2014 Research Meeting December 4-5, 2014 Washington Court Hotel Washington, DC Preliminary Agenda Genomics and the Frontiers of Health Science Wednesday, December 3rd 4:00 pm Vice Presidents for Research ELG Early-Arrivals Session (by invitation) Thursday, December 4th 8:00 am Registration 8:30 am Continental Breakfast 9:00 am Welcome Steven A. Wartman, MD, PhD, MACP, President and CEO, Association of Academic Health Centers Morning Session: Current and Emerging Frontiers 9:10 am Genomics and Personalized Medicine: The NIH Undiagnosed Disease Program William A. Gahl, MD, PhD, Clinical Director, National Human Genome Research Institute, National Institutes of Health 10:00 am Your Genomics Core is a Force Multiplier, Not a Business Michael E. Zwick, PhD, Associate Professor, Departments of Human Genetics and Pediatrics, Scientific Director, Emory Integrated Genomics Core, Emory University School of Medicine 10:40 am Break 11:10 am Considerations for Sharing Clinical Trial Data Erin Wilhelm, MPH, Project Director, Center of Excellence in Regulatory Science and Innovation (CERSI), Georgetown University 11:50 am Combining Big Data from the EHR with Genetic Data from a Biobank: Temple's Approach to Participating in a PCORI Clinical Data Research Network (CDRN) Mark G. Weiner, MD, FACP, FACMI, Assistant Dean for Informatics, Professor, Clinical Sciences, Temple University School of Medicine, Chief Medical Information Officer, Temple University Health System 1 12:30 pm Lunch 1:00 pm Lunch Session: NIH Funding and Workforce Update Sally Rockey, PhD, Deputy Director for Extramural Research, National Institutes of Health Afternoon Session: Ethical Frontiers and Case Studies 1:45 pm The 100K Person Wellness Project Nathan D. Price, PhD, Associate Director, Institute for Systems Biology 2:30 pm Customized Treatments for Patients with Early Stage Colorectal Cancer: Georgetown University Medical Center Case Study Louis M. Weiner, MD, Director, Georgetown Lombardi Comprehensive Cancer Center, Georgetown University Medical Center Robert Clarke, DSc, PhD, Professor, Department of Oncology, Co-Director, Breast Cancer Program, Lombardi Comprehensive Cancer Center, Dean of Research, Georgetown University Medical Center Elliott Crooke, PhD, Professor and Chair, Department of Biochemistry and Molecular & Cellular Biology, Georgetown Lombardi Comprehensive Cancer Center, Senior Associate Dean, Faculty and Academic Affairs, Georgetown University Medical Center Sona Vasudevan, PhD, Associate Professor of Biochemistry and Molecular Biology, Adjunct Senior Bioinformatics Scientist, Protein Information Resource, Director, Dual-Degree Program in Systems Medicine, Georgetown University Medical Center 3:30 pm Break 4:00 pm Ethical Issues and Genomics: Presentations and Panel Discussion Arthur Caplan, PhD, Drs. William F. and Virginia Connolly Mitty Professor of Bioethics, Director, Division of Medical Ethics, Department of Population Health, NYU Langone Medical Center Arthur L. Beaudet, MD, Chair, Molecular and Human Genetics, Professor, Molecular and Human Genetics, Pediatrics, and Molecular and Cellular Biology, Baylor College of Medicine (invited) 5:30 pm Reception Friday, December 5th 7:30 am Continental Breakfast Morning Session: Global and Future Frontiers 8:00 am AAHC Benchmarking & Metrics Initiative: New Data on Research Costs Anthony J. Knettel, JD, Senior Director for Policy and Strategy, Association of Academic Health Centers 2 8:45 am Maximizing the Collective Value of Infrastructure and Expertise: A New Approach to Research Ross McLennan, PhD, Chief Executive Officer, Scannexus 9:30 am Break 10:00 am The Future of Health Science Research: Presentations and Panel Discussion Richard A. Gibbs, PhD, Wofford Cain Chair and Professor, Molecular & Human Genetics, Director, Human Genome Sequencing Center, Baylor College of Medicine Richard Harris, Correspondent, Science Desk, National Public Radio (NPR) News Olivier Lichtarge, MD, PhD, Director, Computational and Integrative Biomedical Research Center, Professor, Molecular & Human Genetics, Biochemistry & Molecular Biology, Pharmacology, Baylor College of Medicine 11:30 am Adjourn 11:30 am Planning Committee Meeting and Lunch (VPR Planning Committee members only) 3