to swim. Keely Keenom, 8, Vilonia Keely was born with a rare birth defect that required surgery at Arkansas Children’s Hospital when she was only 1 day old. She was diagnosed with tracheo esophageal fistula/esophageal atresia, a condition in which her esophagus connected to her trachea instead of to itself. She spent a month at ACH before going home for the first time and was back in the hospital a few more times that year for outpatient surgeries to repair her esophagus. Though the surgeries improved Keely’s condition, she still suffers from tracheomalacia, or a “floppy” trachea. Because of this, even a common cold can often result in pneumonia. Keely is a charming, wellmannered girl who loves sports — especially softball — and her family. Cade McCredy, 2, Fayetteville Cade was born 10 weeks early and was diagnosed with an abnormal development of lung tissue common in premature babies. He was moved from a hospital in Missouri to Washington Regional Medical Center (WRMC) in Fayetteville. At WRMC, Cade was under the care of an Arkansas Children’s Hospital neonatologist who is on staff at WRMC. The WRMC neonatal intensive care unit is an extension/satellite of ACH. After going home, Cade remained on oxygen for eight months and had monthly visits to the neonatology clinic at ACH in Little Rock. Cade is now a happy, laid-back child who loves playing with balls and cars and enjoys imitating his big sister. Cole Nash, 6, Monticello At age 2 ½, Cole became sick to his stomach and bruises began appearing all over his body. The family consulted a doctor, who took a blood sample and immediately sent Cole and his family to Arkansas Children’s Hospital. Once at ACH, Cole was diagnosed with acute lymphocytic leukemia. He began chemotherapy immediately. Within six weeks, Cole was in remission. His treatment continued for three years, and he never had a relapse. He still visits ACH once a month for tests to monitor his remission. Cole wants to be an animal doctor when he grows up. Lindsey Taylor, 6, Little Rock Lindsey began her life with serious heart problems. The day after her birth, Lindsey’s pediatrician heard a heart murmur and promptly sent her to ACH for further testing. At ACH, Lindsey was diagnosed with transposition of the great arteries, pulmonary stenosis, cleft mitral valve and a ventricle septal defect. She has had three surgeries at ACH, and with each surgery has become stronger and healthier. Lindsey continues to take medication and receive regular check-ups from her cardiologist. She is involved in cheerleading and choir at her church. Jacob Wells, 6, Searcy Jacob was flown to ACH immediately after birth, where doctors diagnosed him with tetrology of fallot with absent pulmonary valve. This heart defect also damages the lungs and upper airway. He underwent two open-heart surgeries and when it was determined he was not breathing on his own, doctors performed a tracheostomy to assist his breathing. Jacob relied on a ventilator to help him breathe for three years. He continues to visit ACH for check-ups and will eventually require another heart surgery. Today, he is a happy, healthy child who talks non-stop and enjoys playing with trains and watching the movie “Cars.” Sadie Wood, 14, Fayetteville One wouldn’t know that just a few years ago Sadie was diagnosed with a disease that could have ended her competitive swimming career. In April 1998, Sadie was referred to ACH where she was diagnosed with juvenile rheumatoid arthritis, a chronic condition that causes joint inflammation, pain, swelling, redness and stiffness. Although she is a very active teenager, Sadie has experienced some permanent effects of the arthritis and still visits ACH regularly for checkups. Her future goals include qualifying for the junior national swimming championships, obtaining a college swimming scholarship and entering the nursing field after graduation. Cole Nash Lindsey Taylor Jacob Wells Sadie Wood 5 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 6 RESEARCH ACHRI Research is Treating Pain, Tracking Impact John Gregan T he cry of a child stirs the emotions of anybody in earshot. When the suffering child is a premature baby, hearts and thoughts go out to the tiny newborn. Invasive machinery and various medical procedures are needed to keep these children alive and growing, separating them from their mothers. There is no maternal touch, only clinical forms of stimulation. Without a calming connection, the most vulnerable of pediatric patients are exposed to increasing stress or pain. The alternative to is alleviate the pain by using powerful drugs — a controversial and difficult choice. In June 2000, Laura Anderson was faced with this choice for not just one child, but for two premature babies. “I had an emergency C-section,” she recalls. “Cameron and Carlie were born at 27 weeks, and neither had lung development. They were just so small, 2 pounds, and they needed respirators.” At this time, the two babies were enrolled in a neonatal pain study. Babies in the study were given either morphine to control pain or a placebo. The study explored questions about babies treated with painkillers: Would stress decrease? Would survival increase? Would conditions such as cerebral palsy, cognitive