FOR LIFE • FOR HOPE • FOR CHANGE • IN THIS ISSUE: Volume 20, Issue 1 FOR THE F U T U R E Winter 2014 A Word from the Board ........................................... 1 Knowledge is Power ................................................ 2 Board of Directors ................................................... 3 In Loving Memory .................................................. 3 11th Annual LI 2DAY Walk - June 7, 2014 ............ 4 MR-Guided Ultrasound Offers Treatment .............. 5 Lend A Helping Hand Testimonial .......................... 6 In the Spotlight ....................................................... 7 2013 Golf Skill Challenge Classic.............................8 New Test May Help Predict Ovarian Cancer ......... 9 Our Sincere Appreciation....................................... 10 Be Smart About Your Health.................................. 11 Thank You .............................................................. 12 Tanger Fit for a Cure 5K ....................................... 13 Girls Club Update ................................................. 14 Vision of Hope Fall 2013 Dedications .................. 14 Vision of Hope Volunteers .................................... 14 Dedicate a Brick .................................................... 15 2013 Founders Award ............................................ 16 Save the Dates ....................................................... 16 A word from the board By Lorraine Geyer Many times I have believed that the statistics were stacked against women on Long Island. The thought entered my mind: If one of every eight women is diagnosed with breast cancer in her lifetime, it wouldn’t be a case of “if” but rather of “when” a cancer diagnosis would occur. I recall when I was informed of my malignant biopsy results by my breast surgeon. Having many previous scares prepared me for receiving the cold message of having breast cancer in 2009. Looking back, it was a moment frozen in time. I knew the task of breaking the news to my husband and children would surely be difficult. I also knew it would frighten them. Then, I’d need to pick up the pieces and start researching my options — where to begin? Although my case resulted in a bilateral double mastectomy, I feel fortunate knowing an early detection plan is critical to combating the disease. The early diagnosis saved my life and gave me an entirely new path. I’m now cancer-free and after my recovtheir laughter, which makes me smile ery, I became inspired by my daughwith pride. It is terrific to see all of ters and their Girl Scout troop. I found them working side-by-side, feeling myself surrounded by ambitious, enerthe energy and cooperative effort. getic young teen women willing to The Babylon Breast Cancer participate with me in maintaining the Coalition offers an array of resources Babylon Breast Cancer Coalition’s and support systems. It has referrals “Vision of Hope” Garden, located at at the ready to medical experts, hosBabylon Town Hall. pitals and treatment suggestions. Our cleanups have become a famGuided by the experienced staff and ily affair, and the experiences are volunteers, I found it very helpful to quite rejuvenating. Currently our speak to women who have faced varclub is committed to grooming the ious surgical experiences, which garden several times a year. This dedhelped me to consider my treatment ication has evolved into The Girls’ options. The BBCC has a network of Club Junior Coalition for the ladies and gentleman who have faced Babylon Breast Cancer the same life-changing afflicCoalition. We enjoy the tion. I realized, unfortugarden, its spirit and its nately, that cancer is beauty. It is a place quite common but, VOLUNTEERS where families can thankfully, in many are not paid for stroll, meditate, or cases it is treatable. their work – not simply sit and relax. The Babylon because it is worthless, but The young teens Breast Cancer because it is have a great sense of Coalition has many PRICELESS! accomplishment and patient programs; for leave behind the echo of (continued on page 3) Knowledge is Power! L.I. COMMUNITY BREAST AND GYNECOLOGIC CANCER GROUPS: Cancer Care 800.813.4673 • www.cancercare.org L.I. Division: 516.364.8130 Babylon Breast Cancer Coalition 631.893.4110 www.babylonbreastcancer.org Cancer Information Services 800.4.CANCER • www.mskcc.org Brentwood/Bay Shore Breast Cancer Coalition • English 631.273.9252 Spanish 631.951.6908 www.bbsbcc.org Coalition for Women’s Cancers at Southampton Hospital 631.726.8715 • www.cwcshh.org Glen Cove C.A.R.E.S. 516.671.0629 www.glencovecares.org Great Neck Breast Cancer Coalition 516.829.1139 • www.greatneckbcc.org Huntington Breast Cancer Action Coalition • 631.547.1518 www.hbcac.org NCI Cancer Trials http://cancer.trials.nci.nih.gov National Institute of Environmental Health Sciences • www.niehs.nih.gov National Breast Cancer Coalition (NBCC) • 202.296.7477 National Cancer Institute 800.4cancer • www.nci.nih.gov National Center for Complementary & Alternative Medicine www.nccam.nih.gov NY State Department of Health 866.881.2809 www.health.state.ny.us Islip Breast Cancer Coalition 631.968.7424 www.islipbreastcancer.com LONG ISLAND BREAST AND GYNECOLOGIC CANCER SUPPORT AND HOTLINES: Long Beach Breast Cancer Coalition 516.943.3404 • www.longbeachbcc.com Adelphi NYS Breast Cancer Support Program 516.877.4320 Hotline 800.877.8077 Lucia’s Angels (late stage support) 631.204.9331 • www.luciasangels.org Manhasset Women’s Coalition Against Breast Cancer • 516.627.2410 www.manhassetbreastcancer.org Cure Mommy’s Breast Cancer 516.967.1148 LONG ISLAND BREAST HEALTH CENTERS: Breast Health Center at Winthrop University Hospital • 516.663.2400 Carol M. Baldwin Breast Care Center Stony Brook University Hospital 631.638.1000 Ellen Hermanson Breast Center at Southampton Hospital 631.726.8466 Fortunato Breast Health Center at Mather Hospital • 631.476.2771 Good Samaritan Breast Health Center 631.376.3736 St. Catherine’s of Siena Breast Health Center • 631.862.3171 OTHER SUPPORT: Cancer Care Hopeline 1.800.813.HOPE (4673) Cancer Services Program of Suffolk Breast and cervical screening for under/uninsured • 631.548.6320 HER2+ Patient Support www.HERconnection.com 866.449.HER2 Latino Health Initiative 631.273.4047 Dr. Benjamin Schwartz Ovarian Cancer Support Groups 631.376.0055 Look Good, Feel Better 631.376.3736 Hewlett House 516.374.3190 Lymphedema Patient Support www.lymphedemapeople.com Northfork Breast Health Coalition 631.208.8889 www.northforkbreasthealth.org LI Oceans Ovarian Cancer Education Advocacy Support Network 631.928.0298 • www.lioceans.org North Shore Neighbors Breast Cancer Coalition • 631.255.2401 www.northshoreneighbors.org North Shore Family Guidance Center Free support groups for teens 