Resources For Children (from birth up to third birthday) with Developmental Delays in Delaware County Introduction This booklet is prepared to help families who are facing challenges pertaining to their child’s growth and development. Regardless of what your concern is - or how big or small it may be - we are here to help! We in Delaware County are committed to offering support in a family-centered approach that is easily accessible, culturally sensitive, and foster independence and selfsufficiency. Thankfully, there are many ways to address childhood developmental delays and behaviors and there are many resources for support in Delaware County. We hope that this booklet can provide some guidance and help in understanding the system of early intervention and the supports that are available to you and your child in this community. Whether your child has a challenging behavior, a disability or developmental issue, childhood is short - it should be savored and enjoyed. Members of the Early Childhood Coordination Committee Family and Children First Council 7991 Columbus Pike Lewis Center, OH 43035 www.fcfcdelawarecounty.org Printing costs generously donated by Friends for Life Fund at the Delaware General Health District Important Phone Numbers Table of Contents Parent Rights Getting Started ...Intake and Referral Is my Child eligible for Early Intervention Services? Evaluation and Assessment Service Coordination/Coordinators Individualized Family Service Plan Board of Developmental Disabilities Early Intervention Specialist (EIS) Therapy Picking a Provider (RFP) Waivers Bureau for Children with Medical Handicaps Delaware County Family Support Programs Central Ohio Family Support Programs Transition Child Checks Important Events Important Phone Numbers 22 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 22 PARENT RIGHTS For Parents with children from birth up to child’s third birthday The right to accept or decline some or all services from Help Me Grow program The right to be informed of your rights The right to provide informed written consent before any information about your child or family is shared between service providers The right to provide informed written consent before services begin The right to have your records kept private and confidential The right to review and make changes to records about your child and family at any time The right to request, be present at and take part in meetings about your child and family The right to make a formal complaint about services for your child The right to know to whom to make a written complaint and receive an answer to that complaint within 30 days The right to have your family's priorities and concerns addressed The right to have a designated staff member to support and facilitate your services The right to guide the Individualized Family Service Plan (IFSP) 4 For Parent Rights go to: www.ohiohelpmegrow.org Important Events Delaware County Help Me Grow Getting Started...Intake and Referral The Delaware County Help Me Grow Intake and Referral is located at the Delaware County Board of Developmental Disabilities. To learn about services please call: 740-201-3575 What happens when you call … You will be asked to provide information about your concerns regarding your child’s development. After talking about your concerns, our Intake Coordinator will schedule an evaluation/ assessment with the Evaluation Team. If your child has a qualifying medical diagnosis, an assessment for program planning will be scheduled. If your child does not have a qualifying medical diagnosis, then a developmental evaluation will be scheduled to determine if your child qualifies for Help Me Grow. Our Central Intake and Referral Coordinator will give you more information about the process and what to expect. What Happens Next…. Your child will receive a developmental evaluation to determine eligibility for Help Me Grow and an assessment for program planning. 20 Also see: Eligibility and Evaluation/Assessment 5 Is my Child eligible for Early Intervention Services ? For children who are NOT involved in Help Me Grow Child Checks (also known as Part C Services) Eligibility for Part C Early Intervention services in the Help Me Grow Program includes: Newborns, infants and toddlers who are experiencing a developmental delay in one or more of the following areas: a. Cognitive development b. Physical development, including vision and hearing c. Communication development d. Social-emotional development e. Adaptive development (Self Help Skills) OR Newborns, infants and toddlers who have a diagnosed physical or mental condition as having a high probability of resulting in a developmental delay identified by your child’s physician or identified by the Ohio Department of Health. Financial eligibility is not a requirement for Early Intervention (Part C) eligibility. What Happens Next…. If your child meets the above criteria for Early Intervention services, a Help Me Grow Service Coordinator will contact you and an evaluation/assessment for program planning will be completed to determine if your child qualifies for specialized services. 6 Go to www.ohiohelpmegrow.org for further information Child Checks are designed to help parents identify areas of developmental strengths and concerns for their child. This is a free service that screens children 3 years or older for vision, speech, language, motor development and health history. If services are recommended after the screening, those can be arranged for through your local school district. The services available will be specific to your local school. If a Child Check screening is not available in your local school district your child can participate at any other location. There is a Child Check screening offered once a month somewhere in Delaware County. For further information or to schedule an appointment call Central Ohio Education Service Center at 614-542-4106. Continue to ask questions, seek help and educate yourself on resources and programs that directly relate to your child's disability and needs. 