delay and bleeding in the brain decrease? Remembering the first time she saw her children, Laura says, “Cameron was telling it; he was loud. Carlie was out of it: quiet, calm, still.” During their two months at ACH, the babies grew stronger. “Cameron was strong enough to pull out his tube three or four times, but he wasn’t strong enough to breathe without the tube,” his mother says. “Staff members at ACH cared about the kids and were considerate of the kids’ and parents’ feelings. They explained everything to us.” Cameron and Carlie were among the children involved in the NEurologic Outcomes and Preemptive Analgesic In Neonates (NEOPAIN) study — the study of pediatric pain management in newborns. Dr. Sunny Anand* directed this National Institutes of Health-funded research project centered at ACH. It involved 16 centers (12 in the US and four in Europe) from 1999 to 2002. The study revealed a decreased pain response in babies receiving morphine but did not show a change in effects such as brain damage. Some of the babies with higher morphine doses had side effects similar to those of adults using morphine — a fact not previously documented for premature babies. Five years later, NIH has agreed to fund a follow-up study to begin later this year on the babies in the NEOPAIN study. The main objective is to learn the long-term impact on the babies, now 6 Cameron and Carlie Anderson, now 7, are vibrant and healthy as they jump on a trampoline. Thanks to research like that of Dr. Sunny Anand, children like Cameron and Carlie have better hope for the future. ages 6 to 8. At age 8, Dr. Anand’s team will give these children outpatient tests regarding behavior, cognition, stress response, executive brain function, growth, vision, hearing and visualmotor coordination. “Science continues to push the boundaries of understanding. Facts that were accepted as dogma in years past, such as ‘babies do not feel pain, and it has no long term effect,’ are being questioned again,” says Dr. Richard F. Jacobs*, president of Arkansas Children’s Hospital Research Institute (ACHRI). “Dr. Anand’s work is key to opening those doors of scientific understanding of pain in babies and whether or not there are effects from those experiences. It could potentially impact several areas of neonatal medicine and how we manage babies in the future.” In preparation for the follow-up study, Dr. Anand has conducted preliminary studies with 20 local patients from the original study. Cameron and Carlie have each returned to ACH for this testing. Dr. Anand’s initial results show that NEOPAIN children who received morphine may have increased cognition and behavior scores compared to children who received the placebo. He hopes to learn if there are differences later in life, with increased IQ or decreased atypical behaviors among premature babies receiving analgesia. The treatment of Laura’s family was only one influence in her decision to enroll her children in the follow-up and in any future studies. “Most of all,” she states, “The more research, the more we can learn. If it will help anybody else you know, you don’t mind.” *Kanwaljeet J.S. “Sunny” Anand, MBBS, D. Phil, FAAP, FCCM, FRCPCH, is a physician in critical care medicine at ACH; holds the Morris & Hettie Oakley Endowed Chair of Critical Care Medicine; is a professor in the UAMS departments of pediatrics, anesthesiology, pharmacology, neurobiology and developmental sciences; and is director of the ACHRI Pain Neurobiology Laboratory. *Richard F. Jacobs, M.D., FAAP, is president of ACHRI, physician in pediatric infectious disease at ACH, the Horace C. Cabe Professor of Pediatrics and the interim chairman of the department of pediatrics, UAMS College of Medicine. 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 7 Billingsley enjoys dinner with ACH president and CEO Dr. Jonathan Bates during the recent Circle of Care Leadership Conference in Boston. DONORS Circle of Care Member Boyce Billingsley Gives to ACH Because She’s ‘A Sucker for Kids’ Alyssa Anderson B oyce Billingsley, of Bella Vista, never had a child who needed the services of Arkansas Children’s Hospital. She never had a grandchild who needed ACH. But when her late husband, George, decided to make a large donation to the University of Arkansas in 2001, Billingsley told him, “That’s fine, but I’ve got a little something I want to donate to.” That’s when she established a charitable remainder trust (CRT) and made ACH the beneficiary. “I just read about the hospital and knew they did very good work,” Billingsley began, “and I’m a sucker for kids!” A CRT is an arrangement in which property or money is donated to a charity such as ACH, but the donor continues to use the property and/or receive income from it while living. Billingsley says her decision to donate specifically through a CRT was based on advice from the couple’s financial advisor. “I’m not that brainy,” she laughs. “I certainly had some help with what to do.” Born and raised in Arkansas, Billingsley is proud of what Arkansas Children’s Hospital does for the state and is excited about the hospital’s growing presence in northwest Arkansas. Although she has not yet toured the new Center for Children in Lowell, she says, “It’s