516.626.1971 SHARSHERET Breast cancer support for Jewish women • 866.474.2774 • www.sharsheret.org Mid-Nassau Lend A Helping Hand 1.888.420.1030 www.midnassaulahh.org West Islip Breast Cancer Coalition for LI • 631.669.7770 • www.wibcc.org SHARE – Breast Cancer Hotline 866.891.2392 NATIONAL ORGANIZATIONS: Ovarian Cancer Hotline 866.537.4273 American Cancer Society 800.ACS.2345 • www.cancer.org Suffolk 631.300.3185 Nassau 516.921.6082 Breast Cancer Action 877.2STOPBC • www.bcaction.org Latina Hotline 212.719.4454 Suffolk Y JCC Support group for breast and ovarian cancer patients • 631.462.9800 2 • www.babylonbreastcancer.org • WINTER 2014 Long Island Cancer Help & Wellness Center • 631.675.9003 SIBS Place Support for children with a parent or sibling with cancer • 516.374.3000 Sisters Network, Inc. Breast cancer support for African American women www.sistersnetworkinc.org Witness Project of Long Island Breast and cervical cancer education for African American women 631.422.7642 BBCC Board of Directors: Tess Helfman, President Suzanne Schettino, Vice President Darrell Conway, Esq., Secretary Frank Pokorney, Treasurer Beth Anderson Lorraine Geyer Debbie Kolovich Karen Kunkel Kim Mascolo Jon Mason Fran Sweeney Erika Tripoli newsletter Editorial committee: Kayla Geyer, Junior Copy Contributor Tess Helfman Donna Jurasits Suzanne Schettino Claire Meirowitz, Copy Editor Agapito Design Studio, Graphic Design A word from the board (continued from the cover) example, Lend a Helping Hand, SOS, and Gift of Health & Inspiration Bags. I have a great deal of respect and admiration for the board and the volunteers. They are very dynamic community leaders who are passionate about their cause. There is an outstanding amount of selfless devotion that goes into all the fund-raising programs. I am amazed at how many wonderful events are so successful, such as the Tanger Outlets at the Arches 5K Run/Walk, the golf outing, Chefs for a Cause, LI 2Day Walk, bowling, hair salon cuts for donations, and so much more. I see the Babylon Breast Cancer Coalition generously contribute to educational scholarships and grants for cancer research — contributions that also give back to the community. The Coalition produces a newsletter promoting breast care awareness and lifestyle changes to help educate and find positive solutions. It wasn’t until I started to volunteer for the BBCC — later becoming a board member — that I realized the magnitude of what the BBCC does. Spending quality time with the Girls’ Club and volunteering with the BBCC have been the best medicine to In Loving Memory Irene Burns by Owen E. Brooks and Jayme Rose Burns In Lieu of favors at their Wedding on 12/28/13 in memory of Jayme’s beloved Grandmother Irene Shirley L. Kelly by Deborah Novack Keith Innes by Laurie Kuhn & Thomas Innes Josephine Montesanto by Patricia Killingsworth & Towers Flowers Donald Thurber By Nelda Ewald WOULD YOUR BUSINESS LIKE TO SPONSOR AN UPCOMING ISSUE? It’s a terrific community service and clearly demonstrates your commitment to helping patients and their families cope with the devastation created by a cancer diagnosis. For sponsorship rates and other ways you can help with our newsletter, contact the BBCC at 631.893.4110. In HONOR Maria Bellucci by Joseph Tomasone Tess Helfman by Claire Meirowitz Dorina DeGregorio by AnnMarie Russoniello Daisy Holzmacher by the Staff of Babylon Grade School Margaret Dill by Michelle & Roger Geldert Linda Hoyler by Nancy Grover Margaret Dill by Lynn & Richard Geldert Margaret Dill by Stephanie Geldert Claire Meirowitz by Sheila White Margaret O’Connell by Cornelius J. O’Connell, Jr. Renee Giorgini by Jackie Forman Shannon Saturno by the Staff of Babylon Grade School Tess Helfman by Anthony Biancaniello Mary Soviero’s daughter by her loving Mother WINTER 2014 • www.babylonbreastcancer.org • 3 11th annual li2day walk JUNE 7, 2014 Babylon Breast Cancer Coalition (BBCC) is proud to once again be a participating beneficiary organization of the 2012 LI2Day Walk To Fight Breast Cancer to be held on June 7th 2014. The LI2Day has made some exciting event changes. They have expanded their mission to be more in line with our own which is to raise awareness and funds for women with gynecological cancers as well as breast cancer. The BIG change: ONE DAY! In the hopes of appealing to more participants who could not make the 2 day commitment or do the distance this will now be a one day event. The June 7, 2014 LI2DAY Walk will be a half marathon distance of 13.1 miles. Walker check in, breakfast and the Opening Ceremony will still take place in the DARE area at Smith Point as in the past. Walkers will head out on the route at 7:45am and take a NEW route that overlooks the Smith Point beach and the Flight 800 Memorial. Walkers will proceed through a beach community along the Carmans River. Lunch will be held at the Manor of St. George’s overlooking the Carmans River where participants (including survivors) will have all the treats of Cathedral (massage therapists, podiatrists, maybe some yoga, the Serenity Tent, entertainment, etc). After lunch we will walk a short distance to the entrance of the Marina to meet the Pipe and Drum Band where we will process over the bridge to the DARE area for the final closing ceremony. Everyone here is extremely excited about the new route and changes. In Brief What Is New: • One day walk • 13.1 miles– that’s a half marathon! • Only a $500 minimum fundraising commitment (but they hope you will aim for the $1000 you used to be required to raise ... after all “what’s raised here stays here” and these funds will be going to support more cancers this year!) • Online registration only, and a lower registration fee this year $75. The annual event will once again support the important work of grass-roots breast and gynecological cancer organizations right here on Long Island. Last year, the BBCC team, We Aint Just Boobs was once again sponsored by the very generous NBTY Helping Hands charity. The $60,000 they donated to our teams efforts were used to pay for our team shirts, donate matching funds of over $56K that our team raised in 2013 and paid for fanny packs given to all walkers and crew that participated in the 2013 event (not just our team). They also generously donated snacks for all the LI2 Day participants. These funds added to the grants LI2Day can provide to other LI2Day beneficiaries and to the total grant the LI2day made to the BBCC which was an astounding $110,019! Since 2004 they have granted the BBCC a total of $462,407! These funds have been used by the BBCC to provide various services to breast cancer patients recovering from surgery and/or undergoing treatment such as transportation to and from treatments and medical appointments, housecleaning, financial