19 Transition Preparation for transition from Help Me Grow/Early Intervention will occur prior to a child’s 3rd birthday. Preparation for Transition At least 180 days prior to a child’s 3rd birthday, the HMG Service Coordinator will inform parents of their right to invite attendees to a Transition Planning Conference (TPC). At least 90 days prior to a child’s 3rd birthday, the HMG Service Coordinator will get permission to release information to the local school district and work with the families and local school district to schedule a transition planning conference. HMG will send a formal invitation to all potential attendees as well as sending information regarding the student to the local school district (IFSP, release, assessments, progress reports, etc.) A transition planning conference will be held at least 90 days prior to the child’s 3rd birthday (or upon enrollment if the child was referred to HMG 46-90 days before their 3rd birthday). During the transition planning conference the attendees will review the child’s most current information and determine if the child is suspected of having a disability that would confer Part B eligibility. If the child is suspected of having a disability, the local school district will start the referral process for an evaluation. If the child is not suspected of having a disability under Part B, the LEA will send the parents Prior Written Notice indicating why a disability is not suspected. 18 Evaluation and Assessment Your child will receive a free developmental evaluation to determine eligibility for Help Me Grow and an assessment for program planning. To determine eligibility because of a suspected developmental delay, an evaluation by two qualified, licensed personnel must be completed in the following five domains: cognitive, physical, communication, social-emotional and adaptive. We use the Battelle II Evaluation in Delaware County. Vision, hearing, and nutrition screenings will be completed. If your child has a medical diagnosis that makes them eligible for Early Intervention, then an assessment for program planning will be completed. We use the HELP (Hawaii Early Learning Profile) Assessment Tool. A Family Routines Questionnaire will be completed with you to learn about your priorities and concerns for your child and for your family. After your child’s Evaluation/Assessment is completed and services are recommended, your Service Coordinator will review your evaluation with you, assist you in writing your IFSP (Individualized Family Service Plan) and will tell you about resources in Delaware County that will help you and your child. 7 Delaware County Help Me Grow Program Service Coordination Service Coordinators work in partnership with families, supporting and recognizing them as the decision makers for their child. The Service Coordinator is responsible for the following: Assuring that you have been informed of your “Parent Rights”. Assuring that an evaluation in all five developmental domains, an assessment for program planning, and a family assessment are completed, with your consent. Assuring that hearing/vision/nutrition screenings are Completed, with your consent. Facilitating and participating in the development, implementation, review and monitoring of your family plan for services. This plan is called the Individualized Family Service Plan (IFSP). Identifying and providing choices of specialized services and other providers. Informing families of the availability of family support services. Coordinating and monitoring the delivery of services. Coordinating transition to other programs and services. Central Ohio Family Support Programs Other family support programs and resources available in Central Ohio for the parents and families of children with disabilities include: Down Syndrome Association of Central Ohio – offers age-specific support groups for parents of children with Down Syndrome. www.dsaco.net Nationwide Children’s Hospital – provides parent education for a variety of disabilities. www.nationwidechildrens.org 4P Support Group- provides support for families involved with 4th Chromosome conditions. www.4p-supportgroup.org CHADD of Columbus– provides programs for anyone whose life is impacted by ADHD www.chadd.org CP Parent Columbus– provides programs for families involved with cerebral palsy. www.cpparentcolumbus.org Central Ohio Breath of Support– provides programs for mothers of children with complex medical needs http://health.groups.yahoo.com/ groupCentralOhioBreathofSupport COBIDA– provides programs for parents of dyslexic students www.cobida.org or www.interdys.org Information on other Specialized Support Group Programs in central Ohio (Disruptive Behaviors, Eosinophil Associated Disorders, Prader-Willi, Stuttering and other Special Needs) can be found at www.dcbdd.org/Training & Resources/Support Groups for Parents 8 Also see Individualized Family Service Plan (IFSP) 17 Delaware County Family Support Programs Family support programs in Delaware County provide assistance and support to families in navigating the multiple systems involved with early intervention. There are a variety of family support opportunities for families in Delaware County. These opportunities include: Personal Family Support - A Family Support Specialist is available to offer personal support to families in the Help Me Grow program and to provide families with information on programs and resources available for their children with special needs. Down Syndrome Playgroup - Available for families of children (birth - 9 years of age) with Down syndrome. Autism Support Group - Available for families of young children with Autism or behaviors consistent with that diagnosis. Parent Pages Newsletter - The newsletter is distributed each month to all families in the Delaware County early intervention programs. Transition Workshops - These workshops provide families with information on your child’s eligibility to transition to school age programs. Individualized Family