THE RIGHT CONNECTION OSTOMY ASSOCIATION OF SAN DIEGO, INC PMB 48 ~ 2650 Jamacha Rd Ste 147~ El Cajon, CA 92019-4819~ Phone (619) 223-2966 VOLUME 58 ~ NUMBER 11 December 2014 Published Monthly Except August Mission Statement UOAA is a volunteer-based health organization dedicated to providing education, support and advocacy for people who have had or will have intestinal or urinary diversions. Reasons to Quit Smoking NEXT MEETING Sunday January 11, 2015 Board Meeting 12:30pm Regular Meeting 2:00pm TBA Next Meeting Sunday March 8, 2015 No Meetings in December or February UOAA UPDATE 2/10 Dr. Donald Hensrud, director of the Mayo Clinic Executive Health Program, says that most smokers know how harmful smoking is. It’s just hard for them to quit, but it can be done. Aside from preventing heart disease, stroke, lung disease and a host of other disasters, Dr. Hensrud, writing in Fortune, gives 50 other reasons to quit. Some are scientifically based and some are just his opinions, but these reasons to quit smoking could inspire you to save yourself: You’ll have fewer wrinkles. Your breath will smell better. You’ll be around long enough to see your grandchildren. You won’t have to go outside between courses at a restaurant. You won’t have to hide the habit from your children. You’ll be able to taste and smell food again. Your kids will have fewer respiratory infections. Your house and car won’t reek and neither will your clothes. You won’t have to look for a smoking area everywhere you go. After the first year, you’ll save enough for a Caribbean cruise. You’ll cough less. You won’t have to listen to talk about what it’s like to kiss an ashtray. Your baby will have a lower risk for sudden infant death syndrome. You won’t have nicotine fits on airplanes or in nonsmoking areas. You won’t have to look forward to receiving oxygen through a tube in your nose. Your spouse will be less likely to develop heart disease and cancer, You won’t have holes burned in your clothes and your furniture. Ostomy Nurse Clinics CHAPTER NOTES Donations When to call the Dr. or Ostomy Nurse Thank you so much for your generosity: Balboa Naval Medical Center 34800 Bob Wilson Dr. San Diego, CA 92134 Plastic Surgery/Wound Clinic (619) 532-6950 Kaiser Permanente 4647 Zion Ave. San Diego, CA 92120 (619) 662-1222 (for appts) Scripps Green Hospital La Jolla General Surgery 10666 North Torrey Pines Rd La Jolla, CA 92037 (858) 554-9184 (for appts) (for Scripps Clinic Patients only) Scripps-Mercy Hospital Outpatient Clinic 4020 Fifth Avenue – Level 3 San Diego, CA 92103 (619) 260-7244 (for appts) Sharp Coronado Hospital 250 Prospect PL. 3rd floor Coronado, CA 92118 (619) 522-3729 (for appts) Sharp Grossmont Hospital 5555 Grossmont Center Dr., Level A La Mesa, CA 91942 (619) 740-4160 (for appts) Palomar-Pomerado Wound CareMon-Fri 8:30 am--4:30 pm 858-613-4755 Tri-City Medical Center Mon-Fri 8 am--4:30 pm 760-940-5600 and 760-802-9447 Updated 03/2012 Ostomates, doctors, nurses, social workers, and other interested persons are invited to attend our meetings. Colostomy, alternative procedures, ileostomy, and urostomy discussion groups are available at the end of each meeting. The Right Connection ~ Dec 2014 Robert Asbaugh RitaGeldert If cramps last more than two or three hours. If you get a deep cut in the stoma. Excessive bleeding from the stoma opening or a moderate amount in the pouch after several emptyings. Bleeding at the juncture of the skin and stoma. Severe skin irritation or deep ulcers. Unusual change in size or appearance of stoma. Arthur Martinez Carlos Mazon Lee Mosteller Michelle Olejnik Richard Palmer Charles Rhea Joseph Tobie Severe watery discharge lasting more than five or six hours. Strong odor lasting more than a week. Any other unusual occurrence regarding the stoma. ???Got Questions??? If your local supplier cannot answer your questions or if you want a free sample of their products, call or click the manufacturer directly. Ask for the customer service dept. Coloplast.com 1-800-533-0464 Convatec.com 1-800-422-8811 Dansac.com 1-800-538-0890 Hollister.com 1-800-323-4060 Cymedostomy.com 1-800-582-0707 Nu-Hope.com 1-800-899-5017 2 NEW MEMBER Betty Burke The Four Phases of Surgical Recovery By Albert G. Wagoner, MD, Edited by B. Brewer, UOAA Update May 2012 Each patient, along with the family, usually goes through four phases of recovery, following an accident or illness that results in loss of function of an important part of the body. Only the time required for each phase varies. Knowledge of the four phases of recovery is essential. They are as follows: The Shock Phase—The period of psychological impact. Probably, you remember nothing of this phase after your operation. Nevertheless, it is a phase that requires a lot of support. The Defensive Retreat Phase—The period in which you defend yourself against the