Providing Pediatric Palliative Care in the Perinatal and Infant Populations University of Iowa Children’s Hospital Pediatric Palliative Care Program 200 Hawkins Drive, C100A GH Iowa City, IA 52242 319-356-4107 Date/Location: Wed., November 13, 2013 Holiday Inn Hotel & Conference Center, 1220 First Avenue, Coralville, IA, 52241 Intended Audience: Nurses, social workers, childlife specialists, physicians, music therapists, chaplains, and licensed independent practitioners caring for pediatric patients with life-limiting conditions. Fee & Credits: Early-bird registration fee if payment postmarked by October 23, 2013: UIHC Staff $75 Non-UIHC Staff $100 Students (Nursing/Medical/Social Work Students, Child Life/Music Therapy Interns, CPE Residents) $25 If CME Credits are desired, please add CME fee of $50. After October 23, 2013, please add $25 to each of the above registration fees. Registration Deadline: November 8, 2013 Registration: Pre-registration is required. Complete the attached registration form. Nursing Credits: 0.79 CEUs will be granted by UIHC Department of Nursing (IBN Approved Provider #34). Participants must attend the entire program to receive full credit. Social Work Credits: This program is intended to meet the requirements for 4 hours of social work continuing education credit in the area of assessment and treatment: interdisciplinary consultation and collaboration Sponsor: University of Iowa Children’s Hospital Pediatric Palliative Care Program Purpose/Description: This program will highlight current and emerging topics in pediatric palliative care during the prenatal and newborn periods, and issues that may continue into childhood. Objectives: 1. 2. 3. 4. 5. 6. 7. 8. Describe services offered by the Perinatal Palliative Program. Discuss duality of rationality and emotions in clinical decision-making. Understand the role of emotions and hope in ethical decision-making. Understand the pros and cons of nutritional support and how to present feeding and nonfeeding options to families for children approaching the end of life. Identify ethical issues related to nutritional support. Understand the role of and supportive services offered by the NICU Rehabilitation Therapies Team. Describe ethical problems surrounding neonates with life-limiting diagnoses. Discuss the impact of perinatal palliative care on patients and families. Schedule: 7:30 a.m. Registration/Vendor Exhibits 8:00 Welcome/Introductions (Rebecca Benson, MD, PhD, Medical Director, Pediatric Palliative Care Program; University of Iowa Children’s Hospital) 8:10 Providing Support Before Birth: Perinatal Palliative Care at University of Iowa Children’s Hospital (Sheila Frascht, BSN, RN, CHPPN, CT, Nurse Clinical Specialist, Pediatric Palliative Care & Grief Services Program; University of Iowa Children’s Hospital) 9:10 Navigating Between Emotions and Rationality in End of Life Decisions (Annie Janvier, MD, PhD, Associate Professor of Pediatrics and Clinical Ethics, University of Montreal; Neonatologist and Clinical Ethicist, Hôpital Sainte-Justine, Montreal) 10:15 Break/Vendor Exhibits 10:35 Nutrition in Palliative Care: Enhancing Quality of Life (Anne Tabor, MPH, RD/LD, Center for Disabilities and Development; University of Iowa Children’s Hospital) 11:35 Lunch/Vendor Exhibits 12:15 The Role of Rehabilitation Therapies in Providing Palliative Care in the NICU (Kathi Anderson, DPT, Physical Therapist; Kim Hawkins, MT-BC, NICU-MT, Music Therapist; Robin Ostegaard, BS, CCLS, CIMI, Child Life Specialist; Melissa Smith, OTR/L, CIMI, Occupational Therapist; University of Iowa Children’s Hospital) 13:15 Break/Vendor Exhibits 13:30 Life Sustaining Interventions for Neonates with Life-Limiting Diagnoses: The Example of Trisomy 13 and 18 (Annie Janvier, MD, PhD, Associate Professor of Pediatrics and Clinical Ethics, University of Montreal; Neonatologist and Clinical Ethicist, Hôpital Sainte-Justine, Montreal) 14:40 Impact of Perinatal Palliative Care on Patients and Families (Moderator: Sheila Frascht, BSN, RN, CHPPN, CT, Nurse Clinical Specialist, Pediatric Palliative Care & Grief Services Program; Noelle Andrew, MDiv, BCC, Associate Director of Spiritual Services; University of Iowa Hospitals and Clinics) 15:50 Wrap-Up/Evaluation/CEU Recording 16:00 Adjourn ACCREDITATION: The University of Iowa Roy J. and Lucille A. Carver College of Medicine is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians. CREDIT: The University of Iowa Roy J. and Lucille A. Carver College of Medicine designates this live activity for a maximum of 6.25 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. Providing Pediatric Palliative Care in the Perinatal and Infant Populations November 13, 2013 Registration Form Name: _______________________________________________________________ Credentials: ___________________________________________________________ Position Title: _________________________________________________________ Employer: ____________________________________________________________ Address: _____________________________________________________________ City: ______________________ State: _________ Zip: ______________________ Work Phone: _________________________________________________________ License Number: _______________________________________________________ E-mail Address: ________________________________________________________ The registration fee covers the cost of program materials, awarding of continuing education credits, faculty expenses, refreshment breaks, and the luncheon. Full refund of registration fee will be made if cancellations are received on or before November 8, 2013. Registration fees are nonrefundable after that date; substitutions are permitted. Submit registration form and payment by November 8, 2013 Make checks payable to: University of Iowa Children’s Hospital Completed registration forms and payment should be sent to: Sara English University of Iowa Hospitals and Clinics Pediatric Palliative Care Program 200 Hawkins Drive-C100A GH Iowa City, IA 52242-1009 The University of Iowa prohibits discrimination in employment, educational programs, and activities on the basis of race, national origin, color, creed, religion, sex, age, disability, veteran status, sexual orientation, gender identity, or associational preference. The University also affirms its commitment to providing equal opportunities and equal access to University facilities. For additional information contact the Office of Equal Opportunity and Diversity, (319) 335-0705. Individuals with disabilities are encouraged to attend all University of Iowa sponsored events. If you are a person with a disability who requires an accommodation in order to participate in this program, please contact the Pediatric Palliative Care Program in advance at 319-356-4107.