help, food, childcare, also to provide these same services to families who have lost a spouse or parent to breast cancer and to provide over 4,100 Gift of Health and Inspiration bags to newly diagnosed patients all across Long Island. The BBCC is once again looking for walkers to join their team, We Aint Just Boobs. The BBCC supports its team We Aint Just Boobs by helping them put together various fundraising events and we again plan on doing so just as soon as the new registration is open. Registration is only being accepted on the LI2Day website this year and as stated about that is due to open in early February ... watch for news on our event page on our website or directly at www.li2daywalk.org ... Please remember to register under our team name of: We Aint Just Boobs (no apostrophe in aint). If you can’t find it online or for more information about this amazing and inspirational event call us at 631-893-4110. Remember: What’s Raised Here, Stays Here! 4 • www.babylonbreastcancer.org • WINTER 2014 MR-Guided Ultrasound Offers Treatment for Breast Cancer MR-guided focused ultrasound (MRgFUS) ablation is a noninvasive technique that requires no incision or puncture to perform. Instead, it uses the acoustic energy from high-intensity focused ultrasound to remove, or ablate, diseased tissue. Continuous MRI is used to locate the lesions and monitor temperature changes during the ablation process. The primary advantages of MRgFUS over other breast cancer treatments are that it is a noninvasive, outpatient procedure offering a quick recovery time, and that it provides precise measurement of temperature changes during the procedure. “In the treatment stage, we are able to precisely visualize where the energy is having an effect and to measure exactly the rise in temperature,” said Alessandro Napoli, M.D., Ph.D., assistant professor of radiology at Sapienza University in Rome. “Temperature monitoring is particularly important, since too low a temperature is ineffective and too high a temperature may be dangerous.” Dr. Napoli and colleagues assessed the safety and efficacy of MRgFUS in 12 patients with invasive ductal breast cancer before surgical removal of the cancer and biopsy of the lymph nodes. They used 3T MRI to confirm the presence and treatable location of cancerous lesions. The patients then underwent single-session MRgFUS treatment. Researchers evaluated treatment efficacy through post-surgery pathology. None of the patients experienced significant complications during or immediately after the procedure. In 10 of the 12 patients, MRI showed no enhancement in the treatment area after the procedure. Post-surgery histological evaluation confirmed the absence of residual disease in the treatment area in those 10 patients. “This procedure allows for safe ablation of breast cancer,” Dr. Napoli said. “At pathology, no significant viable tumor was found in the specimens from these 10 patients.” In the other two cases, treatment failed due to transducer malfunction, In support and recognition of Breast Cancer Awareness Month, TEAM TFCU, TFCU's (Teacher's Federal Credit Union) employee involvement group, raised $1300.00 by doing a simple but fun dress down day and presented the funds on the morning of 10/23 to BBCC's Tess Helfman who could see by their genuine concern and enthusiasm why their event was so successful! and the pathologist observed residual tumor in the samples. According to Dr. Napoli, MRI guidance is crucial for the correct identification of lesions, treatment planning and real-time control during the procedure. Specifically, monitoring with MRI allows for the efficient deposit of energy into the region of treatment at the correct range of between 60 and 70 degrees Celsius (approximately 140 to 158 degrees Fahrenheit). “This is carried out by a special sequence that is called MR thermometry,” Dr. Napoli said. “Only MRI presently has the ability to determine, in real time, fine temperature quantification.” While the initial results are promising, Dr. Napoli said more research will be needed before the approach can be adopted as a standalone treatment for breast cancer. Source: National Center for Biotechnology Information, Publication 14692653, December 2013 Fitness Incentive’s annual Thanksgiving Benefit was done on behalf of the BBCC this year. For many years we have enjoyed a beautiful mutually rewarding relationship with this excellent fitness center. They facilitate the Pink Ribbon Program training program which is a one on one 8 session supervised exercise program to help breast cancer patients regain strength and mobility following surgery and/or treatment. Trained exercise physiologists tailor and supervise the oneon-one exercise regimen to meet the individual needs of each client. BBCC offers this and will pay for this program for our LAHH survivors as they are ready to move on and are given medical clearance. We were thrilled and thankful to get the call from owner Corinne Brown letting us know we would be the beneficiary of this wonderful annual Thanksgiving event which raised $3,935. A special thank you to all the staff and participants who made our volunteers feel right at home. WINTER 2014 • www.babylonbreastcancer.org • 5 lend a helping hand testimonial Denise Botiglione Lindenhurst resident Denise Botiglione was on her way to a BBCC fundraising event back in October 2012 when she received a phone call: her recent breast biopsy was malignant. Shortly after, she tested positive for the BRCA-2 genetic mutation marker and commenced down a year long road that included a doublemastectomy, chemotherapy, radiation and a hysterectomy, with more surgery scheduled in the future to complete her reconstruction. “I learned about the BBCC on the internet website “Farmingdale Patch”. There was a posting about The Babylon Girls Club and how they help maintain the Coalition’s Garden of Hope at Babylon Town Hall. I contacted Lorraine Geyer, the woman in charge of the Girls Club to see if I could volunteer at an upcoming BBCC fundraiser where the Girls Club was helping out. I received the phone call about my biopsy while on my way out the door to the event. I didn’t even have time to process it all until I arrived. I told the three women there, who were all long-time Girls Club volunteers, and they spent the rest of the night telling me about the BBCC and how they could help me.” “Once I signed up for the LAHH program, they assigned Tess Helfman as my volunteer, who I would contact at anytime for anything! They sent a cleaning service to my home every other week, paid some utility bills (which freed up money needed to pay doctors not covered by my insurance) and set up an account with a local butcher, C&J Meats. I was able to get food there when I was too sick to cook. The