implication of the crisis. You avoid reality. Characteristic in this period is wishful thinking or denial, or repression of your actual condition. For example, an ostomate believes that his/her entire colon is still there and will be connected later. The Phase of Acknowledgment—In this period, you face reality. As you give up the existing old structure, you may enter into a period, at least temporarily, of depression, apathy, agitation, or bitterness and of high anxiety. You hate your stoma, yourself, you cry a lot, pity or condemn yourself. You may not eat, be unable to sleep or want to be left to die. In this phase you need all the support that can be mustered. The Phase of Adaptation—Now, you actively cope with the situation in a constructive manner. You adapt, during a shorter or longer period, to the adjustments that are necessary. You begin to establish new structures and develop a new sense of worth, with the aid of an ostomy nurse and an ostomy visitor, you can learn about living with an ostomy. Aided by your physician, social workers, ostomy association and family, you go about rebuilding and altering the life that brought about the condition. Sound familiar? The Right Connection ~ Dec 2014 3 The Right Connection ~ Dec 2014 4 YEARLY DUES SECOND RENEWAL NOTICE $10 DUES ARE DUE January 1, 2015 AND DELINQUENT March 1, 2015 Please check your checkbook to be sure that you haven’t already paid your dues. Your cancelled check is your receipt! Yes! I want to continue to receive this newsletter, support the regular meetings, visitor program, Youth Rally and FOW and help new ostomates in the community. $10.00 Annual Dues $______Additional donation to support programs and projects of OASD $______Total amount enclosed ______ I need assistance with dues Please complete the information below and mail with your check payable to Ostomy Association of San Diego, Inc. to: Ostomy Association of San Diego, Inc. PLEASE Confirm PMB 48 current email and phone 2650 Jamacha Rd Ste 147 El Cajon CA 92019-4819 EMAIL:____________________________ Name:_____________________________________ Phone#___________________________ 5 The Right Connection ~ Dec 2014 Common Skin Problems UOAA UPDATE 2/10 UNEVEN SKIN EXCORIATION is caused by contact with stool or urine. This is often uneven in appearance. Excoriation may occur on one side, especially where leaks occur. Skin barrier/wafer may be used below the faceplate to absorb moisture and protect the skin. A thin coating of Maalox or calamine (for itching) will protect the skin. These can be dried with a cool hair dryer. Nothing will stick to wet skin. ALLERGIES occur with contact and may be indicated by a ring around the stoma where paste is used or tape make contact with your skin. This can be treated like excoriation. It may be necessary to switch products. Pouches without tape are available. Pouch covers can aid in allergies to plastic (and are a good idea when it is hot). If you use soap on the skin around your stoma, be sure to rinse well. MONILA is a yeast infection. The skin will peel and may look purple. Monila often occurs after treatment with antibiotics or a yeast infection elsewhere. Treatment includes washing and drying the skin thoroughly and applying micostatin powder, (not ointment or oil) which is available over the counter. Yogurt in your diet helps fight yeast infections. FOLLICULITIS is infected hair follicles, and is usually seen in men who shave around their stoma. Using Skin Prep to protect and coat the skin will help. CHEMOTHERAPY may cause a cycle of skin irritation. Using skin barrier/wafer under your pouch helps to keep the skin dry and protect it. CRYSTAL FORMATION can occur for those with urinary diversions. Washing the skin and soaking it with a vinegar and water solution each time the pouch is changed can prevent crystal formation. Vinegar is a mild acid that breaks down the crystal. PYODERMA GANGRENOSUM seems to be connected to ulcerative colitis and Crohn’s Disease. This entails ulceration of the peristomal skin. Prednisone injections have been used and new ointments are proving effective results. Skin breakdown due to Crohn’s can occur anywhere on the body. 6 The Right Connection ~ Dec 2014 POUCH STUFF Edited by B. Brewer, UOAA UPDATE 10/2011 Paste... • A skin barrier paste is used to “caulk” around the stoma or to fill in uneven skin surfaces. Not everyone needs to use it. • A little dab will do you. Use only a small bead of paste (not toothpaste size). When using paste around the stoma, apply to pouch rather than skin and allow it to dry for one minute before touching, so it will not stick to your finger. Pouch Security... • If you use a two-piece system, the pouch may not be totally secured when you snap it on and could fall off when half full. Make sure the pouch is snapped to the flange securely. Start snapping it together at