nice that it’s just right here. Those families don’t have to go all the way to Little Rock.” Billingsley was born in West Memphis, where her father, John Cooper, Sr., was a farmer for many years. When Billingsley was in college, her father envisioned and created Cherokee Village in Hardy in 1954, and later Bella Vista in 1965 and Hot Springs Village in 1970. Today, Cooper Communities is involved in projects across eight states. Through its subsidiaries, the company develops timeshare resorts and planned communities, owns and manages more than 3.5 million square feet of commercial property and is Arkansas’ largest homebuilder with more than 11,000 homes built. “It was a nice ride,” Billingsley said of the creation of Cooper Communities. “It’s been very good to us and to our family.” George Billingsley, was in charge of sales for the company for about 25 years before retiring. Later, after encouragement from his tennis buddy, Sam Walton, he started Pacific Resources Export Limited (PREL). The company, which started in China and later spread around Asia and into India and South America, sold exports to Wal-Mart for 10 years. “At the end of the 10 years, the contract expired, and that was good because George had become sick then,” Billingsley said. George Billingsley passed away in July 2002. While George was still living, the couple enjoyed being involved in activities at Arkansas Children’s Hospital, especially the Children’s Circle of Care. Circle of Care is a giving society in the United States and Canada that honors individuals and family foundations who give $10,000 or more a year to their local children’s hospitals. Every year, a different city hosts a leadership conference, medical symposium and gala, which brings together Circle of Care members from across the continent. Conference attendees are treated to world-class entertainment and a special look at the exciting work being done by pediatric hospitals. “I’ve gone to a lot of the conferences and listened to the doctors speak,” Billingsley says. “Dr. Jim Aronson from our hospital spoke one year, and he was amazing. I was so proud of him and Arkansas and our hospital.” Billingsley says as long as she’s able, she will continue supporting Arkansas Children’s Hospital and will encourage others to do the same. GOLFING “FORE” KIDS BENEFITS ACH This past spring, family, friends and employees of Dean Crowder Construction, Inc., raised more than $53,000 during the 2007 “Golfing ‘Fore’ Kids” Golf Tournament at the Big Sugar Golf Course in Pea Ridge, Ark. The tournament was held in honor of 8-year-old Lindsey Drue Crowder, of Bentonville, a cancer patient at ACH who is in remission. Crowder Construction employees pictured are: (front row, from left) Tim Brewer, Reece, Lindsey and Dawson Crowder (siblings), Cassie Webb and Justin Cummings. Back row, from left: Brian Pickett, Melissa King, Diana Whitsell, and Lindsey’s parents, Lisa and Todd Crowder. 7 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 8 HOSPITAL NEWS Gov. Mike Beebe, along with ACH and UAMS leaders and other friends and supporters were joined by children served by the center for the ceremonial ribbon-cutting to officially open the Center for Children in Lowell. Center for Children in Lowell First Step in Efforts to Bring Pediatric Health Care Closer to Home T he Center for Children in Lowell celebrated its grand opening in mid-May as part of a collaborative project of Arkansas Children’s Hospital and the University of Arkansas for Medical Sciences (UAMS). The new facility provides developmental and subspecialty medical care by physicians from ACH and UAMS to children in northwest Arkansas. The center houses the Schmieding Developmental Center, the Schmieding KIDS FIRST program and various regional clinics, all previously located in Fayetteville and Springdale. “With this new, shared outreach, thousands of families will not have to make the long trip to Little Rock for their child’s initial evaluation or clinic visits for follow-up medical attention,” says Dr. Jonathan Bates, ACH president and CEO. During 2006, patients from northwest Arkansas made nearly 14,000 visits to ACH. The extension of services in Lowell is expected to improve the flow of appointments in Little Rock, which will help children from all areas of Arkansas. The statewide working collaborative between ACH and the UAMS Department of Pediatrics is collectively called Centers for Children and includes the Lowell location. The collaborative was formed to enhance access to pediatric subspecialty care across Arkansas and strengthen and expand the 24 existing regional clinics located in El Dorado, Fort Smith, Harrison, Helena/West Helena, Jonesboro, Mountain View and Texarkana. Pediatric subspecialty services offered in Lowell include adolescent medicine, allergy, cardiology, endocrinology, gastroenterology, nephrology, neurology, pulmonology and rheumatology. The center is expected to offer 298 clinics in the next year. NEWLY ELECTED — Photo coming from ACH ACH Board Skip Frantz Chairman, Windstream Corp. Little Rock 8 ACH Board Whit Hall, M.D. ACH Chief of Staff, Neonatology professor and director of intensive care nursery at UAMS ACH Board Kate Schaffer State Board President-elect