BBCC also asked a local group called The BBQ Brethren, a group of competitive BBQ chefs, to help my family out when I was too sick to cook Thanksgiving dinner last year. BBQ Brethren members cooked and delivered a wonderful Thanksgiving meal with all the trimmings to my home. They pay for everything and completely do this from their hearts. I was overwhelmed, to say the least.” Denise, an employee at SUNY at Farmingdale, continued to work throughout her chemotherapy and describes her co-workers as incredibly supportive, enabling her to take off during treatment weeks and work the weeks she wasn’t doing chemo. However, as mother to a 13 and 24 year old, she found helping her family deal with her diagnosis to be her greatest challenge. “The worst thing was telling my family (mom, her kids, her fiancé Frank and her brother Anthony) but I tried to make it seem as if it wasn’t so bad. My thirteen year old daughter, Toni, began to cry. I told her I would be fine, that I’d be undergoing chemo and would have times when I was tired and nauseous 6 • www.babylonbreastcancer.org • WINTER 2014 and I would lose my hair and might need some extra help around the house. She spent the next six month clinging to my side. Frank came to most of my chemo appointments while Anthony went to all my other doctor appointments (I didn’t want to upset my mom and kids by having them see me hooked up to the chemo drugs). Although everyone stepped up to help with things, I always acted like I was fine and didn’t need help. I’m mom, I am superwoman. I couldn’t let them see me unable to cook, clean and taxi them around to all their activities and appointments. Mom is always there and Mom will ALWAYS be there, right? One funny thing was that on Easter, to help my family and kids cope with the baldness caused by the chemo, I let them all draw on my entire head with washable non-toxic markers. They had a ball and it made them happy, which made me happy.” Done with her chemo treatments, Denise and Toni plan to continue volunteering with the Girls Club, especially whenever they do any type of community service benefitting the BBCC. She says, “Without the BBCC and my family, I could not have gotten through this. Everyone played an important role in helping me during this journey and I cannot ever thank them enough. The BBCC have become my family, too, this past year. My brother owns a roofing company, Anthony’s Roofing, and he donated a percentage of his October sales to the Coalition. He also paid for and made t-shirts that he sold and then presented the proceeds to the BBCC. It made all the ladies cry, which in turn, made my brother cry and his heart fill with joy.” in the spotlight: Anthony Botiglione When they were kids growing up in Brentwood, Anthony Botiglione’s big sister, Denise, always looked out for him. Years later, in 2013, the roles reversed, and it was Anthony who took care of his big sister when she was diagnosed with breast cancer. The owner of Anthony’s Roofing Corp. in Bohemia, Anthony was by Denise’s side through all of her surgeries and doctor appointments. When he learned the BBCC’s Lend-aHelping-Hand program was providing his sis with a variety of services, he said he was “blown away at the humanity of these big-hearted, wonderful people who donate their time, resources, money and compassion for women battling this terrible disease. I saw firsthand the effect that this organization had on my sister’s recovery, and it was invaluable. The BBCC is the shoulder these women lean on.” “I wanted so badly to help others the way the BBCC had helped Denise, and so I decided to focus all my energy on a fundraiser through my roofing company. I turned all of my advertising pink and increased the circulation threefold. My roofing ads read: “10 percent from all jobs in October will be donated to women fighting breast cancer.” I had all my employees wear pink hats and T-shirts and also made up dozens of sweatshirts, T-shirts and hats to give away to customers who patronized my business that October. The fundraiser took off like a race car at a green light; everyone wanted to get involved. I met a lot of wonderful people during that time. But the best part was that the BBCC had no clue what I was doing for them.” “It was December when I finally finished up with all the October jobs. I asked Denise if she could arrange a meeting for both of us at the Coalition office. It was December 16th — my Dad’s birthday in Heaven. What better day to give than on the birthday of the man who taught me to? I handed over a check for $7,000, and they all burst into tears! It was clear to me that I had made one of the best and most rewarding decisions of my life. The feeling I got from that moment will warm my heart forever, and that is worth much more than you can fold and put in your pocket.” Anthony really won the hearts of the ladies at the BBCC, and they haven’t stopped talking about him since. A fantastic big brother and loving uncle, Anthony presently lives in Manorville. When not on a roof, he collects and restores old hot rods, cooks and bakes, and spends a good part of the warmer months fishing for largemouth bass. A guitarist since his teens, he owns 14 guitars, and his band was once the opening act for Motley Crue. What a guy! No wonder everyone in the office is smitten! Beauty for a Cure Founder, Christina Smith is on a mission to give back in every way she can. Her enthusiasm carries over to the other salons that held October Cut A Thons for the cause this year (Amoré Salon in West Babylon and Safié Salon & Day Spa in Massapequa) and she makes every inch of her own Top Cuts Salon in Bethpage count. This year she even rented the empty storefront next door to house and display all the raffles they collected. But they don't stop there ... Beauty for a Cure hosts an annual LAX for hope Tournament that even though it was a drizzly misty day was still a colorful, fun successful day. She and her dedicated team continue to strive to make a difference and we are grateful for their support. WINTER 2014 • www.babylonbreastcancer.org • 7 New test may help predict ovarian cancer survival A sensitive new DNA test can predict how long ovarian cancer patients will survive and guide personalized treatment decisions, according to new research. The technology, called QuanTILfy, counts the number of cells called tumor-infiltrating lymphocytes (TILs) in a cancer patient's tumor biopsy. Cancer patients with more of these cells in their tumor tend to have better outcomes, previous studies in ovarian, colorectal and other cancers have shown. This test is the first that can precisely count the number of immune cells present in a tumor sample. "We are providing a new tool," said Jason H. Bielas, a cancer geneticist at the Fred Hutchinson