Service Plan Your Individualized Family Service Plan, also known as your IFSP, identifies resources to assist you in meeting your child and your family’s goals. Your IFSP is a written plan that lists outcomes and goals for your child and your family. Your IFSP is written with input from you, about your child and family’s strengths and needs, the evaluation team, your Service Coordinator, and any service providers working with your family. Your IFSP will list the services that will be provided to assist you in meeting your outcomes. Your Service Coordinator will set up a time to write your initial IFSP and then continue to review your IFSP every 180 days. If your needs change, before your 180 day review, your Service Coordinator can assist you in changing your IFSP outcomes and services, with your consent. Contact the Delaware County Help Me Grow Program for more information concerning Family Support Programs and to be connected with the Family Support Specialist. After your initial IFSP is written, your Service Coordinator will set up a time to review your IFSP every 180 days. 16 Also see: Early Intervention Specialist 9 Delaware County Alternative Funding Resources Board of Developmental Disabilities Bureau for Children with Medical Handicaps (BCMH) Delaware County Board of Developmental Disabilities (DCBDD) is an agency that serves eligible Delaware County individuals from birth through adult with special needs BCMH links families of children with special health care needs to a network of quality providers and helps families obtain payment for the services their child needs. Services provided by DCBDD include: Early Intervention: from birth up to child’s third birthday Family Support: from 3 years of age up to a child’s eighth birthday Transition Support: 8 years of age through High School graduation Adult Support: after High School graduation Waiver Programs: * Level One * Individual Options (I.O.) * SELF (Self Empowered Life Funding) * Transition An Early Intervention Specialist (from birth up to child’s third birthday) or a Support Administrator (from 3 years of age up to adult) can be assigned to work with eligible individuals and their families. 10 BCMH serves individuals under the age of 21, who are residents of Ohio and are seeing or will be seeing a BCMH approved physician. BCMH diagnostic program pays for services to rule out a medical problem or connect to specialized services for a plan of treatment. BCMH treatment program pays for services related to a chronic medical issue determined by a BCMH physician. BCMH is the payer of last resort after insurance and Medicaid. BCMH may be able to pay for co-pays and deductibles. Contact your Help Me Grow Service Coordinator or your local Health Department to find out more information. In Delaware County your local Health Department is Delaware General Health District at 740-203-2040 Also see: Service Coordination 15 Alternative Funding Resources Waivers Waivers are alternative funding sources with specific eligibility requirements that provide a Medicaid card and access to services. Contact your Early Intervention Specialist (EIS) at Delaware County Board of Developmental Disabilities (DCBDD) for information concerning different types of Waivers and your child’s eligibility. Your Early Intervention Specialist (EIS) will explain Waiver options and services. Services provided through Waivers may include: Therapy Respite Care Adaptive Equipment Other Services (depending on your child’s need and eligibility) Delaware County Board of Developmental Disabilities Early Intervention Specialist (EIS) Early Intervention Specialist (EIS): Is assigned to be the single point of contact for a DCBDD eligible child (from birth up to child’s third birthday) and family. Preauthorizes and monitors services, provided through the DCBDD, based on child’s needs (e.g. therapy, community classes, respite, etc.) Communicates with families during home visits to provide information, strategies, and support in child’s everyday routines and activities Provides on-going assessment of child’s development Once assigned, the Early Intervention Specialist (EIS) will meet with the family and the Help Me Grow Service Coordinator to identify strategies to meet the child’s needs. . 14 Also see: Service Coordination 11 Therapy Picking a Provider Types of therapy may include: Speech Therapy – helps child with understanding and speaking Occupational Therapy – helps child with using small muscle motor skills, eating, or how to process information through the senses. Physical Therapy – helps child with large muscle body movements such as rolling, sitting, crawling, walking, changing positions Music Therapy Other Therapy – nutrition, behavior, etc. Families are free to choose a provider (speech therapist, physical therapist, etc.) based on their eligible child’s needs, family schedule and available funding. Options for funding therapy include: Medical Insurance Medicaid Medicaid Waiver Delaware County Board of Developmental Disabilities (if eligible) Bureau for Children with Medical Handicaps (BCMH) Private Pay Some funding options may require families to meet certain eligibility criteria. Eligibility may or may not be based on income. 12 Also see: Picking a Provider Families may give permission to request a provider through the Delaware County Board of Developmental Disabilities’ Request for Provider (RFP) process. Your Early Intervention Specialist will help you through this process. Families may choose a provider through the Delaware County Board of Developmental Disabilities Provider Book available on www.dcbdd.org, Your Early Intervention Specialist will help you through this process. Families may choose a community provider using private pay, insurance, Medicaid, Bureau of Children with Medical Handicaps (BCMH) or the Early Intervention System of Payment (EISOP). Your Help Me Grow Service Coordinator will help you through this process. 13 Also see: Eligibility, Waivers
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