Circle of Friends Hot Springs ACH Foundation Steven Ransdell Financial Consultant, Metropolitan Investment Professionals President, Committee for the Future Little Rock 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 9 Quiet Heroes GIVING ANONYMOUS DONORS: The of ACH Alyssa Anderson W hen a gift is made to Arkansas Children’s Hospital, staff members in the ACH Foundation do their best to appropriately publicize and recognize the contribution. In addition to any external publicity the donor may receive, all donors who give $1,000 or more annually are listed on the Wall of Honor in the main hospital lobby and are published in the Donor Roll in the ACHiever magazine. “We always hope we can recognize donors’ gifts publicly because it’s another way their gift helps us,” says Libby Smith, senior vice president of the ACH Foundation. “We ride on the shoulders of our good friends, and our reputation is enhanced by friendships with people whose reputations are admired. It’s also an encourager for others who know them to think, ‘Well, if my friend can make such a gift to Arkansas Children’s Hospital, maybe I can do something similar.’” But not all donors are interested in receiving publicity for their gifts to the hospital. Many of these donors choose to give anonymously – they are quiet heroes. At Arkansas Children’s Hospital, anonymous donors don’t fall into any specific “category” of giving. Some are big givers, some are small givers, some give to specific programs, some give undesignated gifts. Among the programs/areas supported by anonymous gifts in 2006 year were research, cancer, endowment and child life. One donor who gives anonymously to ACH says she and her husband support the hospital because their child has been a long-time patient. “Over the years, we have come to love this place, and we are thankful we are able to help,” she says. “The doctors, nurses and staff truly love our child. The care and respect that our child – and our entire family – receives consistently exceeds our expectations.” Their reason for giving anonymously is a humble one: “The Lord has blessed our family in so many ways and has provided for us amazingly. God is the one to be recognized for any gifts we are able to give, and we are happy to be able to pass the blessings on to help others.” The largest donation from an anonymous donor last year – $745,330 – was made in support of the autism research currently being done by Dr. Jill James*, director of the Autism Metabolic Genomics Laboratory at the Arkansas Children’s Hospital Research Institute (ACHRI). The donor is an out-ofstate parent of an autistic child that Dr. James had worked with previously. The gift will fund a three-year autism study. “We hope to determine whether targeted nutritional supplementation will normalize the metabolic imbalance in these children and whether improving their metabolism will also improve their behavior,” says James. “The major gift from this donor makes such a big difference in what we are able to do for the children.” Not all anonymous donors support Arkansas Children’s Hospital because of a personal experience. One donor recently made a very generous gift in honor of work partners to whom he credited his business success. The donor had never needed the services of ACH, but some of his employees had been involved in a volunteer group that raised money for the hospital. The donor was so private about the gift that he asked his partners to present it to ACH, rather than present it himself. Whatever their reason for giving anonymously, Smith says the Arkansas Children’s Hospital Foundation takes great care in protecting the identity of its anonymous donors. “Certainly we don’t publish the gift on our donor wall. We don’t publish it in any of our publications. We don’t discuss it in the company of others. Any staff member who may know about the gift is pledged to confidentiality. We would even be careful about inviting the donor to events,” Smith says. “Regardless of how much we might wish to publicly recognize the donor, we will not do it. We will safeguard that confidentiality.” *Jill James, Ph.D., is director of the ACHRI Autism Metabolic Genomics Laboratory; professor of pediatrics at UAMS College of Medicine; and a member of the Arkansas Center for Birth Defects Research and Prevention. Miracle Ball — — December 8, 2007 The second annual Miracle Ball, hosted by the ACH Auxiliary, will be held Sunday, Dec. 8 at 6:30 p.m. at Children’s Hall on the ACH campus. For more information on the Miracle Ball, contact Robin Rhoades, 501-364-1491. 