Cancer Research Center in Seattle, and lead researcher of the study. Unlike currently available tests, which rely on staining tumor tissue and are subject to interpretation, the new test provides a sensitive, numerical readout. "This is a big step forward to accurately count how many [immune cells] have infiltrated the tumor," Bielas said. In a proof-of-concept study, the researchers tested 30 tumors from ovarian cancer patients who had survived between one month and 10 years with their cancer. They found that the number of immune cells, as measured by the test, was threefold higher in patients who had lived for more than five years after their cancer diagnosis, compared with those who had lived less than two years with ovarian cancer. The results were published on Dec. 4, 2013, in the journal, Science Translational Medicine. The test is based on research showing that the strength of a patient's immune response to her cancer, as well as the effectiveness of the response, varies from patient to patient. The immune response results from TILs recognizing the mutated genes on the surface of cancer cells as "foreign," zeroing in on these tumor cells and launching an immune reaction to destroy the cancer cells directly. "The size of the immune response in a tumor has been known for many years to predict survival, and has recently been shown to determine which patients will respond to immunotherapy," said study researcher Harlan Robins, a computational biologist at the Fred Hutchinson Cancer Research Center. The QuanTILfy test provides a standardized way to count the immune cells in the tumor, using a digital approach. DNA is extracted from a tissue sample, and then the DNA from the TILs is identified and quantified using a technique called digital polymerase chain reaction. "This is clearly an outstanding science result that sets the scene for the further development of the test to quantify [immune biomarkers] in different malignancies," said Dr. Jeffrey Weber, an immunologist and oncolo- gist at the Moffitt Cancer Center in Tampa, Fla., who was not involved in the study. Still, the test is not yet ready for use in clinics. First, further validation by other researchers is needed, Weber said. The older, staining-based tests have not been used to make important treatment decisions for cancer patients because of their high variability, Bielas said. He and his colleagues would like to see whether the QuanTILfy test could be used in treatment decisions by including the test in clinical trials of cancer treatments. It's possible that the test could be used to better predict whether a patient's cancer is likely to respond to a treatment or a combination of treatments. Particularly, Bielas said he thinks this test could be used to gauge whether a patient is likely to respond to a new class of cancer drugs, called immune therapy drugs, which are still in development but have so far been shown to be effective in some patients. "Now that we have these immune therapies that work, a test that could indicate whether a patient is more likely to respond to the treatment becomes an important issue" and the ultimate goal of personalized therapy, Bielas added. Source: Fred Hutchinson Cancer Research Center (Dec. 4, 2013), “Predicting ovarian cancer survival by counting tumorattacking immune cells.” The BBCC accepts donations on our website (babylonbreastcancer.org) through PayPal 8 • www.babylonbreastcancer.org • WINTER 2014 WINTER 2014 • www.babylonbreastcancer.org • 9 our sincere appreciation Heading into 2013 we were unsure where our support both financial and on a volunteer level would come from given how hard hit all our local communities were from Sandy. We knew that so many businesses and individuals were being so generous to all those in need after the storm and also in the year that followed, so we were amazed and grateful to see the amount of support we still received. We finished out 2013 topping our 2012 earnings with our biggest earnings in BBCC history and it came at a time when it was well needed, as many of the women we serve were also affected by storm damage and the financial and housing crunch was and is still taking its toll on so many of them. Their needs have never been greater, so THANK YOU to all our supporters!! Each and every one of you whether it be in your time your money or both, has made our mission to support these families a reality! This fall right on through the holiday season was just an amazing display of generosity from the community. All the efforts for the Thanksgiving Family Dinners Project and the cooked Christmas turkeys and hams were amazing and will be featured in our Spring Newsletter. Here and sprinkled throughout this newsletter is a small sampling of the other generosity: Care to Knit is ALWAYS so generous to the community at large and their Heart Warmers Chapter went over and above with a wonderful gathering of knitters on 10/5 to make sure their group made enough hats and scarves to include the BBCC in their October donation efforts. Their heartwarming donation was presented at the event to BBCC president, Tess Helfman, who couldn't help but notice that each and every one of the lovingly made hats and scarves come with a sweetly knit heart and a lovely note tag. Be Smart About Your Health Preventive Tips for a Healthy 2014 Most New Year’s resolutions involve some sort of health-related intention: lose weight, exercise more, eat healthier, etc. While those are worthy goals to work toward, consider making some changes that are more subtle, yet can go a long way to protecting your physical and mental health for decades to come. 1. Get Serious About Breathing Exercises Simple breathing techniques offer a drug-free way to help lower your blood pressure, calm a racing heart or settle an upset digestive system. Proper breathing has a direct influence on emotional states and moods. When you’re upset, you breathe rapidly, shallowly and irregularly, but you can’t be upset if your breathing is slow, deep, quiet and regular. At first, the effects are subtle, but they will gain power the more often you repeat them. Whether you want to address health problems or just relax and reduce stress, make this the year to learn and practice breathing techniques. 