the bottom and work your way to the top. Give a little tug on the pouch to test its lock, but make sure you held the wafer so you don’t break the seal. • Don’t be afraid to take a shower without your pouch. Soap cannot hurt the stoma; however, rinse well (and rinse again). After bathing with the pouch off, pat dry and allow a few seconds to close the pores before changing. Wear your pouch inside your underwear for support. For Men: try jockey-type shorts. For Women: try full brief panties with some lycra (light stretch) to the material. Miscellaneous... • If you are staying overnight, consider carry a “chuck pad” (plastic backing) for your piece of mind. No need to worry! • Always carry an extra replacement pouching system if case you spring a leak while away from home. And carry extra clips in case you drop one into the toilet! • Carry an extra pouch closure in your pocket or purse... just in case you drop one. Or keep a few rubber bands in your wallet (could be lifesavers). • Some men with excessive hair find it painful to remove the wafers/barriers. Shaving with an electric razor or trimming hairs with scissors is helpful. • If you do not use pre-cut wafers... .try using a small seam ripper (for fabric) for cutting the size you need for barriers/wafers. • Put Skin Prep (spray or wipe) around the inner edge or cut edge of the wafer to help prevent the wafer from “melting” away so quickly. • Don’t expect to get the same pouch wear time in the summer months. • Sew or purchase a pouch cover if the plastic pouch against your skin is uncomfortable. • If you participate in very active sports, use a 10 inch strip of 2 inch tape to secure the pouch and barrier/wafer to your abdomen. (as a picture frame) Ziploc sandwich bags are useful and odor-proof for disposing of used ostomy pouches. 7 The Right Connection ~ Dec 2014 RELAXATION EXERCISE UOAA UPDATE 12/09 Practicing deep relaxation exercises may help relieve pain or reduce stress. This exercise may not be right for everyone. Ask your doctor or nurse if this exercise can help you. Practice slowly at first so you can get used to deep breathing and muscle relaxation. Find a quiet place where you can rest undisturbed for 20 minutes. Let others know you need this time for yourself. Make sure the setting is relaxing. For example, dim the lights if you like, and find a comfortable chair or couch. Get into a comfortable position where you can relax your muscles. Close your eyes and clear your mind of distractions. Breathe deeply, at a slow and relaxing pace. People usually breathe shallowly, high in their chests. Concentrate on breathing deeply and slowly, raising your belly, rather than just your chest, with each breath. Next, go through each of your major muscle groups, tensing (squeezing) them for 10 seconds and then relaxing. If tensing any particular muscle group is painful, skip the tensing step and concentrate just on relaxing. Focus completely on releasing all the tension from your muscles and notice the differences you feel when they are relaxed. Focus on the pleasant feeling of relaxation. You may find that your mind wanders. When you notice yourself thinking of something else, gently direct your attention back to your deepening relaxation. Be sure to maintain your deep breathing. Review the parts of your body again, and release any tension that remains. Be Sure to maintain your deep breathing. Now that you are relaxed, imagine a calming scene. Choose a spot that is particularly pleasant to you. It may be a favorite comfortable room, a sandy beach, a chair in front of a fireplace or any other relaxing place. Concentrate on the details. What can you see/ hear/ smell/ feel around you? Continue to breathe deeply, as you imagine yourself relaxing in your safe, comfortable place. When you are ready, start gently moving your hands and feet and bringing yourself back to reality. Open your eyes, and spend a few minutes becoming more alert. Notice how you feel now that you have completed the relaxation exercise, and try to carry these feelings with you into the rest of your day. 8 The Right Connection ~ Dec 2014 Our Advertisers When you are browsing though our newsletter, be sure to read the advertisements, as well as the articles. These businesses offer a variety of quality products and services. By advertising in our newsletter, they hope to reach more potential customers, but they also help cover our cost of publishing The Right Connection. So please consider them for your healthcare needs. When you contact them, we remind you to mention that you saw their ad in our newsletter. 