9 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 10 GIVING Children’s Circle of Care Members Celebrate Giving, Philanthropy F or a few days in May, a group of Arkansas Children’s Hospital Children’s Circle of Care (CCC) members experienced the sights, sounds and tastes of Boston while attending the 2007 North American Leadership Conference. At the conference, ACH delegates were joined by nearly 1,400 CCC members from across North America. Children’s Circle of Care members are individuals and family foundations who make annual gifts of $10,000 or more to their local children’s hospital. To kickoff the two-day conference, ACH guests were treated to a reception and clambake dinner. The dinner was held with delegates from All Children’s Hospital in St. Petersburg, Fla. During the medical symposium, physicians from across the U.S. gave moving and innovative presentations about pediatric AIDS, fetal cardiac intervention and pediatric interventional radiology. Other events at the conference included a roundtable philanthropy discussion with the wives of local sports team owners, and a black-tie gala dinner to celebrate the giving spirit of CCC members. Legendary singer Elton Conference attendees were John performs for conferentertained with a performence attendees after the ance by Elton John and a gala dinner. concert by the Boston Pops Orchestra. Tours of Boston landmarks also were available to CCC members. Children’s Circle of Care is an organization of 23 North American children’s hospitals. Locally in 2006, 104 CCC members gave $3.8 million to ACH and the ACH Research Institute. For more information about Children’s Circle of Care, or to become a member, contact Libby Smith at 501-364-5309. 10 Everyone is all smiles as the Arkansas Children’s Hospital delegation gathers at the conference gala dinner. Attendees included: (front row, from left) John Bel, Tip Pugh, Dr. Tim Martin, (second row) Judy Bel, Suzanne Pugh, Melanie Frueauff, Pat McClelland, Sara Richardson, (third row) David Frueauff, Pam English, Marilyn Bogle, Boyce Billingsley, Lesley Roberts, Cheryl Jaquiss, Frances Buchanan, Pat Allen, Libby Smith, (last row) Jim McClelland, Sam Buchanan, Dr. Jonathan Bates, Sam Richardson, Pete Allen, Dr. Jake Jaquiss, Dr. Sally Bates. Attending the conference, but not pictured: Helen Sharpe. Founding Sponsors: Silver Sponsors: Costco Wholesale The Oki Foundation AJ Gallagher Bank of America Corporation Bentz Whaley Flessner Goldman Sachs The H.N. and Frances C. Berger Foundation Kintera Nixon Peabody LLP Opus Search Partners Tsoi/Kobus & Associates The Westin Boston Waterfront Signature Presenting Sponsors: Cushman and Wakefield of Massachusetts, Inc. Fidelity Investments Harrah’s Entertainment, Inc. Tudor Investment Corporation 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 11 HOSPITAL NEWS Dr. John Carroll shares his special day with wife Tiziana, mother Lillian Carroll, and daughters Maddy, Molly and Maggie. Carroll Named First Recipient of the James H. Hamlen, II, Endowed Chair in Pediatric Pulmonology D r. John L. Carroll* was recently installed by Arkansas Children’s Hospital as the first holder of the James H. Hamlen, II, Endowed Chair in Pediatric Pulmonology. At the investiture ceremony, Carroll’s longtime friend and associate, Dr. Gerald Loughlin, offered collegial remarks. He commented on Carroll’s ambition, drive and love of his field. “When John does something, he does it full-tilt, be it research trials or clinical care,” said Loughlin, professor and chairman of the department of pediatrics at New York Presbyterian Hospital. “With a leader like John, the future is very bright for Arkansas Children’s Hospital.” The endowed chair creates a fund set aside in perpetuity with the earnings dedicated to the support of the chairholder. Endowed chairs Patti Martin (center), ACH director of audiology and speech pathology, was joined at the Hamlen Endowed Fund celebration by her parents, Pat and Wes Freemyer, along with other ACH team members, doctors and board members. Audiology and Speech Pathology Endowed Fund Announced T he James H. Hamlen, II, Endowed Fund for Audiology and Speech Patholgy recently was created thanks to a gift to Arkansas Children’s Hospital through Mr. Hamlen’s estate. The endowment will support the work of the audiology and speech pathology departments at ACH. The audiology department provides services that include the identification and measurement of hearing loss, therapies for children with hearing impairment and parent counseling. Continued on page 15 support a designated program and help with retention and recruitment of doctors. Since 2000, Carroll has been co-director of the ACH Sleep and Breathing Disorders Center and director of the ACH Asthma Care Center. *John Carroll, M.D., is director of pediatric pulmonary medicine at ACH, co-director of the ACH Sleep and Breathing Disorders Center, director of the ACH Asthma Care Center and a professor in the pediatrics and physiology departments at UAMS College of Medicine. James H. Hamlen, II, and His Last, Best Gift to ACH J ames H. Hamlen, II, became interested in Arkansas Children’s Hospital almost 27 years ago, when the daughter of an employee received surgery at ACH. Hamlen’s largest lifetime gift to the hospital was a donation of 476 acres of timberland in 1995, which he designated to the construction of the Arkansas Children’s Nutrition Center and for endowment for the Arkansas Children’s Hospital Research Institute. Hamlen died in 2004 and left a bequest to ACH in excess of $4 million, the largest bequest in the hospital’s history. The Hamlen bequest created endowed chairs in otolaryngology, endocrinology and pulmonology, along with a permanent endowment for the audiology and speech pathology program. “James Hamlen set a great tradition of giving, and through his giving, was a great example to others,” says Dr. Jonathan