2. Adopt the Antiinflammatory Diet From left to right: BBCC President, Tess Helfman, BRG owner, Michael Bohlsen; BBCC founder Bette Ann Innis, and BRG Owner, Michael and Kurt Bohlsen at the November 14th Think Pink Celebration event at Monsoon Asian Kitchen Restaurant, THE BOHLSEN RESTAURANT GROUP (BRG) owners presented the local breast cancer coalitions with $6000 from their 6th annual PINK CAMPAIGN. The Eat, Drink & Think Pink Campaign has raised $76,000 over the 6 years. The fundraising concept offers Antioxidant Ingredient Menus at Prime, Monsoon, H2O, Tellers, VERACE and Beachtree. for the month of October with a portion of the proceeds to Benefit Coalitions in Huntington, Babylon, West Islip and Islip. Other restaurants like Horace and Sylvia's and Barrique Kitchen and Wine Bar also added to the local fun of eating out in October for a good cause and donated generously to the BBCC. WE ALWAYS NEED HELP We are in greatest need of volunteer drivers and volunteers to service our Lend A Helping Hand Program. Of course we also always need help with our fundraisers and even with some office work. If you would like to volunteer in any capacity please call Beverly in our office 631.893.4110 The anti-inflammatory diet isn’t a weight-loss program (although you can lose weight on it) or a temporary eating plan. It is a lifelong guide intended to counteract chronic inflammation, now known to play a central role in the development of heart disease, many cancers and Alzheimer’s disease. Poor diet is perhaps the main contributor to chronic inflammation. The anti-inflammatory diet can help you correct that: It points the way to food choices that can help you remain optimally healthy. Along with influencing inflammation, the diet will give you steady energy and provide all the vitamins, minerals, essential fatty acids and dietary fiber you need. 3. Get More Sleep You probably already know that a good night’s rest can do wonders for your mood — and appearance. But sleep is more beneficial to your health than you might realize. A lack of sleep has been linked to a greater risk of obesity and Type 2 diabetes. And sleep is crucial for strengthening memories (a process called consolidation). So take a nap — and don’t feel guilty about it. Hit the sack earlier to make sure you’re getting enough sleep each night. Irregular sleep patterns, eating before going to sleep and not getting enough sleep are all linked to obesity, while getting enough sleep is linked with maintaining a healthy weight. Sleep health is 50 percent habit and 50 percent fatigue. Obesity can cause kidney disease, because the kidneys have to work harder to filter out toxins and to meet the metabolic demands of the increased body mass index (BMI) in obese individuals. When it comes to a good night’s rest, most people require about seven hours. 4. Enlist Technology to Meet Your Goals Think about downloading some apps to help you stay on track with your 2014 resolutions. Grocery iQ, LoseIt! and Noom Weight are just a few that are worth checking out. And don’t forget the power of a collective workout. For those who follow Twitter, check out ResolutionTweet to harness the support and input from like-minded souls. On November 19th Amoré Salon owner Giovanna Abbate sponsored and hosted the sweetest fundraiser we have ever been a part of — Photos with Santa!Santa Claus (yes Santa Claus himself) and Mrs. Claus/Mary Ellen Schempf were wonderful to watch as they interacted with everyone. The priceless smiles of children filled the day and Petunia the pet pig who was brought in for her glamour shot with Santa was a real show stealer. The talented and friendly Amoré staff all pitched in to create curls and final touches that made everyone picture perfect. Photographer, Vicki Jauron of Babylon and Beyond Photography, so generously gave of her time and talent both on the day of and with all the professional post work she did for all the shots. The images were amazing and everyone really felt the joy of the season and this event was a wonderful way to kick it off. Alone we can do so little; together we can do so much. Helen Keller 10 • www.babylonbreastcancer.org • WINTER 2014 WINTER 2014 • www.babylonbreastcancer.org • 11 THANK YOU TO OUR WONDERFUL SUPPORTERS AND VOLUNTEERS: Proud Supporters NBTY Helping Hands Charity, LLC The LI 2Day Walk to Fight Breast Cancer Tanger Properties LP/ Tanger Outlets at the Arches Deer Park Anthony Junior’s Roofing Inc. Anthony Botiglione Beauty for A Cure, LLC/Christine Smith Babylon Senior High School Student Council Babylon High School DECA Club West Babylon High School Period 1 AP Macroeconomic Class Women’s Golf League in Babylon Village Our Lady of the Rosary Columbiettes Grace Moreo Foundation/BRG Frances P. Mulholland Jeff Comiskey Comiskey Park Bar Amy Naeem & Family Donald Riker Copiague Auto Wash Katherine & Keith Rooney Faith Hope Inspire Jewelry Angela Russo & Jeffrey Smith Fitness Incentive Dominic Stilletti Harte Building & Remodeling, Inc. Tom & Yve Sullivan Hassell Auto Body Sabrina Walker Bonnie Helfner, DDS, PC. Maureen Wardell Horace & Sylvia’s Publik House DDI Developmental Disabilities Institute Teachers Community Involvement Committee TEAM TFCU Anne & James Demopoulos Carol Waxman Ann & Donald Doyle Clarence Fenner Marie & Seymour Gallay The Staff at Babylon Grade School Catherine & John Geantasio Babylon Field Hockey Team Gerald Iacono Danielle Bellemore of West Babylon High School Louise & Martin Kennedy West Babylon High School Periods 3,7,8,&9 Government/Economic Classes Eileen & Kenneth LaMotte Ladies Golf League Richard & Kathleen Weaver Patricia Brennan-Ziegler Nickianna Properties Powell Funeral Home Rothco Amore’ Salon/ Giovanna Abbate Norah & Frank Gusmerotti Arrow Electronics Sans Souci Catering South Bay Auto Collision Donald Ervolino U.F.C.W. Local 1500 Aurora Nail & Skin Salon Carolyn Saraniero Visgauss Associates, Inc Gina Leone Babylon Restaurant Group Barrique Kitchen & Wine Bar Zumba Fitness Cindy Merkler, Instructor Paula Loskamp The Bohlsen Family Lisa Kowalewsky Volunteers Supporting: LI2Day Extras • Copiague Chamber Summer Concerts • Comiskey Park • Gift Card Pick Up • Macy’s Shop for a Cause • Ducks Breast Cancer Awareness Night • Tanger 5K Run/Walk • Tanger PINK Coupon Sales • West Islip Country Fair • Office Work • United Way Agency Fair • Breast Cancer Summit • Zumbathon • Golf Goody Bag Assembly • North Babylon High School Track Walk • Gift of Health and Inspiration • Photos with Santa • Fitness Incentive Thanksgiving Fundraiser Alena Berenblatt • Alexa Morales • Alexandria Morrow • Alicia Libraro & Deer Park Cheer • Allison Saber • Alyssa Shindel • Amore Salon Staff • Angelina Siemsen • Ann Marie Shindel •,Anne Morrow • Annette Krauss • Barbara O’Reilly • Barbara Schwab • Barbara Spilker • Bob Conway • Bonnie Otto • Brandon Barbosa • Brandon Berkowitz • Brandon Leo • Brian Meister • Bridget Mascolo • Brooke Catalano • Caleigh Morrow • Camille Smith • Carmela Milano • Carol Stoltz • Caroline Herrera • Catherine Bracco • Chloe Bzdyk • Christina Cardino • Christine Bentley • Christine Leo • Cole Elu • Connie Low • Darrell Conway • David Hotelling • Dawn Rivera • Denise Botiglione • Dominique Rivera • Don Bentley • Donna Frole • Dorota Narewska • Eileen Molloy • Elizabeth