9 The Right Connection ~ Dec 2014 MEETING DIRECTIONS Scripps Mende Well Being Center, La Jolla 4305 La Jolla Village Drive Suite L-5 San Diego, CA 92122 Remember this is your group; please try to schedule some time in your busy lives to contribute to its success. Help is needed to help set up tables and chairs before the meeting and, of course, taking them down after the meeting. You can find us in the Northwest corner of the Westfield University Town Center Shopping Center, in the Scripps Mende Well Being Center. Park in front of the Mexican restaurant. Take the elevator or stairs to the next level. The Well Being Center is to the left. The web address shown below will take you to a Google map that you can enlarge and use to get directions from anywhere to our Scripps Mende meeting site.. Or just search “Scripps Mende.” http://maps.google.com/maps? q=scripps%20mende The Right Connection ~ Dec 2014 410 The Right Connection~ Oct 2004 Board Members Jim Neizmik 858-271-7028 [email protected] Secretary Sarah Biggart 619-504-0823 [email protected] Treasurer Marilyn Deitrich 619-660-5619 [email protected] Kathleen Odom RN,CWOCN 619-461-3087 Julia Ringhofer RN,BSN,WOCN 619-260-7244 Star Harrison RN,BSN,CWOCN 760-633-6640 Jessica Schroeder BSN,RN,CWOCN 858-939-3342 Sally F. Rumpf MBH [email protected] 619-259-3814 Board meetings are always open to anyone who is interested in the business of our chapter. Committee Chairs Visting Coordinator Julia Ringhofer RN/BSN/WOCN 619-260-7244 Colostomy Jim Neizmik 858-271-7028 Ileostomy Sarah Biggart 619-504-0823 Urostomy Diane Watson 619-262-6226 Continent Diversions Delene St. Clair 760-751-1876 UOAA For Youth *Ages 0-18* Teresa Hilleary 858-693-7966 RC Editor Jim Neizmik Membership Marilyn Deitrich 619-660-5619 Greeters Larry & Joyce Wurm Founder & Friend The Late Richard H. Tullis, MD *Medical Professionals* OSTOMY ANNIVERSARY CORNER Bette LeVine 24 years This corner is devoted to those who wish to commemorate their ostomy surgery date by giving a donation to the group on its anniversary. ____________________ Ostomy Anniversary Donation Corner In celebration of my return to GOOD HEALTH!! ___I am contributing the sum of: $ _________ You will be recognized in the newsletter “The Right Connection” unless you want to remain anonymous. Name _______________________ Phone _______________________ Please Note: One of the chapter’s major functions is to provide, when Years _______________________ required, ostomate and spouse visitors, Send this form with your check, trained in accordance with guidelines payable to: laid down by the UOAA, and instructed by our own WOCN’s. If you have a paOstomy Assoc of San Diego, Inc. tient who has, or will have, an ostomy PMB 48 procedure, please call our phone at 619 2650 Jamacha Rd Ste 147 -223-2966 and leave a message. We El Cajon CA 92019-4819 give support to both patient and family we DO NOT give medical advice, nor do we actively assist in the physical care of the stoma. Articles and information printed in the newsletter are not necessarily endorsed by the OASD and may not be applicable to everybody. Please consult your own medical professional for the advice best for you. 11 Medical Advisor Cherie Sheehan RN,BSN,WOCN The Right Connection ~ Dec 2014 Reminder: The Right Connection Ostomy Assoc. of San Diego PMB 48 2650 Jamacha Rd Ste 147 El Cajon, California 92019-4819 NON-PROFIT U.S. POSTAGE PAID Scheduled Meetings are in January, March, June, September & November San Diego, CA Permit #464 The Right Connection—December 2014 Return Service Requested Ostomy Assoc of San Diego, Inc. Web Page http://ostomysocal.org MEMBERSHIP APPLICATION FOR OSTOMY ASSOC. OF SAN DIEGO, INC. NEW MEMBERSHIP is open to all ostomates, family members, medical professionals, and other interested persons NEW Membership Includes: “THE RIGHT CONNECTION”, our chapter’s monthly newsletter containing helpful hints on how to live with an ostomy. Regular meetings to exchange ideas, answer questions, and listen to interesting presentations. One-on-one visits, as needed, to prospective ostomates by qualified visitors. Affiliation with our national organization, United Ostomy Associations of America (UOAA). Tax-deductible dues are $10 per year---- DO NOT USE THIS APPLICATION FOR RENEWAL Name _______________________________________________________ Amount Enclosed $____________ Address ___________________________________________________ City ___________________________ State ____ Zip__________ Phone Number (_____)______________ Email___________________________ Date of Birth ___________________ Date of Ostomy Surgery ___________ Reason for Surgery: __ Crohn’s __ Ulcerative Colitis __ Cancer __ Birth Defects ___Other Type of procedure: __ Colostomy __ Ileostomy __ Continent Ileostomy __ Urinary Diversion __ Continent Urostomy If you are not an ostomate: You are a: __ Physician __ Nurse Please make checks payable to: Ostomy Assoc. of San Diego, Inc. __ Spouse __ Parent of a child w/procedure __ Family member Mail to: Ostomy Assoc. of San Diego, Inc. PMB 48 2650 Jamacha Rd Ste 147 El Cajon, CA 92019-4819
© Copyright 2024