Bates, president and CEO of ACH. 11 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 12 CHILDREN’S MIRACLE NETWORK Wal-Mart/Sam’s Club Celebrates 20-Year Anniversary Helping Children Across America I n May, Wal-Mart and Sam’s Clubs nationwide were recognized by Children’s Miracle Network (CMN) for 20 years of fundraising in support of children’s hospitals. To commemorate the milestone anniversary, Wal-Mart and Sam’s Club associates set a goal of raising $10 million for CMN in the month of May. The goal was reached, and $292,604 was raised by Wal-Mart and Sam’s Club associates, customers and members in the ACH market. This includes 135 locations across Arkansas, north Louisiana, east Texas and east Oklahoma. Miracle Balloons were sold for $1 during the month-long campaign, and each dollar raised locally benefits the patients and families at ACH. “Wal-Mart and Sam’s Club associates continue to be amazing partners with Arkansas Children’s Hospital,” said Jennifer Selig, ACH Children’s Miracle Network director. “The enthusiasm of associates to raise funds for ACH during the May campaign was truly inspiring. We couldn’t help so many children without the support of our friends at Wal-Mart and Sam’s Club.” This year, Wal-Mart and Sam’s Club associates have already raised more than $551,000 for Arkansas Children’s Hospital. In 1987, moved by a desire to impact the medical needs of children, Sam Walton, founder of Wal-Mart, partnered with CMN. In total, Wal-Mart associates have raised more than $387 million for children’s hospitals since 1987. As one of the celebration activities for the 20th anniversary of CMN and Wal-Mart/Sam’s Club, XM Kids Radio hosted a traveling road show. The station visited 12 children’s hospitals across the country in 20 days. The goal of the road show was to help promote the Wal-Mart and Sam’s Club $10 million goal. XM Kids staff toured the hospital and interviewed caregivers and patients, including Shelby Clinton, who is pictured here with Robby Schaefer (left) and Jinx, XM Kids on-air personalities. Miracle Mile Participants Walk for Children P eople from all over the region came together May 5 to raise funds and awareness for Arkansas Children’s Hospital at the third annual Miracle Mile Walk, a one-mile walk that stretched from the Arkansas Capitol to the ACH campus in downtown Little Rock. More than 400 people participated in the event, which was open to representatives from Children’s Miracle Network national sponsors, including Wal-Mart/Sam’s Club, Arkansas Federal Credit Union, Log a Load for Kids and others. Food and festivities for the event were provided by Coca-Cola, On the Border, Papa John’s and Coleman Dairy. ACH supporters of all ages walked in the 2007 Miracle Mile event, which led participants from the Capitol to the ACH campus. All proceeds from the event benefited ACH. 12 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 13 Lisa Martin (Nevada County Picayune) CHILDREN’S MIRACLE NETWORK The South Central chapter of Log a Load for Kids hosted an event in June at the Nevada County fairgrounds that raised $120,000 for ACH. One of the event activities was a turtle race for children. Here, children show off their prize-winning turtles. Log A Load for Kids Raises Record Amount for ACH L og a Load for Kids, a national sponsor of Children’s Miracle Network (CMN), is an organization of loggers and people in the forest products industry who raise funds for local children’s hospitals associated with CMN, including Arkansas Children’s Hospital. The Arkansas chapter of Log a Load for Kids has been busy the past few months raising $215,000 for a pediatric imaging endowment at ACH. Several events were held: In May, the Central Arkansas Log A Load chapter hosted a golf tournament in Pine Bluff. More than 160 golfers attended the event, which raised more than $16,000. The Molnaird Brothers annual Fish Fry in Strong raised more than $11,000 for ACH and Log A Load for Kids. The Bradley County Log A Load event was held in May and raised more than $43,000. In April, a dinner and auction to benefit ACH and Log A Load for Kids was held at the In Woods Expo event in Hot Springs. The event raised $25,000 and entertainment for the evening was Chuck Leavell, keyboardist for the Rolling Stones. The South Central Log A Load event was held in June at the Nevada County Fairgrounds in Prescott. This year’s event raised a record $120,000, which makes it one of the single, largest Log A Load events in the country. F.O.E. 2006 Donation to Benefit Kidney Research The Fraternal Order of Eagles (F.O.E.) recently presented ACH with a $43,700 donation designated for kidney research. All F.O.E. chapters throughout Arkansas contributed to the gift, which will benefit children like 13-year-old Hunter Clark, a kidney transplant recipient. Hunter’s kidney came from his father, Rick Clark. Hunter is now happily recovering from the transplant surgery, and he is excited to get back to being a normal kid. Because of the giving spirit of F.O.E. members, Hunter Clark and many others have better hope for the future. The F.O.E. 2007 statewide project will be pediatric cancer research. Will Fish For Kids: Fishing Fun for a Good Cause T ooth fairies were flying in Rogers