Kelly • Eloise Wallace • Emma Micara • Flo Siemsen • Gillian Morrow • Gina O’Hara • Giovanna Abatte • Gladys Roeper • Grace Moreo • Hara McCandless • Helen Del Terzo • Holly Mascolo • Ilene Meister • Isabella Dinkel • Jared Nezzacappa • Jessica Hotelling • Jessica O’Hara • Jessica Tellez • Jewelia Calone • Jill Mercadante • Joann Hotelling • Joanne Camier • Joe Nezzacappa • John Erola Jr. • John Erola Sr. • Jonathan Lima • Julia Gaare • Justin Leeb • Kaitlin Incandela • Karen Kunkel • Kathy Ruggeri • Kathy Thomas • Kayla Geyer • Kayla Rizzo • Kaylee Shindel • Kelly Incandela • Kim Cardino • Kim Mascolo • Kristen Reilly • Kristi Geyer • Kristin Olmsted • Lauren Ragen • Lorraine Geyer • Luis Loachamin Jr. • Luis Loachamin Sr. • Lynn Leeb • Marcy Turnbull • Marie Hickey • Marisa Mercadante • Mary Ellen Schnepf • Maryann Dubartell • McKenzie Corcoran • Megan Rizzo • Meghan Reilly • Melanie Robinson • Melissa Schwab • Mike Sweeney • Mike Vittorio • Mindy Ehrlich • Nancy Short • Nancy Sweeney • Natasha Rodriguez • Nicole Cardino • Nina Von Deesten • Noah Barbosa • Nora Dunn • Olivia Price • Paige Bzdyk • Pat Murray • Pat Podesta • Patricia Murray • Patty Wankel • Paul Zangle • Ray Mascolo • Reba Soloman • Rena Springer • Rich Incandela • RJ Incandela • Roseann Pizzo • Ruth Levin • Samantha Levins • Samantha Schwab • Santa Claus • Savannah Haworth • Sean Hotelling • Sharon Donnelly • Shawn Murray • Shay McCandless • Sheldon Berkowitz • Skylar Frole • Stephanie McSweeney • Susan Jaskulek • Tammy Cotrone • Terry Prag • Tess Helfman • Thomas Everhart • Tiffany Loachamin • Tina Gibbons • Toni Panzer • Tracey Haworth • Vanessa Cardino • Vicki Jauron • Vincent Calone • Xaivier Rivera 12 • www.babylonbreastcancer.org • WINTER 2014 Tanger Fit For A Cure 5K By Bill Gironda- Runner, Triathlete, Writer for GLIRC Sometimes it’s hard to write something novel about a race that’s not the usual story ... and sometimes things just happen so that it writes itself. The weather on September 15th for the Tanger 5K was perfect, cool almost cold, no wind, flat course, just a perfect day for a fast race, fast time, competitive race. While there were some of the seasoned competitive runners you see at other races, most were not. But this event let me see a lot of different sides again. It was a huge party, a celebration of many things. Some we tend to forget and shouldn’t. ... and one* I would like to forget and will. So many of the participants were doing something they had not done before, attempting a 5K. There were siblings, friends, couples, families and groups doing the race together. Whether they were running, walking or a combination of the two, it was funny seeing and hearing discussions with a little bit of both excitement and fear mixed together about what to expect. All these newer participants not totally prepared and a large turnout led to a slight delay of the start. All other things after the start out on the course went perfectly. The finish area was an amazing site of laughing, crying, people not believing they had actually done the thing they had set out to do, parents congratulating sons and daughters, sons and daughters congratulating parents. Groups running together, any and every combination you could think of. It made you realize the true enjoyment they got from just participating and finishing ... not the time, just the finish of a journey. The awards were just a blast. A BBQ, snacks, coffee, cold refreshments, milkshake samples, a DJ, line dancing for a bit, fabulous raffles, just a lot of fun for everyone. The master of ceremonies was a combination of DJ, comedian, cheerleader and dancer. He kept the crowd laughing, dancing and just having a great time on a great day. He made each winner feel like they were the overall winner of a major race. Besides their medals, the women were given a bouquet of flowers. (*The part that I will forget was that twice the MC was interrupted by a runner who just wanted to see if an award was due and take off. To his credit, the MC took it in stride and kept on with this program). So what this very well planned, well run event is about is community, accomplishments, togetherness and fun. We tend to get too worried about time, too worried about place. We sometimes miss the fun, the simple accomplishments that mean the world to beginners, the absolute joy that some get just from finishing! People out on the course stopping to run with someone that was struggling, not worried about losing a few seconds or even minutes. It was refreshing to see and experience. If you just want to run a race, get your medal and go home, then it’s not for you. If you want to have fun, enjoy an event, enjoy a morning with friends and community, then its definitely a great one to try next year. In addition to all that, it raises money for a great cause – the Babylon Breast Cancer Coalition. Bill Gironda – is a triathlete and runner. He is a member of and writer for the Greater Long Island Running Club (GLIRC). Many Thanks For Fall Donations of Goods Christine & Donald Bentley • Jill Mercadante • Care to Knit • Care to Knit – Heart Warmers Chapter • Nina George • Julianne Zizzo • The Lindenhurst Homemakers Day Unit • Betty Lou Fahie • Maria Spadaccini • Iris Santiago • MaryAnn Haas • Fran Jacoby • Hazel Mack • Arielle Gelosi For the Fall Donations to our Vision of Hope Garden: Vincent Calone • Tracey Haworth • Lorraine Geyer • Tess Helfman • Joe Tota of Better Gro At their Holiday Kick Off Event on November 23rd, Tanger Outlets at the Arches presented the BBCC with a BIG check and it was BIG in every way! The $35,275.32 was raised partially at the annual Tanger Fit for a Cure 5K in September at which the turnout was bigger than ever and the after party was a big blast. That event kicks off their annual Tanger PinkSTYLE Campaign which runs through the end of the month of October and is where the rest of this VERY BIG donation comes from. Tanger Outlets is generous nationwide, but we are extremely lucky to have the “Terrific Tanger Trio” of Bob Hennessey, Operations Manager, Eileen Rupnick Assistant General Manager and their dynamo leader Nancy Larson, General Manager at Deer Park. WINTER 2014 • www.babylonbreastcancer.org • 13 GIRL’S CLUB UPDATE By Kayla Geyer The Girl’s Club volunteers recently clipped, snipped and shaped up the Vision of Hope Garden. The girls continue to adoringly contribute their efforts and free time to sprucing up the garden throughout the spring, summer and fall months. The most recent clean-up was held on November 2nd, where they were joined by Girl Scout troop #2284 who were chaperoned by Janice Smith and the Lindenhurst High School Art Service Club and their supervisor Ms. Mattera also joined us. During our Summer spruce-up on August 3rd, Vincent