Conference brochure may 2015:Layout 1 3/31/15 3:05 PM Page 1 ABOUT HILTON DOUBLETREE Location: 200 Atrium Drive, Somerset, NJ Sharing & Caring Statewide Conference ABOUT THE NEW JERSEY CHAPTER Huntingtonʼs disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral, and physical control, and for which, presently, there is no cure. for Huntington’s disease Founded in 1976, the New Jersey Chapter supports the Huntingtonʼs Disease Society of Americaʼs mission: • • • “A Day for Mind, Body & Spirit” To promote and support research and medical efforts to eradicate Huntingtonʼs disease. To assist people and families affected by Huntingtonʼs disease to cope with the problems presented by the disease. To educate the public and health professionals about Huntingtonʼs disease. The NJ Chapter is the only voluntary health agency dedicated to serving Huntingtonʼs disease (HD) families in New Jersey and sponsors family services, education, and research. The Chapter is affiliated with the Samuel L. Bailey Huntingtonʼs Disease Family Service Center at the University of Medicine and Dentistry of New Jersey. The Chapter provides services for HD families at three sites across the state: Newark, Piscataway, and Stratford. For more information on how you can get involved, please visit our website at www.hdsa.org/nj or contact our offices at 973-784-4965. Help for Today, Hope for Tomorrow Sunday, May 17, 2015 NEW JERSEY Chapter Huntingtonʼs Disease Society of America P.O. Box 2103 Clifton, NJ 07015 The Chapter invites you to participate in our fight to cure this devastating disease and to serve those coping with it. There are many ways to help: make a donation, assist at an event, join the Chapterʼs Board of Trustees, volunteer in the Chapter Office, and/or educate legislators about HD. Please Join Us! 10:00 am – 3:30 pm Hilton Doubletree Somerset, New Jersey Sponsored By Conference brochure may 2015:Layout 1 3/31/15 3:05 PM AGENDA 10:00-11:30 am 11:00-12:50 pm REGISTRATION, NETWORKING & BUFFET BRUCH WELCOME & PRESENTATIONS Page 2 KEYNOTE ADDRESS Debbie Pausig, MFT, CT, CCTP Author - “An Affair Worth Remembering with Huntington’s Disease, Incurable Love & Intimacy During an Incurable Illness” Dr. George Yorling, PhD Director of Medical & Scientific Affairs HDSA Research update and Q & A KEYNOTE ADDRESS 12:55-1:40 pm RESEARCH UPDATE Q&A 1:45-2:00 pm SNACK BREAK 2:00-2:45 pm HDYO 2:45-3:00 pm NJ STATE ADVOCACY 3:00 SCREENING REGISTRATION FORM Days events courtesy of New Jersey Chapter HDSA Ned Cancelmo, President Mike Campbell, Vice President Mary Perehinec-Germano, Treasurer Faye Gregory-Yuppa, Secretary Mary Claire Cancelmo Dr. Daniel Schneider, MD MA Suzanne M. Carter, Esq. Charissa Rahill Jeannine R. Roland Colleen Barnes-Walsh Stacy Waterman Number of People Attending:________ Names of Attendees: _______________________________________ _______________________________________ Chandler Swope, HDYO Director of Youth Services Mid Atlantic Region “Talking with Kids about HD” _______________________________________ Street Address: _______________________________________ Town: __________________________________ State:______________ Zip: ________________ Phone: ________________________________ Email: __________________________________ Screening “The Lion’s Mouth Opens” by Lucy Walker Kindly Mail or Sign Up on www.hdsanj.org HDSA-NJ Chapter P.O. Box 2103 Clifton, NJ 07015