What is CDKL5? CDKL5 (Cyclin-Dependent Kinase-Like 5) disorder is a rare genetic condition that was first identified in 2004. It is caused by mutations in The International Foundation for CDKL5 Research (IFCR) was formed in 2009 by a group of dedicated parents whose children have CDKL5. identified in boys, because of the location of the IFCR is a 501(c)(3) non-profit, whose mission is to fund global research efforts in search of a cure; to raise awareness of CDKL5 disorders; and to support families affected by CDKL5 by providing information, education, and resources. gene, this disorder mainly affects girls. The For more information, please visit: www.cdkl5.com the CDKL5 gene, which is found on the Xchromosome. Although many cases have been cause of a CDKL5 mutation and the incidence of CDKL5 disorder are not known at this time. The CDKL5 gene provides instructions for making a protein that is essential for normal brain and neuron development. Most of the children affected by CDKL5 suffer from uncontrollable seizures that begin in the first few months of life. Most cannot walk, talk or feed themselves, and many are confined to a wheelchair, International Foundation For CDKL5 Research dependent on others for everything. Please visit our website for a more comprehensive list of signs and symptoms. http://cdkl5.com/Default.aspx Google: CDKL5Juanjose (First giving Fundraising) For more information contact: Patsy E-mail: [email protected] Phone: (505) 831-8841 KIT CARSON PARK Saturday, October 18th Making a difference… In a child’s life!! Pre-Registration Event Schedule Saturday October 18, 2014 Check-In & Registration 8:30 am Name: Address: Contact #: E-Mail: Walk begins 10:00 am Where: Mail: Entry Forms, Pledge sheets & checks to: CDKL5/Patsy P.O. Box 12064 Alb., NM 87195 KIT CARSON PARK 1744 Kit Carson Ave. SW (Across from the Tingley Duck Pond) Walk-a-Thon Entry Form Please copy this form for additional entries. Pledge sheet provided at request ([email protected]). Check below to indicate your level of participation. Raffle-Great Prizes-Family Fun We encourage you to bring your family, friends, co-workers and acquaintances to help us celebrate our children and raise awareness of CDKL5. Optional Package Includes: $20.00 T-shirt, Tote Bag, Bottled Water and Snack T-Shirts: $12.00 Other Items Available: $10.00 Mug Tote Bag Baseball Cap ___I will walk ___I will walk and I am submitting donation or Pledge Form ___I will not walk ___I will not walk but I am submitting donation from myself and or from donors who want to support CDKL5 Research. ___I’d like to purchase a Package_____ T-Shirt: Size_____ Cap_____ Tote Bag_____ Mug____ Liability Waiver In consideration of my entry, I hereby for myself, my heirs, executors and administrators, waive any release of rights and claims for damages I may have against the IFCR , Tingley Park, City of Alb., the Munoz family & support group of this event-named or unnamed, to participate in, and returning from this event. I grant permission to all forgoing to use any photographs, pictures, recordings, or any other records of this event for any legitimate purpose. Signature: If under age 18, parent or guardian signature is required. Rain or Shine Please, help us find a cure! We can’t do it without you! In the past year, IFCR has been engaged in critical research projects thanks to your generous support, but we can’t stop yet. There is so much more to do, and we have an abundance of hope….together we can find a cure for our children! **Represent CDKL5 Wear** Lime Green / White Colors Donation Greatly Appreciated Please make donation checks payable to: International Foundation for CDKL5 Research Donate Online: www.cdkl5.com or Google: CDKL5JUANJOSE/Firstgiving Fundraising