earlier this year, when the Will Fish For Kids bass tournament was held to benefit Arkansas Children’s Hospital. Proceeds from the event totaled $126,054, which directly assists the ACH Dental Clinic. Will Fish For Kids is organized annually by a volunteer group of Wal-Mart vendors. This year, businesses and individuals across northwest Arkansas were asked to become “tooth fairies” for ACH as part of Will Fish For Kids. “Tooth fairies” collected change from customers and employees to contribute to the total amount raised by the tournament. Sixteen businesses and individuals participated, and the program raised more than $3,000. The ACH Dental Clinic provides dental care for hospital in-patients, children treated in the outpatient clinics and children who cannot receive care at a regular dentist due to their special needs and medical conditions. Currently, there are approximately 900 patient visits per month in the clinic. Those patients came from 70 Arkansas counties. “Will Fish For Kids, in conjunction with great partners like Wal-Mart vendors and the FLW tour, allows our dental clinic to perform state-of-the-art dental services for all children, regardless of their medical or developmental issues,” says James Koonce, DDS, MSD, director of the ACH Dental Clinic. “Will Fish For Kids will soon afford our patients the opportunity for more accessible dental care in many communities in Arkansas through a mobile dental care program.” 13 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 14 AUXILIARY GROUPS Circle of Friends (COF) board members Beverly Keener, president (left), and Kim Williams, president-elect, show off a check representing the COF fundraising total to John Bel, ACH Foundation president. COF members now have even more to celebrate – June fundraising totals were better than expected, and the actual total raised by COF over the past year was $738,982. Celebrating a Year of Growth: Circle of Friends State Conference I n 2007, Circle of Friends (COF) had a record fundraising year, held more outreach projects than ever before and prepared a special report to showcase COF’s many accomplishments and goals. These achievements were highlighted at the 2007 Circle of Friends State Conference held in June and attended by more than 100 members. At the conference, which took place on the ACH campus, a new slate of COF state board officers was approved, and the total amount raised for 2007 was announced. A special “Report to Our Community” was also presented to members. The report, which reveals the COF fundraising totals and goals for the future, and highlights the group’s funding priorities, will be used as a recruitment tool for the organization. To view the report visit www.archildrens.org/circleoffriends. Members also heard from Mary Cantrell, director of the PULSE Center, and received tours of the PULSE Center, the neonatal intensive care unit, Camp Wannaplay (playroom in hospital) and the cardiovascular intensive care unit. The day concluded with an awards ceremony to recognize the chapters who excelled over the past year. Highlights of the awards presented: Highest per capita revenue, population more than 50,000 – Northwest Arkansas Highest per capita revenue, population less than 50,000 – Harrison Highest dollars raised overall – Northwest Arkansas Outreach award – Spring River Outstanding growth award – Northwest Arkansas Volunteer award – Spring River Member of the Year – Clara Sims, Harrison Chapter Chair of the Year – Cristy Smith, NWA Committee for the Future ACH Auxiliary Has Banner Fundraising Year Celebrates Successes T C ommittee for the Future (CFF) recently celebrated 20 years of supporting Arkansas Children’s Hospital with an anniversary party. Held at the Clinton School of Public Service, members both past and present heard from Skip Rutherford, current dean of the Clinton School and first president of CFF. “The anniversary party was a really great opportunity for members from the past 20 years to come together and celebrate our successes,” says Steven Ransdell, president of CFF. “It was interesting to see how far we have come and to look ahead at the next 20 years.” In 1987, CFF was founded by a group Continued on page 15 14 he ACH Auxiliary recently presented the hospital with the organization’s largest donation to date — $525,000. The main focus of the group’s funding is the Jerry Jones, M.D. — ACH Auxiliary Endowed Chair in Child Maltreatment. Other projects being funded by the Auxiliary’s 2007 donation include the ACH Research Institute, the Good Mourning program, PalCare and Comfort Foods. The Auxiliary raised the funds Auxiliary president Sue Cooper presents the a through four fundraisers: Star check representing the $525,000 the group ACHievers volunteer program, raised last year to Dr. Jonathan Bates, ACH Arkansas a la Carte, the Holiday president and CEO. Card project and the Miracle Ball. The Playaway Gift Shop, located in the hospital, also contributed $200,000 of the Auxiliary donation. For more information about the ACH Auxiliary, contact Robin Rhoades at 501-364-1490. 