Calone one of the Girl’s Club volunteers, was kind enough to create and install a breast cancer ribbonshaped birdhouse. The girls have aspirations of adorning it with flowering vines when the warmer weather arrives. Our next cleanup is scheduled for April 5th. The girls are all anxious to begin the new season and getting the chance to roll up their sleeves and get their hands dirty. Before we know it, the garden will be beautiful with all of the little spots of pink flowers among the new Girl’s Club rock. We have recently received many complements from Babylon Town Hall officials and the BBCC’s board about how lovely the Vision of Hope Garden looks. Tess Helfman said herself; “such an amazing difference in the little garden nowadays, I feel all of the beautiful energy of the girls there even when they are not there and it makes seeing some of the names not so sad, knowing this garden is in hopeful honor and in memory of so many and that young women are working side by side preserving the beauty of what is there and playfully leaving all their delightful giggles behind.” Vision of Hope Garden Volunteers Gabriele Betancourt Denise Botiglione Vincent Calone Jewelia Calone Christina Cardino Kim Cardino Nikki Cardino Vanessa Cardino Isabella Drago Kayla Geyer Kristi Geyer Lorraine Geyer Savannah Haworth Tracey Haworth Tess Helfman Connie Low Natalie Madlon Melanie Marine Cecelia Mattera Marisa Mercadante Toni Panzer Evelina Poplawski Kassidy Rieder Crystal Rose Alyssa Shindel Kaylee Shindel Janice Smith Morgan Smith Kathy Thoma Toniann Zizzo Julianna Zizzo Micheal Leone In Memory of Aida Leone Jeannie Rocchio In Honor of Jeannie Rocchio Jeannie & Jerry Broome In Honor of Tess Helfman John Capurso In Memory Of Ralph Capurso Jr. Doris Puglisi In Memory of Lucy Proto Barbara Kandybowicz Thanks Be God for His Blessings The Staff of Babylon Grade School In Honor of Shannon Saturno & In Honor of Daisy Holzmacher Ann & Donald Doyle In Memory of Jayne Doyle Gustafson Peggy Reilly In Memory of Don A. McDonald Wanda Hagerty In Memory of Margaret Long Jeannie Rocchio In Honor of Donna Scalfano Bruce Bader In Memory of Elizabeth Ann Bader 14 • www.babylonbreastcancer.org • WINTER 2014 DEDICATE A BRICK 8/3/13, 9/21/13 and 11/2/13 Fall 2013 dedications for our vision of hope garden Celeste Crockett In Memory of Patricia Weinmann DEDICATE A BRICK BBCC In Honor of Sculptor Chris Mason BBCC In Honor of Sculptor Eileen Barry BBCC In Memory Irene Burns I would like __ bricks at $50 each. Total check $__________________________________ c In Memory c In Honor The Babylon Breast Cancer Coalition is very proud of our beautiful Vision of Hope Garden, located just east of Babylon Town Hall on Sunrise Highway in Lindenhurst. The garden is filled with beautiful perennials in shades of pink and white, lovely shade trees, sculpture and benches, along with a brick-lined path in the shape of an awareness ribbon. Each brick is inscribed in honor or memory of an individual. The garden is a restful place for meditation and relaxation and very visually inspiring. We invite you to visit anytime. Interested in dedicating an inscribed brick? HERE ARE THE SPECIFICS: Each brick costs $50 and can have up to three lines engraved on it, with a maximum of 10 characters per line. Whatever wording you’d like can go on those lines as long as each line doesn’t exceed 10 characters. If you are using an extremely long first or middle name, consider dropping middle name or using an initial. Examples: VIRGINIA A MASON 1943-1994 LORRAINE GEYER SURVIVOR Many thanks to Anthony Spadolini of Wellwood Memorials in Lindenhurst for donating the engraving charges on all the bricks and to BBCC board member Jon Mason for installing each brick in the garden. If you’d like to purchase one, please complete the DEDICATE A BRICK form and remit with your payment to the BBCC at 100 Montauk Highway, Copiague, NY 11726. Your Name: ___________________________________ Name of person the brick is dedicated for: _____________________________________________ TEN CHARACTERS PER LINE INCLUDING SPACES Line 1 _______________________________________ Line 2 _______________________________________ Line 3 _______________________________________ (Please print clearly) Please send acknowledgment of the brick(s) purchase to: Name _______________________________________ Address ______________________________________ ––––––––––––––––––––––––––––––––––––––––––––– Phone _______________________________________ Email ________________________________________ Please notify the following when the brick has been installed: Name _______________________________________ Address ______________________________________ ––––––––––––––––––––––––––––––––––––––––––––– Phone _______________________________________ Email ________________________________________ WINTER 2014 • www.babylonbreastcancer.org • 15 2013 founders’ award BBCC Founders’ award – a special award given in recognition of extraordinary service and/or support to the BBCC organization. Past recipients: 2010: Debbie Basile, Founder and Past President; 2011: Beth Anderson; 2012: Jon Mason The 2013 award was presented to Tess Helfman at this year’s celebration that directly follows our golf outing. Beth Anderson our 2011 recipient made the presentation and covered many of Tess’ contributions recollecting her own first meeting with Tess that was at a health fair they both had volunteered to cover for the BBCC. This was when Beth was undergoing her own battle with breast cancer and she recalled how easy it was to talk to this kind and supportive stranger. As an active dedicated volunteer in our Lend A Helping Hand Program, Tess began assisting those in need following her own diagnosis and recovery over ten years ago. She subsequently began her service as a board member in 2007 and has served as our board President since 2010 and does so under a volunteer capacity. She has championed every aspect of the coalition’s services and necessary fundraising, is active on our scholarship committee, with our Vision of Hope Garden, an SAVE THE dates: April 5, April 7 and June 14th: Vision of Hope Garden Clean Up Arielle Gelosi, Barry and Tess Helfman with event chairperson Kim Mascolo. editor of our newsletter, administrator of our Lend A Helping program and many, many more. She has accomplished this while maintaining a full active Lend A Helping Hand caseload of her own, the passion and commitment that brought her to us. May 6th: Chefs for a Cause June 7th: LI2Day – One Day 13.5 Mile Walk Back for 2014: Check our website for updates on our Bowling Event 100 montauk highway copiague, ny 11726 PHONE: 631.893.4110 fax: 631.539.8862 Permit No. 05 Babylon, NY 11702 PAID Non Profit US Postage
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