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 15 GIVING Thanks to You! The following individuals, businesses, foundations and organizations held fundraising events or made special gifts to benefit Arkansas Children’s Hospital during the last quarter. The time, talents and true acts of generosity from these special people help us in our mission to provide care, love and hope to patients and families. The Alicia Rose “Victorious” Foundation recently donated a 42” plasma television, a DVD/CD player, 50 DVDs and a digital camera with a photo printer for the teen room in the hospital. The foundation, which was established in memory of a teenage girl who died of cancer in a children’s hospital, is also donating a $5,000 grant for the Child Life and Education department to use in the teen room. Ash Grove Cement Company raised more than $31,000 for ACH during a golf tournament at the Texarkana Golf Ranch. A team of Ash Grove Cement Company employees and volunteers organize the tournament each year. Aven Dunlap, of Jonesboro, recently completed the Country Music Marathon in Nashville, Tenn., in memory of her stepdaughter, Meagan. Aven’s run resulted in donations totaling $5,000 for the ACH cancer program. At the 2007 Blevins Benefit Barbecue, $7,294 was raised for ACH. Community volunteers have organized the event for 21 years. In April, ExxonMobil Corporation hosted its annual “Pumping Miracles” cardstock campaign, which raised more than $28,000. Cards were sold for $1 at participating Exxon location across Arkansas. The Hot Springs Firefighters recently held a golf tournament at Belvedere Golf Course in Hot Springs. The golf tournament was a fundraiser for Camp Sunshine, a camp for young burn victims. The event raised more than $2,000. Lacy Coyote Pen & Fox Hunters recently held their annual hunting event in Bradley County. The event raised $12,000 for ACH. The Little Rock Firefighters recently hosted a golf tournament at Eagle Hills Golf Course in Little Rock, raising $9,000 for the burn unit at ACH. A wild game supper, sponsored by Southeast Arkansas Delta Men’s Association, raised $30,000 to fund research and other special programs in autism at ACH. In June, RE/MAX locations throughout Arkansas gathered for a Miracle Day awards ceremony and luncheon to celebrate the $68,000 they raised for ACH in 2006. Several offices and agents received awards for their outstanding efforts and generosity. COMMITTEE FOR THE FUTURE Continued from page 14 of eight ambitious men who wanted to support ACH. Since its beginning, the group has raised more than $4.2 million in support of many different ACH projects, including the Committee for the Future Endowment Fund, Angel One Program, Parent Resource Library and the Arkansas Children’s Hospital Research Institute. Committee for the Future is an organization of young professionals and community leaders in the central Arkansas area who support ACH through fundraising, education and community projects. For more information about CFF, please contact Heather Cass at [email protected] or 501-364-7231. AUDIOLOGY ENDOWMENT Continued from page 11 Speech pathology services for infants, children and adolescents include assessment and treatment of a wide variety of disorders including problems with speech, language and feeding. “The Hamlen gift is remarkable,” says Patti Martin, Ph.D., director of audiology and speech pathology at ACH. “It will push us to the next level in the work we are all so passionate about, helping us support kids and their families around the state.” 15 43826:Achiever-test/5.0 8/2/07 2:06 PM Page 16 Gov. Mike Beebe Helps Introduce Natural Wonders, Comprehensive Report on Arkansas Children’s Health In July, Governor Mike Beebe was joined by several young Arkansans as he presented Natural Wonders: The State of Children’s Health in Arkansas during a press conference at ACH. Natural Wonders is the first-ever comprehensive report of the overall health of children in the state. The report, which was initiated and funded by Arkansas Children’s Hospital, was the result of a partnership of health care providers, state agencies and other organizations concerned about the health status of Arkansas children. The report opens the discussion on children’s health by providing a full range of data about issues children face and offers strategies for improving health for the state’s youngest citizens. “This report is really about the future of Arkansas and the future of our children,” says Dr. Jonathan Bates, president and CEO of ACH. “Natural Wonders should serve as an agenda for children’s health. It is a way for all of us to work together instead of scattering our efforts.” The complete Natural Wonders report is available online at www.archildrens.org or by calling 501- 364-9916. Arkansas Children’s Hospital Foundation 800 Marshall Street/Slot 661 Little Rock, AR 72202-3591 Address Service Requested If you receive more than one copy of The ACHiever, please pass the extras along to a friend. Please write to us if you wish to have your name removed from the list to receive the ACHiever magazine from the Arkansas Children’s Hospital Foundation in the future. Arkansas Children’s Hospital Foundation, ACHiever magazine, 800 Marshall St., Slot 661, Little Rock, AR 72202. Nonprofit Organization U.S. POSTAGE PAID Little Rock, AR Permit No. 1441
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